[bksvol-discuss] Re: o/t the real bubble boy
- From: Cindy <popularplace@xxxxxxxxx>
- To: bksvol-discuss@xxxxxxxxxxxxx
- Date: Mon, 14 Mar 2005 18:48:32 -0800 (PST)
In my research, I found a lot of criticism of the 2001
movie, including from David's mother. I guess I
thought his last name was Demaret because his mother's
name was, but maybe she remarried.
Rui, after reading your post, I did put in the name
David Vetter into google. There's a very long,
detailed article about him:
http://www.houstonpress.com/issues/1997-04-10/feature.html
if anyone wants to read it. The Vetters were divorced
and David's mother Carol re-married a reporter who'd
written about David. Apparently a pcyshologist (I
think), Mary Murphy was very close to David and was
going to write a book, which he wanted written so
people would know the truth, but after he died the
Vetters withdrew their permission and threatened a
lawsuit. In truth, it seems that David was very
unhappy with his situation and from the age of 8
woujld have temper tantrums and ask questions like
why did they let me get this far? The Vetters' first
child, also named David, had the same condition (it's
genetic) but died as an infant. The doctors wanted to
see if they could prolong David's life and maybe find
a cure for the condition. In a sense, he was a guinea
pig--and a very unhappy one. I found the article
fascinating.
Cindy
--- Rui <rui@xxxxxxxx> wrote:
> Hi everyone:
> Sue is referring to David Vetter who died in the
> Houston area in 1984.
>
> He lived in a bubble for most of his life because he
> had SCID, or severe
> combined immune deficiency, which happens in about 1
> in every 75,000 births.
>
> The 2001 movie however was a comedic version of this
> and in no way was an
> accurate representation.
> Why you would make a comedy about a disease, hey, i
> don't know.
>
>
> ----- Original Message -----
> From: "siss52" <siss52@xxxxxxx>
> To: <bksvol-discuss@xxxxxxxxxxxxx>
> Sent: Monday, March 14, 2005 7:22 PM
> Subject: [bksvol-discuss] Re: CSUN
>
>
> >
> > There was a REAL child who had to live in a bubble
> so he woooouldn't be
> > exposed to many germs. I can't recall what was
> wrong with him though.
> >
> > Sue S.
> >
> > ----- Original Message -----
> > From: "Liz Bottner" <liziswhatis@xxxxxxxxxxx>
> > To: <bksvol-discuss@xxxxxxxxxxxxx>
> > Sent: Monday, March 14, 2005 3:29 PM
> > Subject: [bksvol-discuss] Re: CSUN
> >
> >
> > Actually, a bubble might be kind of fun to be in,
> at least at first. I
> can
> > imagine it might eventually get kind of lonely :).
> I think there was some
> > movie about a boy who lived in a bubble or
> something, although I've never
> > seen it.
> >
> > Staying out of hospitals is always a good thing.
> >
> > Liz
> >
> >
> >
> >
> >
> >
> >
> >
>
>
>
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