[acbny-l] FW: [leadership] FW: [Nabs] Fw: Ed and Toni Eames Speak Out on Behalf of Consumer Choicein Rehabilitation: Bravo!

  • From: "Mann, Jean" <Jean.Mann@xxxxxxxxxxxxxxx>
  • To: 'ACBNY' <acbny-l@xxxxxxxxxxxxx>
  • Date: Fri, 18 Jul 2003 15:32:32 -0400

This is long, but very interesting.  Ed and Toni Eames will be familiar to
Newsreelers.  Thgey have been staunch Federationists.  Their decision must
be causing them a great deal of heartache (although I'm glad they made it).

-----Original Message-----
From: Thom, Jeff [mailto:jeff.thom@xxxxxxxxxxxxxxxxxxxxxxxxx]
Sent: Friday, July 18, 2003 2:07 PM
To: 'leadership@xxxxxxx'
Subject: [leadership] FW: [Nabs] Fw: Ed and Toni Eames Speak Out on
Behalf of Consumer Choicein Rehabilitation: Bravo!



This is big news and its already spread over California like wildfire. I
commend the Ames/' for taking a very difficult action, given their devotion
to NFB over the years.
-----Original Message-----
From: Hodge, Charles - SOL [mailto:Hodge.Charles@xxxxxxx]
Sent: Friday, July 18, 2003 9:51 AM
To: 'jeff.thom@xxxxxxxxx'
Subject: FW: [Nabs] Fw: Ed and Toni Eames Speak Out on Behalf of
Consumer Choicein Rehabilitation: Bravo!




-----Original Message-----
From: Reagan D. Lynch [mailto:rdlynch@xxxxxxxxxxxx]
Sent: Friday, July 18, 2003 12:37 PM
To: ABLA@xxxxxxxxxxxxxxxxxxx
Subject: Fw: [Nabs] Fw: Ed and Toni Eames Speak Out on Behalf of
Consumer Choicein Rehabilitation: Bravo!


----- Original Message -----
From: "Gabe Griffith" <Gabe@xxxxxxxxxxxx>
To: "Becky Welz" <beckywelz@xxxxxxxxxxxxx>
Cc: <JAMoll3@xxxxxx>; "Discussion List for the National Alliance
of Blind Students" <nabs@xxxxxxxxxxxxxxxxx>;
<CCB-L@xxxxxxxxxxxxxxx>; "Chris Foster" <fostercj@xxxxxxxxxxx>;
<GDUC-L@xxxxxxxxxxxxxxx>; <CA_BlindStudents@xxxxxxxxxxxxxxx>
Sent: Friday, July 18, 2003 10:33 AM
Subject: [Nabs] Fw: Ed and Toni Eames Speak Out on Behalf of
Consumer Choicein Rehabilitation: Bravo!


Here's something I thought everyone might be interested in
seeing.

Gabe


> The letter below is forwarded from the GDUI Friends List Serve:
>
>  >Ed Eames, Ph.D.  /  Toni Eames, M.S.
>  >
>  >Authors / Educators / Disability Advocates
>  >
>  >
>  >3376 N. Wishon, Fresno, CA 93704-4832
>  >Phone: (559) 224-0544    Fax: (559) 224-5851
>  >E-mail: eeames@xxxxxxxxxxxxx
>  >
>  >
>  >
>  >July 14, 2003
>  >
>  >Open Letter to NFB
>  >
>  >                        Ed and Toni Eames
>  >
>  >Since moving to California more than 15 years ago, we have
been
>  >actively involved in the Federation at the local, state and
>  >national level.
>  >
>  >In Fresno, we have each served as president of the local
chapter
>  >and currently Toni is vice president and Ed is treasurer.
Our
>  >activities include fund raising, blindness awareness
education
>  >and advocacy.
>  >
>  >For the last several years, Ed served on the NFB California
state
>  >board and we have co-chaired the Guide Dog Committee.  Ed has
>  >chaired the state scholarship committee for the last four
years
>  >and three years ago we did a joint presentation at the state
>  >convention.
>  >
>  >At the national level, both of us have been field
representatives
>  >and log approximately 20 hours a month on national
activities.
>  >This includes advocating for blind prisoners and fostering
the
>  >NFB political agenda.  Both of us attended a leadership
seminar
>  >validating both our value to the organization and commitment
to
>  >its growth.  Three of our articles have been published in
kernel
>  >books and two were the title articles.  Since 1996 we have
taken
>  >on responsibility for setting up and maintaining the guide
dog
>  >relief areas at national conventions.  That commitment
resulted
>  >from a challenge issued by Dr. Jernigan at the 1995
California
>  >state convention, when he said that if we thought we could do
a
>  >better job than the hotels were doing, prove it!  We did
>  >beginning in Anaheim and received kudos from him at the
banquet
>  >for our efforts.
>  >
>  >We are sorry to say that these activities will now end.  As a
>  >result of the passage of Resolution 2003-21, which places
those
>  >of us choosing partnership with guide dogs in the status of
>  >second class citizens, or more properly, second class
>  >Federationists, we are leaving the organization.  This is
done
>  >with deep regrets, since NFB has been a major part of our
lives
>  >for the last 15 years.
>  >
>  >
>  >Although we have heard it argued that the resolution only
refers
>  >to informed choice, the fact that guide dogs are mentioned as
one
>  >of two practices and policies namely the use of sleep shades
and
>  >guide dogs, leaves little room for misunderstanding of the
intent
>  >of this resolution.
>  >
>  >Informed choice, as defined by 2003-21 means that a consumer
has
>  >very little in the way of choice.  If the training center has
a
>  >policy against guide dogs on the premises or no guide dog use
>  >while the student is in the program, the choice is either to
>  >break the partnership or so constrain it that the team's
efficacy
>  >is undermined.  To us, saying to an applicant for
rehabilitation
>  >services, you have the choice of leaving your preferred
mobility
>  >tool behind or go elsewhere is the equivalent of a restaurant
or
>  >hotel manager saying we have a no dogs policy, but there are
lots
>  >of other nice restaurants or hotels you can go to!
>  >
>  >The concept of consumer empowerment, another basic tenet of
the
>  >Rehabilitation Act, is negated by 2003-21.  From Peggy
Elliott's
>  >exhortation to pass the resolution, it appears that only
>  >organizations, not individuals, have the right to challenge
>  >agency practices and policies.  This runs counter to all we
>  >believe in and undermines the notions of informed choice and
>  >consumer empowerment.
>  >
>  >When Toni did an internship at the Queens, New York
Lighthouse in
>  >1968, she was required to kennel her guide dog in the
basement
>  >during the work day.  This extended separation had a negative
>  >impact on both Toni and her guide dog Charm.  As an
individual,
>  >Toni tried to get the policy changed, but was basically told,
>  >abide by our rules or go elsewhere.  The Lighthouse probably
>  >interpreted this as informed choice  in the decades before
>  >Section 504 of the Rehabilitation Act of 1973 and the ADA of
>  >1990.  Subsequently, the policy was changed and guide dogs
were
>  >welcomed in this institutional setting.
>  >
>  >More recently, we have been advocates for a blind prison
inmate
>  >named Willie Lee Johnson (see articles in Braille Monitor).
>  >During the decade Willie was incarcerated in California
prisons,
>  >he filed many complaints against the practices and policies
of
>  >the California Department of Corrections (CDC).  As a result
of
>  >his individual efforts, CDC changed its policies concerning
>  >access to libraries for blind prisoners, training for jobs in
the
>  >prison system, inmate use of white canes, access to braille
and
>  >cassette materials, etc.  Despite living in one of the most
>  >repressive institutional settings in our country, Willie
proved
>  >that an individual can make a difference and get things
changed.
>  >Unfortunately, 2003-21 states that individuals cannot change
the
>  >environment in which they receive rehabilitation services.
If
>  >this position is followed, those receiving rehabilitation
>  >services would have fewer rights than convicted felons!
>  >
>  >
>  >Federation philosophy has been expressed in a number of
phrases
>  >exemplifying its basic tenets.  Among these are: "We're
changing
>  >what it means to be blind" and "With proper training,
blindness
>  >can be reduced to a mere nuisance".  The Federation's battle
cry
>  >for security, equality and opportunity resonates as the
>  >ideological basis of the organization.  2003-21 is a
fundamental
>  >violation of these basic themes.
>  >
>  >In the resolution, comparison is made between rehabilitation
>  >agencies and colleges.  As a retired professor of
anthropology,
>  >Ed takes great exception to the misreading of the history of
>  >higher education in the last century.  The notion that
college
>  >students have no influence or power over course offerings and
>  >personnel issues disregards the student movement of the 1960s
and
>  >its aftermath.  As a result of the struggle for student
power, Ed
>  >sat on curriculum and tenure and promotions committees with
>  >students, who had considerable input in the decision making
>  >process.
>  >
>  >The goal of a college education is to provide a broad range
of
>  >knowledge to its graduates.  Thus, within the language
>  >requirement, students have options.  They can take French,
>  >German, Spanish or even sign language.  The goal of a
>  >rehabilitation center is to provide     a wide range of
blindness
>  >skills for its graduates.  Thus, within the orientation and
>  >mobility requirement, students should also have options.
>  >Although learning to use a cane is an important skill, it is
not
>  >synonymous with independence.  We need to assure newly
blinded
>  >individuals that they can leave their homes and be mobile,
>  >whether they choose to do so with a cane or a guide dog.
>  >
>  >In thinking about and discussing the unique features of NFB
>  >training centers such as those in Louisiana, Minnesota and
>  >Colorado, we concluded it was the inculcation of positive
>  >attitudes, rather than the mastery of particular skills that
was
>  >distinctive.  Many other centers have excellent training in
>  >braille, computers, cane mobility and daily living skills,
but
>  >NFB centers foster feelings of empowerment, independence and
>  >enhanced self esteem.  To deny a segment of the blind
community,
>  >namely those partnered with guide dogs, the opportunity to
>  >develop these positive attitudes runs counter to everything
we
>  >believe the largest consumer advocacy organization of the
blind
>  >in the United States should stand   for.
>  >
>  >Several points need to be made about informed choice and
>  >rehabilitation training centers.
>  >
>  >1. If the state does not have the money to send an applicant
for
>  >services to the center desired, then there is not much
choice.
>  >
>  >2. If a center that welcomes guide dogs is geographically
distant
>  >from home and family, the applicant is forced to choose
between
>  >the guide dog and the family.
>  >
>  >3. As the NFB model takes hold across the country under the
RSA
>  >leadership of Commissioner Wilson, choices will become even
more
>  >limited.  Since the NFB rehabilitation training center model
is
>  >being promoted as the best, and restrictive guide dog
policies
>  >are also promoted, informed choice will diminish.
>  >
>  >Once again, it is with deep regret that we leave the
Federation,
>  >an organization we have participated in and supported for 15
>  >years.  However, we cannot take the pledge to support all
>  >Federation policies when we believe Resolution 2003-21
suggests
>  >guide dogs are an inferior mobility mode when compared with
>  >canes, and, therefore, those selecting guide dogs, become
part of
>  >a second class segment of the blind community.<x-flowed>
>
>
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  • » [acbny-l] FW: [leadership] FW: [Nabs] Fw: Ed and Toni Eames Speak Out on Behalf of Consumer Choicein Rehabilitation: Bravo!