[Kids Together email newsletter] August 2006

  • From: "Kids Together" <staff@xxxxxxxxxxxxxxxx>
  • To: <ktnewsletter@xxxxxxxxxxxxx>
  • Date: Sun, 20 Aug 2006 12:48:45 -0400

Kids Together Email Newsletter              
              
                    "promoting inclusive communities where all people belong"
                     
                   
                    AUGUST 2006 Newsletter
                     Please notify us to receive this newsletter in text only.
                    This list consists of over 3000 people (and growing!) 
                    Suggestions for newsletter items are welcome!
                   
                      
                    "In the middle of difficulty lies opportunity"
                    ~ Albert Einstein ~

                    IDEA 2004 Regulations
                    U.S. Department of Education
                    Released August 3, 2006
                    http://www.ed.gov/policy/speced/guid/idea/idea2004.html

                    Find html and .pdf versions of the Law, Regulations and 
Technical Assistance Tools. TA Tools include "Model forms", "Technical 
Assistance and Dissemination Network", "Tool Kit on Teaching and Assessing 
Students with Disabilities", "Questions and Answers On Serving Children With 
Disabilities Placed by Their Parents at Private Schools", and "Topic Briefs"

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                    Regulations also available in .pdf 
www.nichcy.org/reauth/IDEA2004regulations.pdf 
                    Summary of changes 
http://www.wrightslaw.com/idea/law/idea.regs.sumry.chngs.pdf


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                    TASH Conference
                    Baltimore, Maryland - November 8-11, 2006
                    http://www.tash.org/2006tash/index.htm

                    The TASH Conference mobilizes vast numbers of folks from 
around the world together in a common experience of belief in the presumed 
competence of every person, and in the powerful role that every person can play 
in empowering people with disabilities and their families to build the life of 
their choosing. Each presenter and attendee comes to the scene with a personal 
perspective to share ~ and each leaves with a renewed sense of energy and 
commitment towards the great space of possibility for people labeled with the 
most significant disabilities. The TASH conference is the largest and most 
progressive conference in the United States that focuses on strategies for 
achieving full inclusion for people with disabilities. This year's TASH 
conference will feature over 2000 attendees, 450 breakout sessions, exhibits, 
roundtable discussions, poster sessions and much more. Sessions at the TASH 
Conference focus on the following themes: Inclusive Education Across the 
Lifespan; Innovations in Research and Practice; Transition; Community Living & 
Employment; and Value, Advocacy and Ethics.


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                    Federal Government Information
                    National Assistive Technology Technical Assistance 
Partnership (NATTAP)
                    http://www.resna.org/taproject/library/laws.html

                    Know your rights for obtaining assistive technology and 
related services. This site list links and resources for Laws & Related 
Regulations; Congressional Hearings; Judicial and Executive Orders.


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                    Talking Prescription Bottles
                    MedivoxRx ® Technologies 
                    http://www.rxtalks.com/

                    Disposable talking bottle that provides audible label 
information and makes information about medications more accessible to people 
who are elderly, have visual or cognitive needs, illiterate, or speak a 
different language.

                    The bottles include a computer chip enabling a pharmacist 
to verbally record the name, dosage, frequency, warnings and refill 
instructions of the medication inside the bottle. Patients press a button on 
the side of the bottle to listen. 


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                     In Pennsylvania

                    Pennsylvania's Education For All Coalition, Inc - PEAC
                    New Chapters Forming
                    http://www.paedforall.org

                    PEAC's Mission: We work together to promote education that 
includes all children by providing individual technical assistance, advocacy 
and supports to families, assisting institutions of higher education better 
prepare teachers to effectively teach all children and influencing and 
supporting schools, policymakers, and the community to effectively implement 
inclusive practices and policies.

                    Lehigh Valley Chapter Kickoff Event! Saturday September 
16th 8:30a.m. to 1p.m. Intro to Inclusive Education at Lehigh University. 
Free!. Seating is limited. See details and information for registering at 
http://www.paedforall.org


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                    In Pennsylvania
                    In the News

                    LEBANON, Pa.  A former personal-care home operator was 
sentenced August 17, 2006 to at least 22 years in state prison on abuse and 
neglect charges. Prosecutors alleged that residents who lived in personal care 
homes, operated by Clifford Fake and his wife, were fed rotten food, some of it 
obtained from trash bins, and were put to work stuffing inserts into newspapers 
while sitting in an unheated garage. Three residents - Kathryn Fritz, Clarence 
D. Shucker and Stanley Bruzda - died while under the Fakes' care since 2000.

                    Personal care homes are licensed by the state Department of 
Public Welfare, residents receive help with such things as bathing and 
dressing, taking medications, and finances. The Fakes have also pleaded guilty 
to separate federal health care fraud charges and await sentencing. They were 
accused of gaining about $237,000 by falsifying paperwork, including time 
sheets and care plans filed with the state Department of Aging.

                    Sources:
                    http://www.timesleader.com/mld/timesleader/15297385.htm
                    http://www.ldnews.com/news/ci_4190105
                    
http://www.phillyburbs.com/pb-dyn/news/103-08162006-698375.html


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                    In Pennsylvania

                    Governors Budget
                    Premiums May be Coming for Children with Disabilities
                    "Loophole" Coverage for Medical Assistance 
                    Schools to lose funding source
                    
http://www.budget.state.pa.us/budget/lib/budget/2006-2007/presentation/2006_07_budget_slides_color.pdf

                    Pennsylvania may be gearing up to charge premiums for 
insurance coverage through Medical Assistance for children with disabilities. 
According to the Governor's budget there is a proposed line item savings for 
"Other Initiatives" specifically listing "Loophole premiums". (page 40)

                    Previously children with disabilities not on SSI were still 
eligible for MA, regardless of their parents' income and assets if their own 
personal income was less than the poverty level. The Department of Welfare 
called this category the "loophole" category. Schools have relied heavily on 
using MA to bill for therapies, such as speech, physical, occupational and 
behavioral supports. MA has also been used for obtaining appropriate assistive 
technology such as communication devices and related services. If families have 
private health insurance and choose not to pay premiums to maintain Medical 
Assistance coverage, the school districts will remain responsible for providing 
a Free and Appropriate Education to students with disabilities under federal 
law IDEA, but they will be losing this multi-million dollar funding source.

                    See also-
                    Budget Briefing 6/1/06 
http://www.pahouse.com/evans/pdf/BBMA_2_06012006.pdf


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                    The Parent Side (tm)
                    T-shirts, cards, magnets mugs, stickers & more!
                    It's a campaign for inclusion and against exclusion! 
                    http://www.theparentside.com  

                    Get your stuff in time for BACK TO SCHOOL! Gifts for 
everyone, children, adults, advocates, self-advocates, professionals and 
families. Give a unique gift to the advocate who supported you or reward 
yourself and make a statement! Tote bags, mugs, t-shirts, hats, sweatshirts, 
mousepads, buttons, magnets, posters and more! Designs that speak!  New bumpers 
stickers! New designs!

                    New Designs! "Inclusion Power" and "Zero Tolerance", lots 
of choices and products, something for everyone! 


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                    . 
                    Resources are listed for general information purposes only
                    Kids Together does not endorse products, services, or 
provide any legal advice

                    Kids Together, Inc. is an all-volunteer non-profit 501(c)3 
organization
                    We support the belief that children with disabilities, like 
all children, 
                    have the need to be welcomed, cherished and embraced in our 
communities.

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