Pallium India Newsletter: August 2013
- From: Pallium India Newsletter <info@xxxxxxxxxxxxxxxx>
- To: "" <palliumindia@xxxxxxxxxxxxx>
- Date: Sat, 31 Aug 2013 18:26:29 +0000
Pallium India
Care Beyond Cure
AMENDMENT OF NARCOTICS ACT STILL PENDING
The lower house of Indian Parliament has still not taken up the
proposed amendment of the Narcotic Drugs and Psychotropic Substances (NDPS) Act
of India. We are hoping for the culmination of 18 years of efforts by the
Palliative Care community of the country, generously empowered and supported by
the Pain and Policy Studies Group fo Madison-Wisconsin, Lawyers’ Collective and
many other friends and supporters.
_The Parliament reconvenes on Tuesday, the 3rd of September 2013._
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WE HAD TEA AND TALKED ABOUT DEATH
[HTTP://PALLIUMINDIA.ORG/2013/08/WE-HAD-TEA-AND-TALKED-ABOUT-DEATH/]
The 24th of August 2013 happens to be the 9th death anniversary of Dr
Elisabeth Kubler Ross (EKR), guru to all palliative care workers and
psychiatrists in the world. The EKR foundation is organizing dinners all over
the world; the program is titled, “Let us have dinner and talk about death”.
On this day, Pallium India organized a public interaction forum at the
historic Kanakakunnu (Golden hill) palace in Trivandrum, Kerala, talking about
the current tendency towards over-medicalization of death, causing great
physical, emotional and financial suffering. Social luminaries including Dr
Babu Paul IAS, Mr Biju Prabhakar IAS, Writer and TV personality Mrs Usha S
Nair, Journalist Sri M G Radhakrishnan, Film director Sri Rajiv Nath, Advocate
Krishnappan Nair and Dr M.R.Rajagopal led the discussion.
The deliberations of this congress are meant to be followed up. We do
intend to do something to prevent infliction of needless suffering, however
well-intentioned.
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VIP VISITS & 73 BRIGHT AND EAGER FACES
[HTTP://PALLIUMINDIA.ORG/2013/08/VIP-VISITS-73-BRIGHT-AND-EAGER-FACES/]
Pallium India had two distinguished visitors; Dr Xavier Gomez-Batiste,
the director of the WHO Collaborating Centre at Barcelona, Spain and Dr Atreyi
Ganguli from WHO (India).
After a tiring overnight train journey, they spent all their time over
two days, working with us, evaluating programs, planning strategy and devising
ways in which they could be helpful for palliative care in India.
They had a special treat at Trivandrum – a visit to the monthly review
meeting of the palliative care program of National Rural Health Mission. 73
eager and bright faces- palliative care nurses working at each of the
Panchayats (local self-government institutions) in the district. They were
truly impressed with the achievement of the palliative care policy of the
Government of Kerala.
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PALLIATIVE MEDICO TRAINING PROGRAM
[HTTP://PALLIUMINDIA.ORG/2013/08/PALLIATIVE-MEDICO-TRAINING-PROGRAM/]
PALLIUM INDIA OFFERS THREE DAYS COURSE AT TRIVANDRUM FOR BUDDING
DOCTORS
To equip them to efficiently treat pain and suffering and thus discover
more pleasure in their everyday work, Pallium India now offers to medical
students from Kerala University of Health Sciences, a three day course. It will
be conducted soon after the declaration of the Final year examination, but
before the beginning of the compulsory rotating internship.
For details, see http://palliumindia.org/courses/medicotraining/
[http://palliumindia.org/courses/medicotraining/]
There are only 30 seats on a first-come-first-served basis.
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WANTED: PALLIATIVE CARE PHYSICIAN FOR CANKIDS
[HTTP://PALLIUMINDIA.ORG/2013/08/WANTED-PALLIATIVE-CARE-PHYSICIAN-FOR-CANKIDS/]
Ms. Poonam Bagai, founder president of Cankids writes:
Cankids is urgently looking for a Palliative Care Doctor for its Pediatric
Palliative Care Center – Daycare and Transition Home- in New Delhi, North
India.
[http://palliumindia.org/cms/wp-content/uploads/2013/08/Cankids_Logo-1.jpg]
The Cankids Pediatric Palliative Care project (PPCP) commenced in 2009
and grew to strength from September 2010, initially focusing on finding gaps
in the existing system in Government hospitals, and filling the same, providing
quality palliative care services from moment of diagnosis onwards. In August
2012, we inaugurated the country’s first ever Pediatric Pallaitive care Center
–as a Day Care and Transition Home. The DTCH at Gautam Nagar, a short 10 min
walk from AIIMS and Safdurjung Hospitals, has a 10 bedded in-patient facility,
Counseling Room , Physiotherapy and Wellness Center, Training center and
kitchen cafeteria. The PPCP team includes the PPCP Doctor , 3 round the clock
nurses, 2 nursing aides, a Senior Psychologist, physiotherapist, Center
Supervisor and Parent Support & Patient Navigation Coordinator.
The project is exciting, exceptional and the first of its kind – with a
complete and holistic focus integrating pain management, symptom control,
counseling, wish granting, terminal care and bereavement support through the
entire period of treatment for children with cancer and their families.
Free services are available to any family with a child faced with
cancer, in any Cankids Unit hospitals, to begin with in Delhi NCR. It
integrates with all the other Cankids support services and reflects Continuity
of Care which is an integral part of our mission statement.
The work space is both in the cancer hospitals we work in as well as
India’s first Pediatric Palliative Care Center as a Day Care and Transition
Home.
The PPCP Doctor will:
1. Head the PPCP Daycare & transition Home, developing the services,
managing the day to day operations, recruit and train the team. He/She will be
the operational and administrative head for the Center. He/She will coordinate
with other services of CK, particularly the medical Support program of which it
is a part.
2. Develop Cankids Pediatric Palliative project- pan India, which
includes
a. sensitizing, training and building capacity of CK team, parents and
professionals in pediatric palliative care,
b. reviewing services in centers where CK has CSUs,
c. developing the network and resource mapping
d. building the palliative care services of CK
3. Undertake and guide research and projects in the field of Pediatric
Palliative care
4. Collaborate with the Palliative care and oncology community to
create awareness and advocate for pediatric palliative care in India and
overseas.
The Palliative Care Physician could be someone who could either take it
on as a 4 – 6 month project, including training a younger doctor OR a full time
job with a 2 year time commitment. Hindi is not an imperative. We can offer Rs
75000/ all inclusive, ( and for the 6 month project duration place to stay on
the premises)
Qualifications : qualified palliative care doctor, with minimum 3 years
experience in the field of palliative care. Preference if field of pediatric
palliative care and oncology background. Hindi is not an imperative.
Please contact Bornali Majumdar, HR Manager Cankids. She would be happy
to follow up with mail or phone calls and answer any questions you may have.
email id is hr@xxxxxxxxxxxxxxxx [mailto:hr@xxxxxxxxxxxxxxxx] . Her phone
number is +91 7838654770 [tel:%2B91%207838654770]
Please feel free to contact me directly as well.
Many thanks for your help, and your ongoing support and help to
Cankids.
Regards, Poonam Bagai’
Founder President Cankids …KidsCan
poonambagai@xxxxxxxxxxxxxxxx / +91 9811525745
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PALLIATIVE CARE AWARD 2014 FOR SAARC COUNTRIES INSTITUTED BY CANCER AID SOCIETY
[HTTP://PALLIUMINDIA.ORG/2013/08/PALLIATIVE-CARE-AWARD-2014-FOR-SAARC-COUNTRIES-INSTITUTED-BY-CANCER-AID-SOCIETY/]
CANCER AID SOCIETY, an NGO having Special Consultative Status with
United Nations ECOSOC, working across India since 1987 on Palliative Care,
Advocacy, Tobacco Control, Cancer and Non Communicable Diseases Prevention and
Control invites Application/ Nominations from Doctors, Paramedical Staff and
Social Workers with demonstrative leadership in the field of Palliative Care
for the Cancer Patients from India, Bangladesh, Bhutan, Nepal, Pakistan,
Afghanistan and Sri Lanka.Application can be made by filling this form online
along with the references and verifiable evidences through media and pictures
in order to identify the leadership of the applicants/ nominees to be sent by
email to palliativecare@xxxxxxxxxxxxxxxxxxxxxxxxx
[mailto:palliativecare@xxxxxxxxxxxxxxxxxxxxxxxxx] Last date of Application is
12.00 Hrs. (India Time) of 30th November 2013.
PALLIATIVE CARE AWARD – 2014 (Rs. 100000. and Plaque) will be presented
at the 21st International Conference of the Indian Association of Palliative
Care – February 2014 to be held at Bhubaneswar India.
If you have trouble viewing or submitting this form, you can fill it
out online.
[https://docs.google.com/forms/d/19H-SaGvV7875FlQ_ttfDfk_ecuRDryuamSPpufu2ozs/viewform]
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THE GIRL WITH CANCER AND THE BUTTERFLY
[HTTP://PALLIUMINDIA.ORG/2013/08/THE-GIRL-WITH-CANCER-AND-THE-BUTTERFLY/]
_Dr Rajagopal, chairman of Pallium India writes:_
I was spending a couple of days in the new palliative care training
center at Saroj Gupta Cancer Center at Thakurpukur, Kolkata, with those
undergoing a six weeks certificate course in Palliative Care. When I returned
to the group after a lunch break, there was animated discussion around the
white board. Malati, a young nurse, was trying to create Somnath’s (medical
social worker) idea in a picture. They were about to wipe it off hastily, when
I stopped them and asked them what it was about.
The girl in the picture, they said, has cancer and is chasing a
butterfly. So what are you going to do about it, I asked. Now there was a
difference of opinion. Somnath, the owner of the idea, felt that it was
important for a palliative care person to help chase that butterfly for the
child. He felt it was not important
what the girl wished; whatever it is, it was important to fulfil the
wish if possible. The artist Malati, who translated Somnath’s idea to the
board, now voiced a dissent. To her, the butterfly is a symbol. It depicts
life, which the girl is seeking, possibly a futile pursuit. We need to
understand the girl’s emotions and be her companion in grief or pleasure,
Malati thought.
Somnath and Malati, I agree with both of you so totally. Whether the
girl seeks a real butterfly in front of her, or whether she is seeking
something that is flying away from her – like life itself – you both got the
point that our role is to be fellow-travelers, holding her hand when we can,
chasing the butterfly with her when she feels like it, but also allowing her to
rest on your lap when she is tired.
Somnath, Malati and everyone else in the vibrant group including
members of the organizations “South Kolkata Sanjeevani”, and “We with you”, I
would consider myself lucky if I have one of you caring for me when my time
comes.
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THE MARRIAGE – PALLIATIVE CARE CONNECTION:
[HTTP://PALLIUMINDIA.ORG/2013/08/THE-MARRIAGE-PALLIATIVE-CARE-CONNECTION/]
Everyone who is likely to read this would be aware of what palliative
care is – the treatment of pain, breathlessness and other symptoms, the nursing
care, the emotional, social and spiritual support and so on, going on to
bereavement support. You can see a nurse, doctor, social worker or volunteer
helping with any of these, but marriages?
Arranged marriages are still the order of the day in India. A girl’s
marriage is the responsibility of the parent. Ask any terminally ill parent of
an unmarried daughter, “What bothers you most?”, and they are unlikely to ask
“Why me?”; instead they are likely to ask, “How will my daughter ever get
married?”. Arranging marriages requires negotiations between families and it
requires money.
Alpha Charitable Trust, a major provider of palliative care in Kerala
has taken up this issue as part of their palliative care delivery. The
extended family will do the negotiations and find the bridegroom. Alpha will
find sponsors, get a certain amount of gold (mandatory for all weddings!) and
some money for expenses, and also arrange the ceremony at no cost to the
family. This year they got together six couples during a colorful wedding
ceremony on 25 August 2013.
Congratulations Noordeen (founder) and team. Pallium India is proud to
be associated with you. Let us all join together to wish those six couples all
the best for their life together.
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LESSON 1: HELP ANOTHER CHILD
[HTTP://PALLIUMINDIA.ORG/2013/07/LESSON-1-HELP-ANOTHER-CHILD/]
[http://palliumindia.org/cms/wp-content/uploads/2013/07/clubfm2.jpg] “Lesson 1″
is a program by “Club FM”, a popular radio station in Trivandrum. They have
been requesting parents of school children to buy some extra materials when
they buy books, school bags etc for their own kids and to donate them to help
another child. Today, we had the pleasant experience of receiving Mr. Vinod,
(Manager- Radio Solutions) and Mr. Prasoon (Producer) from Club FM at Pallium
India office. They came with a large bundle - notebooks, pens, pencils, pencil
box, alphabet blocks, pencil sharpeners, erasers and so on for donation to
Pallium India’s “Kuttikkoottam”- educational support program for children of
families afflicted by prolonged life-limiting diseases.
THANK YOU CLUB FM.
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PARTING SHOT
On the issue of amendment of the NARCOTICS ACT OF INDIA, Dr Bhaumik
Shah from Australia writes: "
I am a practicing medical oncologist in Australia. I have trained in
India upto my postgraduation. So I have worked in both the systems and can give
a comparative narrative about opioid use.
I hardly used opioids in India and was honestly frightened to use it
afraid of addiction potential. There were lots of oncology patients who would
like to end their life and avoid pain rather than have life prolonging
treatments.
I have worked in Australia where there is an accountable framework
around prescribing opioids. The studies show that when appropriately used
(especially in cancer patients) addiction potential is minimal.
IT MAKES IT POSSIBLE TO ADD QUALITY TO PATIENTS’ LIVES. IT ALLOWS THEM
TO TALK AND WALK MORE COMFORTABLY. THEY WANT TO LIVE MORE.
I STRONGLY SUPPORT THIS CAUSE THAT CAN CHANGE LIVES OF MILLIONS OF
PEOPLE."
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