Pallium India Newsletter: October 2014

  • From: Pallium India Newsletter <info@xxxxxxxxxxxxxxxx>
  • To: "" <palliumindia@xxxxxxxxxxxxx>
  • Date: Fri, 31 Oct 2014 13:50:28 +0000

Pallium India
Care Beyond Cure





         

DEAR FRIENDS,

        _October 11 was World Palliative Care Day 
[http://www.thewhpca.org/about] . We really had a heartwarming Palliative Care 
Day at Trivandrum. Several events were organized to commemorate the day, 
including the Sangeetha Sandhya_, a musical event, at Al-Saj Convention Centre, 
Kazhakoottam. 

        The question on the mind of everyone who was part of the event was, 
_What makes them do it?_ Why should somebody as busy as the very popular music 
director and singer, M. Jayachandran, a television presence like Rimi Tomy, or 
any of the very talented and busy musicians give up a whole day for palliative 
care? 

        Jayachandran has always supported palliative care and this is the third 
time he has organized such events on World Palliative Care Day. All the 
musicians who participated in the event volunteered their services _pro bono_ 
and played to a packed hall. 

        The aim of the event was to raise awareness among people so that pain 
relief and palliative care will reach each one of the needy in our country.The 
media partner for Sangeetha Sandhya was _Mathrubhumi_. Mathrubhumi News channel 
ran streamers on the event, and media in general carried the story prominently. 

        Jayachandran, the 14 musicians who volunteered their time, the media 
that supported it – all show how warmly Kerala embraces palliative care. In 
answer to the question in this year’s theme of the world palliative care day – 
_Who cares?_ they proclaim, “WE DO”. 

        TO SEE MORE PHOTOS ON THE EVENT, PLEASE CLICK HERE 
[HTTPS://WWW.FACEBOOK.COM/MEDIA/SET/?SET=A.993957007297045.1073741835.141945799164841&TYPE=3]
 . 

        – 

PRINT AND VISUAL MEDIA IN TRIVANDRUM TAKE PALLIATIVE CARE TO THEIR HEARTS 
[HTTP://PALLIUMINDIA.ORG/2014/10/PRINT-AND-VISUAL-MEDIA-IN-TRIVANDRUM-TAKE-PALLIATIVE-CARE-TO-THEIR-HEARTS/]
 

        We really had a heartwarming Palliative Care Day at Trivandrum. The 
media made our day. Two articles appeared in the editorial pages of two very 
popular Malayalam newspapers, Kerala Kaumudi and Mathrubhumi. In Kerala 
Kaumudi, the author describes his own journey as a medical student who is 
systematically forced into an emotional detachment from human suffering, 
palliative care helping him to overcome that, and why palliative care education 
is essential for all medical and nursing students. 

        In the article in Mathrubhumi, he apologises to the many people in 
Kerala who still die in pain, despite twenty years of palliative care activity 
and despite a state palliative care policy. He urges everyone to give voice to 
the voiceless. 

        Later on in the morning, the Trivandrum Press Club, under the 
leadership of its President, Mr. P. P. James, organized a Meet The Press 
program where Dr Rajagopal got the opportunity to interact with an audience of 
about 40 (including journalists and journalism students). The fifteen minutes 
that were set aside for follow-up turned into one full hour of discussion. The 
enthusiasm in the group was palpable. While concluding the session, Mr James 
asked the group whether anyone was willing to undergo a 2-day volunteers 
training program offered by Pallium India. About twenty hands shot up. What a 
gratifying day! We believe journalists are some of the most important people 
for purpose of advocacy, which is perhaps the greatest need in the next few 
years. 

        Please visit the following links to see some of the coverage given to 
palliative care on visual and print media: 
        * Kerala Kaumudi: വേദന ചികിത്സയുടെ ബാലപാഠങ്ങൾ 
[http://news.keralakaumudi.com/news.php?nid=c142ec0ce421d50557c944328c5c6534] 
        * Mathrubhumi: മാപ്പ് 
[http://digitalpaper.mathrubhumi.com/354024/Kasargod/11-OCTOBER-2014#page/4/2] 
        * The New Indian Express: Call to Give Due Importance to Palliative 
Care 
[http://www.newindianexpress.com/cities/thiruvananthapuram/Call-to-Give-Due-Importance-to-Palliative-Care/2014/10/13/article2474904.ece]
 
        * Deccan Chronicle:  Only one per cent of needy get palliative care 
[http://www.deccanchronicle.com/141012/nation-current-affairs/article/world-palliative-care-day-only-cen-needy-get-palliative-care]
 
        * Mathrubhumi News TV: Interview with Dr Rajagopal 
[http://mathrubhuminews.in/ee/ReadMore/10483/palliative-day] 

        – 

SNEHA SANTHWANAM: A PROFESSIONAL DRAMA ON PALLIATIVE CARE 
[HTTP://PALLIUMINDIA.ORG/2014/10/SNEHA-SANTHWANAM-A-PROFESSIONAL-DRAMA-ON-PALLIATIVE-CARE/]
 

        A GIFT IN MALAYALAM IN CONNECTION WITH WORLD PALLIATIVE CARE DAY 2014. 

        Does anyone know of a professional drama with palliative care as its 
main theme? 

        The play which opened in Kartika Thirunal Theatre on 10 October 2014 
could well be the world’s first! 

        “SNEHA SANTHWANAM” was inaugurated by Shri V. S. Sivakumar, Hon’ble 
Health Minister of Kerala, at 6 PM on 10th October, 2014 at Karthika Thirunal 
Theatre, Trivandrum. The drama is presented by the troupe Aksharakala. It is 
written by Gopinath Kozhikode and directed by Meenambalam Santhosh. The hall 
was full with theatre-lovers and was hugely successful. 

        Thank you Gopinath, Santhosh. 

        – 

WALKATHON AT TRIVANDRUM IN SUPPORT OF PALLIATIVE CARE 
[HTTP://PALLIUMINDIA.ORG/2014/10/WALKATHON-AT-TRIVANDRUM-IN-SUPPORT-OF-PALLIATIVE-CARE/]
 

        At 9 AM on October 14, Kanakakkunnu Palace at Trivandrum began to fill 
with youth in white T-shirts, carrying the message “Who Cares? We Do!” They 
were students from different schools in Trivandrum who had gathered to 
participate in the Walkathon, organised by Alpha Palliative Care, Thrissur, and 
Pallium India. The event was organized in association with this year’s World 
Palliative Care Day. The initiative by K. M. Nooruddin and team of Alpha 
Palliative Care was aimed at spreading the message of palliative care across 
Kerala. 

        Kerala’s Health Minister, Shri V.S.Sivakumar, Education Minister Shri 
P. K. Abdu Rabb, N.H.M District Project Manager Dr Unnikrishnan and many others 
were present at the occasion. Shri Nooruddin read out the pledge to everyone 
present. 

        35 auto drivers from Medical College area were also part of the event 
under the leadership of Mr Manmathan and Mr Manikantan. These remarkable human 
beings had taken an oath that they will help any helpless or sick person that 
they come across by the roadside and that they will never ignore those who need 
their assistance, even though this might mean digging into their own pockets to 
help others. 

        Pallium India is fortunate to have been a part of this event. We hope 
that the message will reach every corner of Kerala and people will rise to 
provide a helping hand to those in need. 

        – 

ATTENTION: RMIS IN KERALA, INDIA 
[HTTP://PALLIUMINDIA.ORG/2014/10/ATTENTION-RMIS-IN-KERALA-INDIA/] 

        All the institutions in Kerala that are Recognized Medical Institutions 
for stocking and dispensing morphine, please note: it is time to submit the 
annual consumption data and the annual requirement for the next year to the 
State Drugs Controller. 

        The consumption data is to be prepared for the period from November 1, 
2013 to October 31, 2014. Please arrange to have the data submitted as early as 
possible to avoid any delay in allotment of next year’s quota. 

        The required form (Annexure 3) is available at:  
http://palliumindia.org/cms/wp-content/uploads/2014/10/ANNEXURE-III-Annual-estimate.pdf
 
[http://palliumindia.org/cms/wp-content/uploads/2014/10/ANNEXURE-III-Annual-estimate.pdf]
 

        Last year, several institutions got into trouble because of errors made 
in calculation. The institutions use morphine in various strengths and the 
consumption data have to be submitted in terms of grams. Unfortunately, those 
that made an error with under-calculation, got only the smaller quantity 
allotted in the subsequent year. 

        Anybody who needs help in filling up the form, please get your 
consumption data ready in terms of number of tablets and contact the 
Information Centre of Pallium India. (Telephone: +91-9746745497. E-mail: 
info@xxxxxxxxxxxxxxxx [mailto:info@xxxxxxxxxxxxxxxx] ). Our Information 
Officer, Mrs Sheeba Shaju, will assist you in making the right calculation. 

        – 

HRW ON MEXICO: INDIA IS A “POWERFUL EXAMPLE”. 
[HTTP://PALLIUMINDIA.ORG/2014/10/HRW-ON-MEXICO-INDIA-IS-A-POWERFUL-EXAMPLE/] 

        “India is a powerful example”, says Mr Diederik Lohman in an interview 
on  Pain Relief for Mexico’s – and the World’s – Terminally Ill 
[http://www.hrw.org/news/2014/10/28/interview-pain-relief-mexico-s-and-world-s-terminally-ill]
 . “After our report launch in 2009, and much advocacy by many organizations, 
India decided to change its drug law, which impeded access to pain medicines 
for people dying of cancer. The fact that India made these changes because it 
does not want to condemn its people – 1/6 of the world’s population – to 
unnecessary suffering is a powerful message. We hold up India as an example to 
other countries to convince them to change their drug regulations.” 

        Read: Mexico: Needless Suffering at End of Life 
[http://www.hrw.org/news/2014/10/24/mexico-needless-suffering-end-life] 

        India, Mexico, Senegal. So much pain and suffering. So huge 
opportunities to reduce that burden. If only we care. 

THANK YOU, MR DIEDERIK LOHMAN. THANK YOU, HUMAN RIGHTS WATCH.

        – 

CONGRATULATIONS, DR EKBAL, AND THANK YOU FOR SUPPORTING US. 
[HTTP://PALLIUMINDIA.ORG/2014/10/CONGRATULATIONS-DR-EKBAL-AND-THANK-YOU-FOR-SUPPORTING-US/]
 

        Dr B. Ekbal is a social luminary, thinker and former Vice-Chancellor of 
Kerala University. He recently got a prestigious award – Thiruvallam N. 
Achuthan Nair Foundation award. He divided the award money between different 
charities and we are proud to say that he donated one share to Pallium India’s 
educational activities. 

THANK YOU, DR. EKBAL. VERY WELL-DESERVED AWARD, AND A HUGE SUPPORT FOR US.

        – 

A VOICE FOR THE VOICELESS 
[HTTP://PALLIUMINDIA.ORG/2014/10/A-VOICE-FOR-THE-VOICELESS/] 

        The following article was published in the Mathrubhumi Malayalam daily 
dated October 21, 2014, in response to Dr M. R. Rajagopal’s piece 
[http://digitalpaper.mathrubhumi.com/354234/Trivandrum/11-OCTOBER-2014#page/4/1]
  in the same newspaper on October 11. 

        _(To read Mr M. A. Rahman’s article in Mathrubhumi’s e-paper, please  
click here 
[http://digitalpaper.mathrubhumi.com/360172/Trivandrum/21-OCTOBER-2014#page/4/2]
 .)_ 

        You chose to speak out, Mr M. A. Rahman, and be the voice of the 
voiceless. Your voice certainly counts a lot. 

PALLIUM INDIA WISHES TO CONVEY RESPECT AND ADMIRATION FOR YOUR WORK AND WOULD 
CONSIDER IT A PRIVILEGE TO GET TO KNOW YOU AND YOUR ORGANIZATION BETTER.

        – 

HEALTH CARE INSTITUTE DISCUSSES NEWER TRENDS 
[HTTP://PALLIUMINDIA.ORG/2014/10/HEALTH-CARE-INSTITUTE-DISCUSSES-NEWER-TRENDS/] 

        The  Health Care Institute [http://www.healthcareinstitute.in/]  formed 
in 1998 in the historic town of Kodungalloor in Kerala has been an innovator in 
palliative care. As their website says, “HCI realm is not one of inherent 
unequal power equation between a doctor and a patients or the charity of the 
donor and volunteer. HCI tries to triumph over the routine. It seeks to create 
an ambience of freedom.” 

        Pallium India was privileged to have an evening with the dynamic 
activists at HCI. They discussed the newer trends in palliative care, the World 
Health Assembly’s declaration of 2014, how palliative care is expanding into 
the territories of acute life-threatening diseases, how the over-medicalization 
of death is causing suffering and what we can all do about it. 

CONGRATULATIONS, HEALTH CARE INSTITUTE. WE APPLAUD YOUR FREE THINKING.

        – 

PALLIATIVE CARE INFORMATION CENTRE [HTTP://PALLIUMINDIA.ORG/INFO-CENTRE] 

        Contact Pallium India’s Information Centre (9 am to 12 noon) for 
information related to palliative care and about establishments where such 
facilities are available in India. 
        * 

TELEPHONE: +91-9746745497 OR E-MAIL: INFO@xxxxxxxxxxxxxxxx

        * 

ADDRESS: PALLIUM INDIA, ARUMANA HOSPITAL, PERUNTHANNI, TRIVANDRUM

        * 

FOR MORE DETAILS, PLEASE VISIT: HTTP://PALLIUMINDIA.ORG/INFO-CENTRE/ 
[HTTP://PALLIUMINDIA.ORG/INFO-CENTRE/] 

        – 

“MY MOTHER DID NOT GO BALD” – REVIEWS 
[HTTP://PALLIUMINDIA.ORG/2014/10/MY-MOTHER-DID-NOT-GO-BALD-REVIEWS/] 

        Nazeem Beegum’s book “My Mother Did Not Go Bald” has been getting 
positive reviews since its release in September 
[http://palliumindia.org/2014/09/my-mother-did-not-go-bald-nazeem-begums-book-on-her-mothers-cancer-journey/]
 . 

        _The Hindu_, in a review titled “ Living in the shadow of the big C 
[http://www.thehindu.com/books/books-authors/living-in-the-shadow-of-the-big-c/article6422961.ece]
 ” writes that “The honesty on each page is what makes this work different… 
Nazeem’s words paint the harsh picture of patients living in the company of 
death and pain while their relatives try to make sense of the new realities 
thrown up by the emperor of maladies.” ( Read the review in The Hindu 
[http://www.thehindu.com/books/books-authors/living-in-the-shadow-of-the-big-c/article6422961.ece]
 ) 

        In its review titled “ Song From the Broken Heart 
[http://www.newindianexpress.com/cities/kochi/Song-From-the-Broken-Heart/2014/09/24/article2446533.ece]
 “, _The New Indian Express_ calls “My Mother Did Not Go Bald” a compelling 
read. “Nazeem’s narrations strike a chord with those who go from being 
shell-shocked to numb in the matter of days, when a terminal disease hits their 
loved ones.” ( Read the review in the New Indian Express 
[http://www.newindianexpress.com/cities/kochi/Song-From-the-Broken-Heart/2014/09/24/article2446533.ece]
 ) 

        Copies of “My Mother Did Not Go Bald” are available for sale at Pallium 
India reception, Arumana Hospital, Trivandrum for Rs. 100. The book can also be 
purchased from  Amazon [http://www.amazon.com/dp/B00NGNEMJ8]  and  DC Books 
store [http://onlinestore.dcbooks.com/books/my-mother-did-not-go-bald] . 

THE KIND AUTHOR HAS ANNOUNCED THAT ALL PROCEEDS FROM THE SALE SHALL COME TO 
PALLIUM INDIA FOR SUPPORTING PEOPLE WHO NEED CARE.

        – 

DYING WITHOUT MORPHINE 
[HTTP://PALLIUMINDIA.ORG/2014/10/DYING-WITHOUT-MORPHINE/] 

        “In a powerful documentary, _The Pain Project_, India’s leading 
palliative care specialist, Dr. M. R. Rajagopal, explains that India’s narcotic 
regulatory agencies are so irrationally stringent that in 27 of the country’s 
28 states doctors simply avoid prescribing morphine for cancer pain, for fear 
of running afoul of the law,” writes Ronald Piana in the article _ Dying 
Without Morphine 
[http://www.nytimes.com/2014/10/01/opinion/dying-without-morphine.html?_r=1] ,_ 
published in the New York Times on September 30, 2014. The author notes that 
despite the World Health Organization’s statement that access to pain 
treatment, including morphine, is an essential human right, about six million 
terminal cancer patients around the world endure suffering because they do not 
have access to morphine. 

        _ The Pain Project [http://www.internationalreporting.org/pain/] _ is a 
documentary by the International Reporting Program on the situation in India, 
Ukraine and Uganda. The International Reporting Program found that “a 
combination of bureaucratic hurdles and the chilling effect of the global war 
on drugs are largely to blame, leaving humanitarians scrambling to work outside 
the law — or change the law — to bring relief to suffering patients all over 
the world.” 

        “Untreated cancer pain is a human disaster not unlike famine; its 
victims are starving for relief,” writes Ronald Piana. “Witnessing a clinic 
full of poor children with advanced cancer, crying in agony, should convince 
anyone that access to morphine is a human right.” 

WATCH THE VIDEO, _THE PAIN PROJECT_:  
HTTP://WWW.INTERNATIONALREPORTING.ORG/PAIN/ 
[HTTP://WWW.INTERNATIONALREPORTING.ORG/PAIN/] 

        – 

ONE MORE TRAINING CENTRE IN NORTH INDIA – GCRI, AHMEDABAD 
[HTTP://PALLIUMINDIA.ORG/2014/11/ONE-MORE-TRAINING-CENTRE-IN-NORTH-INDIA-GCRI-AHMEDABAD]
 

        We are glad to announce the starting of one more palliative care 
training centre; this time in Gujarat Cancer & Research Institute (GCRI) 
Ahmedabad, thanks to the initiative of Dr Geeta Joshi, who heads Palliative 
Medicine Department and is the Deputy Director of the Institute, and thanks to 
the support from Pallium India – USA. 

        So far Pallium India has been able to work with other institutions to 
develop the following training centres: one each in Trivandrum (Trivandrum 
Institute of Palliative Sciences), Hyderabad (Regional Cancer Centre at MNJ 
Institute of Oncology) and Jaipur (Bhagwan Mahaveer Cancer Hospital & Research 
Centre). And we are working with Saroj Gupta Cancer Institute and Research 
Institute and with East India Palliative Care (EIPC) to upgrade their training 
facility. The beginning of the training centres in Jaipur and Ahmedabad are 
major achievements because North India has practically no other facility. Now 
doctors, nurses and others from North India do not have to travel all the way 
to South India any more. 

        The first six weeks course for doctors and nurses at GCRI, Ahmedabad 
will be our major celebration on New Year Day, the first of January, 2015. 
(Details on the course will be updated to Pallium India’s website soon.) 
Congratulations, Dr Geeta Joshi, And Thank You Very Much, Dr Jerina Kapoor Of 
Pallium India Usa, For The Support.

        – 

ENERGIZING KOCHI [HTTP://PALLIUMINDIA.ORG/2014/10/ENERGIZING-KOCHI/] 

        Kochi (Cochin) is perhaps the most vibrant city in Kerala, forming the 
business hub of the state. Pallium India got energized by three events in Kochi 
in which it took part. The first was on the 6th October 2014, where we had an 
elaborate discussion with the local branch of Indian Society of Critical Care 
Medicine (ISCCM). You might remember our earlier communication 
[http://palliumindia.org/2014/08/iapc-consensus-statement-on-end-of-life-care/] 
, announcing the joint declaration by ISCCM and Indian Association of 
Palliative Care (IAPC) regarding End of Life Care in the context of critical 
care. 

        On the 16th of October, 2014 (World Anaesthesia Day), we had two 
events. The first was the opening of a new palliative care centre at Lisie 
Hospital, Kochi. This is really a major event. A pharmaceutical company 
associated with the institution and housed within its campus has been making 
low cost morphine for all Kerala, for about 15 years. The hospital now starts 
its own palliative care service. 

        And finally, we had a meeting organized by the Cochin branch of the 
Indian Society of Anaesthesiologists. They gave an award of honour to the 
Chairman of Pallium India, Dr M. R. Rajagopal, and in the process, handed over 
a sheaf of cheques, more than twenty of them – collected by the members and 
well-wishers – to go towards support for Pallium India. 

SO MUCH ACTIVITY, SO MUCH ENTHUSIASM. WE ARE PROUD TO WORK WITH ACTIVISTS IN 
KOCHI.

        – 

DOCTORS’ VIEWS ON SUFFERING: A STUDY 
[HTTP://PALLIUMINDIA.ORG/2014/10/DOCTORS-VIEWS-ON-SUFFERING-A-STUDY/] 

        Dr Odette Spruyt, a member of our association, is conducting a 
qualitative study exploring the views of doctors working in Australia and 
India, about suffering. This study has ethics approval from Peter MacCallum 
Cancer Centre, Melbourne, Victoria, Australia, and Lancaster University, UK. It 
is being conducted as a PhD palliative care project, under supervision from 
Lancaster University Faculty of Health and Medicine, Division of Health 
Research. 

        Doctors working substantially in palliative care are invited to 
consider participating in this project. For more information about the study 
and how to participate, please refer to this flyer 
[http://palliumindia.org/cms/wp-content/uploads/2014/10/14_67L-Advertisement-Flyer-version_May-2014.pdf]
 . 

        If you are interested, please complete the Expression of Interest form 
at the end of the flyer and scan/email or fax to Dr Odette Spruyt at 
odette.spruyt@xxxxxxxxxxxx 

        – 

A FORUM FOR PALLIATIVE CARE NURSES 
[HTTP://PALLIUMINDIA.ORG/2014/10/A-FORUM-FOR-PALLIATIVE-CARE-NURSES/] 

        The inaugural conference of the Association of Community Nurses in 
Palliative Care was held in Kozhikode recently. The conference was opened by 
Calicut University Vice Chancellor M. Abdul Salam. 

        The forum would help palliative care nurses to raise their concerns and 
work towards improved training facilities and better compensation. 

        Director of the Institute of Palliative Medicine, Dr. K. Sureshkumar, 
palliative care organiser, Jose Pulimootil, Dr Anil Kumar Paleri, State 
president of the nurses association, K.V. Sinimol, and many others spoke on the 
occasion. More than 100 nurses from different parts of Kerala attended the 
conference. 
        * Read the report in _The Hindu_ 
[http://www.thehindu.com/news/cities/kozhikode/nurses-engaged-in-palliative-care-get-a-forum/article6537565.ece]
 . 
        * Click here 
[http://palliumindia.org/cms/wp-content/uploads/2014/10/Nurses-Association1.jpg]
 to read about the Association of Community Nurses in Palliative Care (in 
Malayalam). 

        – 

COURSES ON PALLIATIVE CARE IN TRIVANDRUM, HYDERABAD AND GUJARAT 
[HTTP://PALLIUMINDIA.ORG/COURSES] 

TRIVANDRUM:

         Certificate Course in Pain and Palliative Medicine 
[http://www.google.com/url?q=http%3A%2F%2Fpalliumindia.org%2Fcourses%2Fccppm%2F&sa=D&sntz=1&usg=AFQjCNFdA7KmsorjosZcJI0HwRZNwk6bUg]
  (CCPPM), Certificate course in Palliative Nursing 
[http://www.google.com/url?q=http%3A%2F%2Fpalliumindia.org%2Fcourses%2Fccpn%2F&sa=D&sntz=1&usg=AFQjCNEGdVThDxricSckQOWghFi_NNw8LA]
  (CCPN) and Certificate Course in Palliative Care 
[http://www.google.com/url?q=http%3A%2F%2Fpalliumindia.org%2Fcourses%2Fccpc%2F&sa=D&sntz=1&usg=AFQjCNHQpw9MHsuQoKRwX43uB1ronGki7Q]
  (CCPC) commence on NOVEMBER 3, 2014 at Trivandrum Institute of Palliative 
Sciences, Arumana Hospital, Trivandrum. Contact: info@xxxxxxxxxxxxxxxx 
[mailto:info@xxxxxxxxxxxxxxxx] ,  +91 471-2468991 

        2-day Volunteers Training Program will be conducted at Trivandrum 
Institute of Palliative Sciences, Arumana Hospital, Trivandrum on NOV 20 & 22, 
2014. Contact: info@xxxxxxxxxxxxxxxx [mailto:info@xxxxxxxxxxxxxxxx] ,  +91 
471-2468991, 8589998762 

HYDERABAD:

         One Month Certificate Course in Pain and Palliative Medicine 
[http://www.google.com/url?q=http%3A%2F%2Fpalliumindia.org%2Fcourses%2Fhyd_ccppm%2F&sa=D&sntz=1&usg=AFQjCNGhy_HMzuJ_Ll_WTzHqtw5hXZRjZA]
  (CCPPM) for Doctors, Nurses, Social Workers and Volunteers commence on 
NOVEMBER 3, 2014 at MNJ Institute of Oncology & Regional Cancer Centre, 
Hyderabad. Contact: mnj.palliative@xxxxxxxxx [mailto:mnj.palliative@xxxxxxxxx] 
, (+91)91772 38901 

GUJARAT:

        Six weeks Certificate Courses in Pain and Palliative Medicine (CCPPM) 
and Palliative Nursing (CCPN) will commence on JANUARY 1, 2015 at The Gujarat 
Cancer and Research Institute (GCRI), Ahmedabad, Gujarat. Contact: 
palliumindia.gcri@xxxxxxxxx [mailto:palliumindia.gcri@xxxxxxxxx] , 
dr.geetajoshi@xxxxxxxxx [mailto:dr.geetajoshi@xxxxxxxxx] . Phone: 079-22688270, 
9824075707 

        – 

CANCELLATION OF SIX WEEKS COURSE IN FEBRUARY AT TRIVANDRUM 
[HTTP://PALLIUMINDIA.ORG/COURSES] 

        Pallium India apologizes for the inconvenience caused to anyone who was 
planning to attend our six weeks certificate courses in February 2015. Due to 
unavoidable demands on the faculty’s time and clashes of schedules, we have 
been forced to cancel the courses in February 2015. 

        Please note: The course starting on 3rd November, 2014, will go as 
scheduled, and the next six weeks course will start on 6th April, 2015. 

        For more details on our courses, please visit: 
http://palliumindia.org/courses/ [http://palliumindia.org/courses/] If you have 
any queries, please write to: info@xxxxxxxxxxxxxxxx 

        – 

WE ARE MAKING PROGRESS WITH UNDERGRADUATE MEDICAL EDUCATION AND PALLIATIVE CARE 
[HTTP://PALLIUMINDIA.ORG/2014/10/WE-ARE-MAKING-PROGRESS-WITH-UNDERGRADUATE-MEDICAL-EDUCATION-AND-PALLIATIVE-CARE/]
 

        On the 28th of October, Pallium India spent a whole day with newly 
qualified doctors at SUT Academy of Medical Sciences, Vattappara, Trivandrum. 
They have just passed their MBBS examination and are going to have one year of 
practical hands-on experience as house surgeons before they become full-fledged 
doctors. 

        What enthusiasm! We are so very glad that we had the opportunity to 
talk to them before their first day as doctors. They are so full of eagerness 
and compassion, and somehow we have to make sure that the health care system 
does not make them numb and unresponsive. Here are some of the responses: 

        “Very intriguing and moving. Till now, I was in total darkness about 
the plight of millions of people in horrific pain.” 

        “Sessions were very informative and addressed many issues that I would 
not have otherwise noticed. It made me realize that my chosen profession is 
indeed a noble one.” 

        “Till now we were not aware about pain and palliative management which 
is highly essential as being a part of medical system.” 

YOUNG DOCTORS, ALL THE BEST TO YOU. MAY YOU ENJOY YOUR PROFESSION.

        – 

THE ELDERS AND PALLIATIVE CARE: A DATE WITH THE SOCIAL SECURITY MISSION, KERALA 
[HTTP://PALLIUMINDIA.ORG/2014/10/THE-ELDERS-AND-PALLIATIVE-CARE-A-DATE-WITH-THE-SOCIAL-SECURITY-MISSION-KERALA]
 

        On the 22nd of October, Pallium India spent time at a workshop 
organized by the Social Security Mission of Kerala, a vibrant, dynamic 
governmental organization. 

        India’s healthcare system has had a national policy for elder care, for 
a long time. Unfortunately, for the vast majority of the 70 million-odd elders 
in India, quality care is not within their reach. A significant majority of the 
elders needs palliative care. 

        At least in Kerala, the palliative care activity has established a rich 
network all over the state. It makes so much sense for the two activities to 
work together, making a tremendous impact. 

        The meeting on October 22nd discussed these modalities in detail. We 
hope to move forward! 

        – 

END OF LIFE CARE IS STILL AN UNKNOWN AMONG DOCTORS 
[HTTP://PALLIUMINDIA.ORG/2014/10/END-OF-LIFE-CARE-IS-STILL-AN-UNKNOWN-AMONG-DOCTORS/]
 

        A report in The Times of India 
[http://timesofindia.indiatimes.com/city/lucknow/End-of-life-care-facility-in-UP-soon-but-no-policy-yet/articleshow/44779846.cms]
 dated October 11 says: "

        A multi-centric study initiated by the All-India Institute of Medical 
Sciences –including Lucknow as a centre — revealed that seven out of 10 doctors 
dealing with terminally ill patients were not aware of hospice and palliative 
care. And so, they were not referring their patients for end-of-life care 
options. However, in western countries, as soon as a person is diagnosed with a 
life-limiting disease, the patient is attached with a hospice." 

        _(Read the complete article: End-of-life care facility in UP soon, but 
no policy yet 
[http://timesofindia.indiatimes.com/city/lucknow/End-of-life-care-facility-in-UP-soon-but-no-policy-yet/articleshow/44779846.cms]
 )_ 

        The fact that 70% of doctors are not aware of this in North India does 
not come as a surprise to us. This is the big task before us; to improve 
awareness. The question remains: what is the perception of the other 3 out of 
every 10, who _are_ aware of palliative care? How close is their understanding 
to the reality? Much too often, there are major misconceptions. 

        – 

DETERMINING THE COST OF PALLIATIVE CARE DELIVERY 
[HTTP://PALLIUMINDIA.ORG/2014/10/DETERMINING-THE-COST-OF-PALLIATIVE-CARE-DELIVERY/]
 

        In a recent article published in the _Journal of Pain and Symptom 
Management_ by Daniela Mosoiu, M Dumitrescu and Stephen R Connor, a team based 
in Romania have developed standardized costing methodology and framework for 
delivering palliative care services. Using this framework, palliative care 
providers can enter their data to generate cost relevant to their health care 
systems.( _Developing a costing framework for palliative care services._ 
Journal of Pain & Symptom Management, 2014; 48(4):719-29 
[http://www.ncbi.nlm.nih.gov/pubmed/24709365] ). 

        It was found that inpatient palliative care cost in Romania was $96.58 
per day and home-based palliative care was $30.37 per visit. Knowing the cost 
would help palliative care organizations to forecast their financial needs and 
to request funding. It is also important to know the palliative care delivery 
expenses so as to facilitate the implementation and expansion of palliative 
care services in the country. 

        To read more about this research and to download model costing 
framework for home based care and inpatient care, visit: 
http://www.ehospice.com/ArticleView/tabid/10686/ArticleId/12790/language/en-GB/View.aspx
 
[http://www.ehospice.com/ArticleView/tabid/10686/ArticleId/12790/language/en-GB/View.aspx]
 

        – 

PARTING SHOT

THE ECSTASY AND THE AGONY: WORKING WITH THE PARALYSED 
[HTTP://PALLIUMINDIA.ORG/2014/11/THE-ECSTASY-AND-THE-AGONY-WORKING-WITH-THE-PARALYSED]
 

PEOPLE ASK US:

" 

_HOW CAN YOU KEEP WORKING WITH SO MUCH OF SUFFERING? IS IT NOT DEPRESSING?_

" 

        And we keep responding, _“THERE IS PAIN IN IT; BUT ALSO ENORMOUS 
SATISFACTION.” _ 

        Let us tell you the story of Geetha (not her real name). 

        We are very proud of our extended family structure. But everything in 
this world has its positives and negatives. 

        Geetha had an accident and became paralysed from the waist down. She 
has a loving husband and two loving children. Geetha came to us in tremendous 
pain, both of the body and of the mind. It was easier to take care of the 
physical pain. Our wonderful team that we are so proud of – Dr Shibu, the 
Physical Medicine specialist, Mr Sunaj, the Physiotherapist, and Ms. Vergin, 
our social worker – worked with her. 

        Today, Geetha, who used to be bed-bound all the time, has learned how 
to move herself from the bed to a wheelchair and she can now cook and take care 
of the children. How fulfilling it is for a mother to be able to do her 
children’s hair and to look after their various needs! 

        Despite all this, despite the love of the husband and children, the 
dynamics of the extended family were such that Geetha is having to move out of 
her home. She is going to be an inmate in a special care place. We rejoice for 
your new-found freedom, Geetha; we also weep with you, for having to leave your 
home. 

MAY YOU DISCOVER NEW WORLDS AND MAY YOU REVEL IN THE LOVE THAT YOUR HUSBAND AND 
CHILDREN ARE GIVING YOU, AND THE LOVE THAT YOU ARE GIVING THEM.

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  • » Pallium India Newsletter: October 2014 - Pallium India Newsletter