[bksvol-discuss] Re: OT: infant cataract surgery
- From: Cindy <popularplace@xxxxxxxxx>
- To: bksvol-discuss@xxxxxxxxxxxxx
- Date: Sat, 19 Nov 2005 14:32:37 -0800 (PST)
True, Jill. One or both of the articles mentioned
possible conditions in addition to the hereditary
aspect--but one would think that a pediatric
ophthalmologist would be able to tell. smile
Cindy
--- Jill O'Connell <jillocon@xxxxxxxxxxxx> wrote:
> It is my understanding that often there is more than
> just a cataract
> involved and apparently eye surgeons don't always
> know this ahead of time.
> Therefore, parents can't simply assume that cataract
> surgery if done at a
> very early age will necessarily give the child good
> vision.
> ----- Original Message -----
> From: "Cindy" <popularplace@xxxxxxxxx>
> To: <bksvol-discuss@xxxxxxxxxxxxx>
> Sent: Saturday, November 19, 2005 12:50 AM
> Subject: [bksvol-discuss] OT: infant cataract
> surgery
>
>
> > Dear Lissi,
> >
> > Your letter posted here has prompted me to pass on
> > information that I wrote to Kasondra offlist.
> >
> > My elder daughter is a pediatrician. After reading
> > Kasondra's post, I asked her if she had any blind
> > patients. She said no, but she had two babies who
> were
> > born with congenital cataracts. the first had an
> > operation removing them, and the second, a
> > four-month-old, will have one soon. When I asked
> if a
> > two-yar-old could have the operation, she said
> that it
> > was possible but that it wouldn't help much--he
> would,
> > as happened with you at the age of three and a
> half,
> > have some slight vision, but his cortical pathways
> > would be so developed by the age of two that he
> > wouldn't have full vision.
> >
> > Your reaction to having some vision to be able to
> see
> > colors, animals, etc. is interesting, and may help
> > others to decide whether it's worth having their
> child
> > go through the operation or not. Do you know why
> you
> > had to have 7 operations? The definite impression
> I
> > got from Dori is that if the oepration is
> performed in
> > infancy only the one would be necessary. Since no
> > older patient of hers has had the operation, I'm
> > guessing she doesn't know if one is enough or if
> more
> > would be necessary.
> >
> > I pass on this information so anyone with the
> > condition who is worried about having children
> born
> > with congenital cataracts will know that the child
> > doesn't have to remain blind or partially sighted.
> >
> > Cindy
> >
> >
> >
> >
> >
> > nd Everyone Along This Strand,
> >>
> >> Shelley, re the average age for learning braille,
> I
> >> agree with you that
> >> it's equivalent to the age children learn to read
> >> print, taking their
> >> individual rate of development yadah yadah in to
> >> account.
> >>
> >> For the record, my brother and I had bilateral,
> >> congenital cataracts as did
> >> our mother. Our father had no vision problems.
> With
> >> our risk factor of
> >> passing cataracts to our children, both of us
> opted
> >> not to have kids, a
> >> decision I now regret. You said it all, Shelly.
> It's
> >> a lot to think about.
> >>
> >> With my achievements and failures and my past and
> >> current struggles, I'm
> >> glad my parents took the risk to have me even
> after
> >> my brother was born
> >> first, with very little vision. I came along
> totally
> >> blind until 7 surgeries
> >> gave me a little vision in one eye when I was
> three
> >> and a half. I have had,
> >> and still have rough times, but there's all of
> the
> >> beauty, the people, the
> >> music, books, animals, colors, variety, endless
> >> things to observe, feel,
> >> and ponder...I'm grateful to have been born.
> >>
> >> Always With Love,
> >>
> >> Lissi
> >>
> >> ----- Original Message -----
> >> From: <juddysbuddy@xxxxxxxxxxxx>
> >> To: <bksvol-discuss@xxxxxxxxxxxxx>
> >> Sent: Saturday, November 19, 2005 12:03 AM
> >> Subject: [bksvol-discuss] Re: OT: heavy books
> >>
> >>
> >> > kids that learn Braille usually start at the
> same
> >> time that other kiddos
> >> > are
> >> > learning Print. Because, they are learning to
> >> read just as the other
> >> > kiddos
> >> > are.
> >> >
> >> > Smile.
> >> >
> >> > Indeed some disorders can be hereditary. Mine
> is.
> >> I have Retinitis
> >> > Pigmentosa, and we don't know which form it is.
> >> The only major concern
> >> > for
> >> > the family right now, is to watch my brothers
> and
> >> make sure they get
> >> > regular
> >> > eye check ups, and of course if I get married
> and
> >> plan to have kiddos of
> >> > my
> >> > own, I need to be tested and so will my husband
> to
> >> see if he is a carrier
> >> > of
> >> > the genetic traits for RP. If he does, then we
> >> might have up to a 75
> >> > percent chance of having a child with RP, and
> will
> >> have an almost 100%
> >> > chance of a kid who is a "carrier".
> >> >
> >> > It is pretty likely that both my brothers are
> >> carriers of the trait too.
> >> > But so far they don't appear to have it.
> >> >
> >> > Course RP usually shows up in your forties, so
> >> perhaps.
> >> >
> >> > If it is recessive, then it could have easily
> >> passed to them too.
> >> >
> >> > Things to think about.
> >> >
> >> >
> >> >
> >> > Shelley L. Rhodes and Judson, guiding golden
> >> > juddysbuddy@xxxxxxxxxxxx
> >> > Guide Dogs For the Blind Inc.
> >> > Graduate Advisory Council
> >> > www.guidedogs.com
> >> >
> >> > The vision must be followed by the venture. It
> is
> >> not enough to
> >> > stare up the steps - we must step up the
> stairs.
> >> >
> >> > -- Vance Havner
> >> > ----- Original Message -----
> >> > From: "Gail The U. S. Male"
> <gail1959@xxxxxxxxxxx>
> >> > To: <bksvol-discuss@xxxxxxxxxxxxx>
> >> > Sent: Friday, November 18, 2005 8:35 PM
> >> > Subject: [bksvol-discuss] Re: OT: heavy books
> >> >
> >> >
> >> > Cindy, indeed, some forms of blindness are
> >> hereditary. Most totally blind
> >> > kids start learning Braille in either
> Kindergarten
> >> or first grade. The
> >> > child
> >> > could be taught at a younger age, I suppose,
> but
> >> most kids aren't.
> >> >
> >> > -----Original Message-----
> >> > From: bksvol-discuss-bounce@xxxxxxxxxxxxx
> >> > [mailto:bksvol-discuss-bounce@xxxxxxxxxxxxx]On
> >> Behalf Of Cindy
> >> > Sent: Friday, November 18, 2005 6:16 PM
> >> > To: bksvol-discuss@xxxxxxxxxxxxx
> >> > Subject: [bksvol-discuss] Re: OT: heavy books
> >> >
> >> >
> >> > That's a cute story, Kasondra. How old does a
> >> child
> >> > have to be before he can start learning to read
> in
> >> > Braille? Are you and/or your husband bind? Are
> >> some
> >> > forms of blindness hereditary? Forgive me if
> I'm
> >> being
> >> > too personal.
> >> >
> >> > Cindy
> >> >
> >> > --- Kasondra Payne <Kassyp36@xxxxxxx> wrote:
> >> >
> >> >> Cindy,
> >> >>
> >> >> I just walked in my bedroom to answer the
> phone,
> >> and
> >> >> I found my two-year-old
> >> >> son, Andrew on the floor, trying to read a
> Harry
> >> >> Potter book. My husband
> >> >> always keeps one on his side of the bed, and
> >> Andrew
> >> >> just took off the cover,
> >> >> opened the book, and started turning pages.
> It
> >> was
> >> >> so cute that I just
> >> >> thought I should share it with all you guys.
> >> Andrew
> >> >> will read Braille
> >> >> someday because he is blind, but at least he
> >> shows a
> >> >> healthy interest in
> >> >> books now. Yes, that particular book is very
> >> heavy,
> >> >> but it was already on
> >> >> the floor, so Andrew could move it easier
> >> >>
> >> >> Kasondra Payne
> >> >>
> >> >> --
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> >> >
> >> >
> >> >
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> >
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