[bksvol-discuss] Re: OT: infant cataract surgery
- From: "Gail The U. S. Male" <gail1959@xxxxxxxxxxx>
- To: <bksvol-discuss@xxxxxxxxxxxxx>
- Date: Sat, 19 Nov 2005 09:29:46 -0700
some key words here are observe, feel, and ponder. I had a small bit of
vision when I was younger, a pinpoint was what the doctors called it. I was,
and am totally blind, but I could see shadows, primary colors, *shades of
blue, for example I couldn't tell, but blue versus green I could* I also had
light perception, which meant I could see light, and I could tell you if it
was a table lamp, or floor lamp, or ceiling fixture, and whether it was the
long fluorescent lights or just incandescent bulbs. I've totally lost that
ability now, and it frustrates me to no end sometimes, since sighted people
quite often forget to turn the light off after they leave one of my rooms.
Then the neighbors make comments like, "Did you know the porch light has
been on for three days now?" No, I didn't, or I'd have turned it off. all
the light probes I've seen, I can't hear, since I also have a high frequency
hearing loss. That's something I've never understood. Why they thought that
if you made something for the use of blind people, it had to be high
frequency!
-----Original Message-----
From: bksvol-discuss-bounce@xxxxxxxxxxxxx
[mailto:bksvol-discuss-bounce@xxxxxxxxxxxxx]On Behalf Of Cindy
Sent: Saturday, November 19, 2005 1:51 AM
To: bksvol-discuss@xxxxxxxxxxxxx
Subject: [bksvol-discuss] OT: infant cataract surgery
Dear Lissi,
Your letter posted here has prompted me to pass on
information that I wrote to Kasondra offlist.
My elder daughter is a pediatrician. After reading
Kasondra's post, I asked her if she had any blind
patients. She said no, but she had two babies who were
born with congenital cataracts. the first had an
operation removing them, and the second, a
four-month-old, will have one soon. When I asked if a
two-yar-old could have the operation, she said that it
was possible but that it wouldn't help much--he would,
as happened with you at the age of three and a half,
have some slight vision, but his cortical pathways
would be so developed by the age of two that he
wouldn't have full vision.
Your reaction to having some vision to be able to see
colors, animals, etc. is interesting, and may help
others to decide whether it's worth having their child
go through the operation or not. Do you know why you
had to have 7 operations? The definite impression I
got from Dori is that if the oepration is performed in
infancy only the one would be necessary. Since no
older patient of hers has had the operation, I'm
guessing she doesn't know if one is enough or if more
would be necessary.
I pass on this information so anyone with the
condition who is worried about having children born
with congenital cataracts will know that the child
doesn't have to remain blind or partially sighted.
Cindy
nd Everyone Along This Strand,
>
> Shelley, re the average age for learning braille, I
> agree with you that
> it's equivalent to the age children learn to read
> print, taking their
> individual rate of development yadah yadah in to
> account.
>
> For the record, my brother and I had bilateral,
> congenital cataracts as did
> our mother. Our father had no vision problems. With
> our risk factor of
> passing cataracts to our children, both of us opted
> not to have kids, a
> decision I now regret. You said it all, Shelly. It's
> a lot to think about.
>
> With my achievements and failures and my past and
> current struggles, I'm
> glad my parents took the risk to have me even after
> my brother was born
> first, with very little vision. I came along totally
> blind until 7 surgeries
> gave me a little vision in one eye when I was three
> and a half. I have had,
> and still have rough times, but there's all of the
> beauty, the people, the
> music, books, animals, colors, variety, endless
> things to observe, feel,
> and ponder...I'm grateful to have been born.
>
> Always With Love,
>
> Lissi
>
> ----- Original Message -----
> From: <juddysbuddy@xxxxxxxxxxxx>
> To: <bksvol-discuss@xxxxxxxxxxxxx>
> Sent: Saturday, November 19, 2005 12:03 AM
> Subject: [bksvol-discuss] Re: OT: heavy books
>
>
> > kids that learn Braille usually start at the same
> time that other kiddos
> > are
> > learning Print. Because, they are learning to
> read just as the other
> > kiddos
> > are.
> >
> > Smile.
> >
> > Indeed some disorders can be hereditary. Mine is.
> I have Retinitis
> > Pigmentosa, and we don't know which form it is.
> The only major concern
> > for
> > the family right now, is to watch my brothers and
> make sure they get
> > regular
> > eye check ups, and of course if I get married and
> plan to have kiddos of
> > my
> > own, I need to be tested and so will my husband to
> see if he is a carrier
> > of
> > the genetic traits for RP. If he does, then we
> might have up to a 75
> > percent chance of having a child with RP, and will
> have an almost 100%
> > chance of a kid who is a "carrier".
> >
> > It is pretty likely that both my brothers are
> carriers of the trait too.
> > But so far they don't appear to have it.
> >
> > Course RP usually shows up in your forties, so
> perhaps.
> >
> > If it is recessive, then it could have easily
> passed to them too.
> >
> > Things to think about.
> >
> >
> >
> > Shelley L. Rhodes and Judson, guiding golden
> > juddysbuddy@xxxxxxxxxxxx
> > Guide Dogs For the Blind Inc.
> > Graduate Advisory Council
> > www.guidedogs.com
> >
> > The vision must be followed by the venture. It is
> not enough to
> > stare up the steps - we must step up the stairs.
> >
> > -- Vance Havner
> > ----- Original Message -----
> > From: "Gail The U. S. Male" <gail1959@xxxxxxxxxxx>
> > To: <bksvol-discuss@xxxxxxxxxxxxx>
> > Sent: Friday, November 18, 2005 8:35 PM
> > Subject: [bksvol-discuss] Re: OT: heavy books
> >
> >
> > Cindy, indeed, some forms of blindness are
> hereditary. Most totally blind
> > kids start learning Braille in either Kindergarten
> or first grade. The
> > child
> > could be taught at a younger age, I suppose, but
> most kids aren't.
> >
> > -----Original Message-----
> > From: bksvol-discuss-bounce@xxxxxxxxxxxxx
> > [mailto:bksvol-discuss-bounce@xxxxxxxxxxxxx]On
> Behalf Of Cindy
> > Sent: Friday, November 18, 2005 6:16 PM
> > To: bksvol-discuss@xxxxxxxxxxxxx
> > Subject: [bksvol-discuss] Re: OT: heavy books
> >
> >
> > That's a cute story, Kasondra. How old does a
> child
> > have to be before he can start learning to read in
> > Braille? Are you and/or your husband bind? Are
> some
> > forms of blindness hereditary? Forgive me if I'm
> being
> > too personal.
> >
> > Cindy
> >
> > --- Kasondra Payne <Kassyp36@xxxxxxx> wrote:
> >
> >> Cindy,
> >>
> >> I just walked in my bedroom to answer the phone,
> and
> >> I found my two-year-old
> >> son, Andrew on the floor, trying to read a Harry
> >> Potter book. My husband
> >> always keeps one on his side of the bed, and
> Andrew
> >> just took off the cover,
> >> opened the book, and started turning pages. It
> was
> >> so cute that I just
> >> thought I should share it with all you guys.
> Andrew
> >> will read Braille
> >> someday because he is blind, but at least he
> shows a
> >> healthy interest in
> >> books now. Yes, that particular book is very
> heavy,
> >> but it was already on
> >> the floor, so Andrew could move it easier
> >>
> >> Kasondra Payne
> >>
> >> --
> >> No virus found in this outgoing message.
> >> Checked by AVG Free Edition.
> >> Version: 7.1.362 / Virus Database: 267.13.4/175 -
> >> Release Date: 11/18/2005
> >>
> >> To unsubscribe from this list send a blank Email
> to
> >> bksvol-discuss-request@xxxxxxxxxxxxx
> >> put the word 'unsubscribe' by itself in the
> subject
> >> line. To get a list of available commands, put
> the
> >> word 'help' by itself in the subject line.
> >>
> >>
> >
> >
> >
> >
> >
> > __________________________________
> > Yahoo! Mail - PC Magazine Editors' Choice 2005
> > http://mail.yahoo.com
> > To unsubscribe from this list send a blank Email
> to
> > bksvol-discuss-request@xxxxxxxxxxxxx
> > put the word 'unsubscribe' by itself in the
> subject line. To get a list
> > of
> > available commands, put the word 'help' by itself
> in the subject line.
> > To unsubscribe from this list send a blank Email
> to
> > bksvol-discuss-request@xxxxxxxxxxxxx
> > put the word 'unsubscribe' by itself in the
> subject line. To get a list
> > of
> > available commands, put the word 'help' by itself
> in the subject line.
> >
> >
> >
> > To unsubscribe from this list send a blank Email
> to
> > bksvol-discuss-request@xxxxxxxxxxxxx
> > put the word 'unsubscribe' by itself in the
> subject line. To get a list
> > of available commands, put the word 'help' by
> itself in the subject line.
> >
> >
>
>
> To unsubscribe from this list send a blank Email to
> bksvol-discuss-request@xxxxxxxxxxxxx
> put the word 'unsubscribe' by itself in the subject
> line. To get a list of available commands, put the
> word 'help' by itself in the subject line.
>
>
__________________________________
Yahoo! FareChase: Search multiple travel sites in one click.
http://farechase.yahoo.com
To unsubscribe from this list send a blank Email to
bksvol-discuss-request@xxxxxxxxxxxxx
put the word 'unsubscribe' by itself in the subject line. To get a list of
available commands, put the word 'help' by itself in the subject line.
To unsubscribe from this list send a blank Email to
bksvol-discuss-request@xxxxxxxxxxxxx
put the word 'unsubscribe' by itself in the subject line. To get a list of
available commands, put the word 'help' by itself in the subject line.
Other related posts:
