Sangeetha,
Way to go !!! I will reach Kochi only on 15th morning else I would have come to
meet you all on 11th – the parental group AT KOCHI…
Please update me and other parents (in this group) on NIMHANS protocol. I am
unaware of protocols other than DAN. I have also heard of Dr. Suresh’s protocol
(ICCONS protocol) which I have some idea.
Rgds,
Rajasree
From: insight_parents-bounce@xxxxxxxxxxxxx
[mailto:insight_parents-bounce@xxxxxxxxxxxxx] On Behalf Of sangeetha john
Sent: Tuesday, April 07, 2015 12:16 PM
To: insight_parents
Subject: [insight_parents] Re: Autism awareness day
thanks Rajasree for your kind words and more thanks for initiating a
discussion on these therapies for the sake of parents.
Apr 2 was the opening of the chelation therapy unit in Kochi. Dr.Neena is a
FAAP and started the Dan protocol in Kochi sometime in 2008. I opted out of
the treatment by end of 2010 as i felt more comfortable with sherin
following the NIMHANS method. As you know each child is different . so parents
need to be well informed before choosing any therapy or treatment for their
kids. extensive discussions among parents and other experts is necessary in
this context.
regards
sangeetha
On Mon, Apr 6, 2015 at 7:33 PM, Rajasree S <rajasree@xxxxxxx> wrote:
Sangeetha,
Congrats on the biggest achievement for any mother of an autistic child. I am
truly inspired by you… Sherin’s words are beautiful…..God Bless her…
On cure for autism and other matters though I would slightly disagree with
you. Since Autism is not a disease but a condition recovery would be a better
word than cure.
My logic is that anything which does not hurt and has no side effects may be
tried so that quality of life may improve. For eg if we so called neuro
typical individuals have a headache our performance gets reduced similarly if
an autistic has inflammed gut(which is common amongst autistic kids) he is
bound to show behavior. I believe what we call behavior is to do with some
physiological/sensory problem that they are having/experienced which is
manifested as a “behavior”.
I have seen some good changes in other kids and my own daughter with HBOT, MB
12 supplementation, specific supplementation(as per DAN protocol) and also stem
cell (for some kids). Results vary from person to person.
DAN (Defeat Autism Now by Autism Research Institute) is a protocol devised by
not merely researchers but researchers who are also successful parents to
special kids. Empirical data on this protocol is still emerging.
Some of these things help improve the quality of life for older children and
for younger kids some things help them recover(come out of the spectrum. I have
personally witnessed that, though not lucky enough to see my daughter recover
completely but improve tremendously). Biomedical intervention used with
judgment has definitely helped many kids. Even Ayurveda I have seen with
younger kids has helped them come out of the spectrum with minimal or no
residual characteristics of Autism.
Chelation I do agree is different. I have also heard a lot of bad news. But
heavy supplementation and then subsequent chelation (under able guidance ) has
shown effects in some kids. My daughter seems to have a heavy metal disposition
as her porphyries tests have proved positive(these tests detect the level of
some proteins in the urine as heavy metals itself may not be present in urine
as these kids may not be able to excrete the same even if it is present in the
body) which indicate the presence of heavy metals in body.
Of course by exploring and meeting doctors I have never jumped into anything so
far by God’s grace. It is important for parents to use their own judgment. This
also would also might end up as information gathering exercise.
I appreciate your concern Arun and Sangeetha. I am most unlikely to try it.
Thanks & warm rgds,
Rajasree
From: insight_parents-bounce@xxxxxxxxxxxxx
[mailto:insight_parents-bounce@xxxxxxxxxxxxx] On Behalf Of sangeetha john
Sent: Wednesday, April 01, 2015 8:52 AM
To: insight_parents
Subject: [insight_parents] Re: Autism awareness day
of course , there is no cure for autism. when parents go after one therapy to
next they are wasting their precious time, energy and money. the better deal
is to accept autism, understand your child.
On Wed, Apr 1, 2015 at 8:31 AM, Arun M <arun@xxxxxxxxxxxxxxxx> wrote:
Chelation therapy may not be advisable. It is highly experimental and dangerous
http://www.mayoclinic.org/diseases-conditions/autism-spectrum-disorder/expert-answers/autism-treatment/faq-20057933
http://www..ncbi.nlm.nih.gov/pmc/articles/PMC1592402/
<http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1592402/>
Pls dont promote it.
On Tue, Mar 31, 2015 at 10:43 AM, Rajasree S <rajasree@xxxxxxx> wrote:
Sangeeta,
I would love to attend this but I am unable to come to Ernakulam on 2nd
April. Kindly post us on the developments/proceedings in this seminar.
I am interested in chelation especially, as this is one thing I am yet to
try on my daughter.
I have also lost my contact(your number) as my mobile got crushed.
Please send me the same in my mail id rajasree@xxxxxxx
Rgds
Rajasree
From: insight_parents-bounce@xxxxxxxxxxxxx
[mailto:insight_parents-bounce@xxxxxxxxxxxxx] On Behalf Of sangeetha john
Sent: Monday, March 30, 2015 5:28 PM
To: insight_parents
Subject: [insight_parents] Autism awareness day
seminar on occupational therapy and chelation therapy
venue: Sunrise hospital kakkanad, Kochi
date : April 2nd
time : 9am to 1 pm
Dr.Neena Shilen 9446495650
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