Hi Elaine, There doesn't seem to be very much info. on the net as you've also said but found one that mentions that Vitamin A helps this condition so I have attached this. Hope I've found the correct website and also hope this helps a little, although you've probably come across this already no doubt. TTFN Sally -----Original Message----- From: elaine nutley - Email Address: e.nutley@xxxxxxx Sent On: 28/03/2010 17:23 Sent To: Guide Chat - Email Address: guide.chat@xxxxxxxxxxxxx Subject: [guide.chat] eye condition Hello All, I have been loosing my sight since I was 38years old, it is a hereditary condition, However up until now nobody has really known what it is I have. I have been going to Moorfields in London for many years, and have been used as a guinea pig, but still no one could tell me what was wrong, well now my oldest daughter, is showing signs of the same condition, so we went to Moorfields together in February, they took a lot of blood from me, and have found the gene , and can now tell me I have something called, Sorsbys, discovered in 1953, but they know little about it, does anyone on the chat line, know anything about this condition, or perhaps have it also. Thanks in advance of any info Elaine