Steve, is there an email type group for non-24?
----- Original Message -----
From: Vickie
To: msb-alumni@xxxxxxxxxxxxx
Sent: Thursday, August 18, 2016 10:24 PM
Subject: [msb-alumni] Re: NON24
Funny thing is, a lot of blind people don’t watch TV, very much, or not at
all. I tell people about shows on TV on another list I’m on, where they talk
about everything imaginable, and they act like they’ve never heard of them, or
wonder what channel it’s on in their area, or don’t care. Most will watch
baseball, or some other sport, and maybe the local news, but that’s all. Well,
sometimes they watch PBS. So there needs to be a better way to reach blind
folks like on the radio, since blind people do listen to radio. I’ve never
heard a non24 commercial on the radio, but I have on TV and not usually at news
time. Maybe you Steve, could suggest they put more commercials on the radio.
Seems like that would be cheaper advertisement anyway.
Vickie Rolison
From: Steve
Sent: Wednesday, August 17, 2016 4:00 PM
To: msb-alumni@xxxxxxxxxxxxx
Subject: [msb-alumni] Re: NON24
Actually, only about one percent of the totally blind are even aware of the
condition; that's why you still see so much of their advertising on TV.
----- Original Message -----
From: joanne
To: msb-alumni@xxxxxxxxxxxxx
Sent: Wednesday, August 17, 2016 5:13 PM
Subject: [msb-alumni] Re: NON24
I certainly appreciate your helpful words, Steve. I really believe I have it
and wish it could be confirmed. The test I'm going for is just a regular study
and the people here haven't tested anyone for non-24. It's just a shame that
many of us aren't aware we may have it or may not be able to get the
prescription that works to regulate our circadian rhythms.
----- Original Message -----
From: Steve
To: msb-alumni@xxxxxxxxxxxxx
Sent: Wednesday, August 17, 2016 2:12 PM
Subject: [msb-alumni] Re: NON24
Actually, Larry, it really does affect a lot of people. Probably only one
percent of the people who have it have been diagnosed. But, estimates are
about 70 percent of totally blind people have non-24.
Admittedly, some people will have more severe symptoms than others. One of
the people I trained with had such a severe case of Non-24, that she fell
asleep in the middle of crossing a street.
Sure, that's extreme. But, in my story about dealing with non-24, I talk
about almost losing my job because I fell asleep in a very important meeting.
Whether or not you think the prescription drug is necessary, if the
symptomology is very severe and seriously affecting your work or family life,
then you probably will be thankful there is a potential solution.
Steve
----- Original Message -----
From: lkeeler@xxxxxxxxxxx
To: msb-alumni@xxxxxxxxxxxxx
Sent: Monday, August 15, 2016 12:21 PM
Subject: [msb-alumni] Re: NON24
Sort of. But, the syndrome does exist. I don’t think its as wide spread as
they would have you believe. I actually know a couple of people who probably do
have it.
From: Kalan J. Weingartz
Sent: Monday, August 15, 2016 11:19 AM
To: msb-alumni@xxxxxxxxxxxxx
Subject: [msb-alumni] Re: NON24
I think it is a bunch of BS to sell drugs!
On 2016-08-15 11:01 AM, lkeeler@xxxxxxxxxxx wrote:
It is a lack of melatonin production or a probblem with the pineal gland
to react to light. I don't know how many people have it but I don't. To much
coffee is usually my probblem. I'm sure some blind people have it but, those
commercials make you believe that all blind folks do. It can also happen to
spelunkers who may spend a lot of time underground.
From: Kalan J. Weingartz
Sent: Monday, August 15, 2016 10:51 AM
To: msb-alumni@xxxxxxxxxxxxx
Subject: [msb-alumni] NON24
What eactly is NON24....do any of you have it!?!?