[icevi-e-contacts] Re: survey for persons with VI and additional disabilities
- From: "Crews, Nicola" <Nicola.Crews@xxxxxxxxxxx>
- To: <icevi-e-contacts@xxxxxxxxxxxxx>
- Date: Wed, 26 Mar 2014 09:50:41 -0000
I have exactly the same problem as Steve. Whilst fully supporting this
initiative, we (as a 3rd Sector Organisation in Wales) don't have access
to the numerical data you are looking for.
I suggest that Wales is treated as part of the UK in this research, in
which case the information that Steve has given below would cover us
too.
Many thanks
Nicola
Nicola J. Crews MBE
Head of Education and Employment / Pennaeth Gwasanaethau Addysg a
Chyflogaeth
RNIB Cymru, Cwrt Jones, Stryd Womanby, Caerdydd CF10 1BR
RNIB Cymru, Jones Court, Womanby Street, Cardiff CF10 1BR
Telephone / Ffon : 029 2082 8520
Mobile : 07966 497 046
Email : nicola.crews@xxxxxxxxxxx
www.rnib.org.uk/cymru / www.rnib.org.uk
www.facebook.com/RNIB.Cymru / www.facebook.com/rnibuk
www.twitter.com/rnibcymru / www.twitter.com/rnib
-----Original Message-----
From: icevi-e-contacts-bounce@xxxxxxxxxxxxx
[mailto:icevi-e-contacts-bounce@xxxxxxxxxxxxx] On Behalf Of Stephen
McCall
Sent: 26 March 2014 09:30
To: icevi-e-contacts@xxxxxxxxxxxxx
Cc: ebucamb@xxxxxxxxxxxxx
Subject: [icevi-e-contacts] Re: survey for persons with VI and
additional disabilities
Hi Maria
Thanks for sending the survey form. The area of visual impairment and
multiple disability is a very important one and I am pleased to hear
that ICEVI and EBU are collaborating to find out more. It is difficult
for me to fill in the form as it stands because it assumes that there
is an organisation in the country that has members and represents all
people who have visual impairments. We don't have such an organisation
in the UK, and even if we did, it is unlikely that people with multiple
disabilities and visual impairment would be fairly represented among the
membership.
The difficulty is that people with visual impairment and additional
disabilities are often classified under what is considered to be their
primary disability such as severe learning disability or severe
physical impairment or, commonly, a combination of the two. The vision
of people with such complex needs often goes unassessed because of the
lack of expertise that vision professionals have in the assessment of
people who cannot respond conventionally.
Measures of the number of children and young people with visual
impairment and additional needs in the UK over the last thirty years
vary between 30% and 70% of the VI population, and the most recent
studies put the figure over 50%. My feeling is that this is likely to
hold true across Europe.
A literature review would be a useful basis from which to start. The
RNIB website has a selection of research reports that relate directly to
this issue.
http://www.rnib.org.uk/aboutus/Research/reports
One report in particular looks to have many of the answers you are
seeking:
http://www.rnib.org.uk/aboutus/Research/reports/prevention/Pages/learnin
g_disability_VI.aspx
The 2011 report by CeDR concluded that
There are over one million adults and over 400,000 children in the UK
with learning disabilities.
* An estimated 96,500 adults with learning disabilities (including
42, 000 known to the statutory services) are blind or partially sighted.
(This means that nearly one in 10 adults with learning disabilities is
blind or partially sighted).
* Adults with learning disabilities are 10 times more likely to be
blind or partially sighted than the general population
* An estimated 23,000 children and young people aged 0 to 19 with
learning disabilities in the UK are blind or partially sighted.
* An estimated 579,000 adults with learning disabilities (including
122,000 known to the statutory services) have refractive error. (This
means that nearly six out of 10 people with learning disabilities need
glasses.)
Hope this helps
Steve
________________________________
From: icevi-e-contacts-bounce@xxxxxxxxxxxxx
[icevi-e-contacts-bounce@xxxxxxxxxxxxx] on behalf of
m.kyriacou@xxxxxxxxxxxxxx [m.kyriacou@xxxxxxxxxxxxxx]
Sent: 25 March 2014 20:50
To: icevi-e-contacts@xxxxxxxxxxxxx
Cc: ebucamb@xxxxxxxxxxxxx
Subject: [icevi-e-contacts] survey for persons with VI and additional
disabilities
Dear ICEVI friends,
I am contacting you on behalf of the commission for persons with visual
impairments and additional disabilities of the European Blind Union as
part of the collaboration between ICEVI Europe and EBU with the request
to participate to a mapping exercise regarding persons with additional
disabilities and visual impairments in Europe.
This survey is the first step to the work programme of the commission of
persons with visual impairment and additional disabilities. The
commission is established for the first time after serious realization
that greater focus should be placed on people with additional
disabilities. This commission aims to enable improved understanding and
sharing of information about the population of persons with visual
impairment and additional disabilities.
This might be possible through a mapping exercise that will collect,
analyse and assess information from all countries. This preliminary
exercise will not be an end in itself. It will be a fundamental step in
enabling the identification of challenges, the assessment of needs and
better targeting of interventions.
We therefore kindly ask you for your contribution to this survey as your
input is extremely essential in our attempt to deliver our goals and
objectives.
We know that you might not be able to complete all parts of the survey
but we strongly encourage you to complete it to the best of your
ability.
Do not hesitate to contact me for any queries you have concerning the
completion of the survey.
Please return all completed surveys by May 16, 2014 to Maria Kyriacou at
m.kyriacou@xxxxxxxxxxxxxx with a copy to
ebucamb@xxxxxxxxxxxxx
Best wishes to all,
Maria Kyriacou
ICEVI contact person of Cyprus and
Coordinator of the Commission for persons with visual impairments and
additional disabilities of the European Blind Union
To report this e-mail as Spam, please forward it to:
spam@xxxxxxxxxxxxxxx
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