Comments from other lists pasted below. ----- Original Message ----- From: Tony Webb To: AACSA List Sent: Friday, January 27, 2012 8:19 AM Subject: Re: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Mpho, Good question - always a problem with a topic of general interest. Unfortunately the discussion is taking place on more than one List. Or maybe that should be 'fortunately', as colleagues from several parts of the disability sector give their input. As you can see below, the topic was initiated by Magic on 18 Jan, on the Rehab/Disability list - disability@xxxxxxxxxxxxxxxx and I cross posted to 7 other lists on 19 Jan. That generated more comments but the thread is fragmented across mainly the ACCSA, Rehab and NAP-Physical Lists. I am still waiting for the Blind and Deaf sectors to get back from the beach and join in...LOL I suggest that you subscribe to some of the other lists to see what is being said - your input would be welcomed. See our website, May 2010 newsletter, for how to subscribe. Regards, Tony Webb, The.Sponge Project, Port Elizabeth. +27-41-368 3707, Mobile +27-82-290 3764, tony.webb@xxxxxxxxxxxx, http://thespongeproject.yolasite.com ----- Original Message ----- From: Mpho Ndebele To: AACSA List ; Tony Webb ; Machuene Manamela Sent: Thursday, January 26, 2012 2:17 PM Subject: RE: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Well where is the discussion???? did I miss it??? Please include me on the mailing list of the discussion. Thanks Mpho ----- Original Message ----- From: Michelle To: 'Manamela Machuene' ; tony.webb@xxxxxxxxxxxx ; AACSA@xxxxxxxxxxxxxx Sent: Thursday, January 26, 2012 5:40 PM Subject: RE: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Hi there Speaking as a parent of a child with special needs in Johannesburg, there is very little evidence of real inclusive education. Those that are 'allowed' into schools are usually children with ADHD or slight learning problems. Teachers are unwilling to have facilitators in their classes and the 'special schools' are the worst. I recently did a research project looking at the perceptions of recruitment consultants who work in the field of disability towards employing a person with little or no functional speech and needless to say, their attitudes were not positive. Their definitions of people with disabilities who are 'employable' are those missing a limb, visually impaired, or suffering from a phychiatric illness like depression. I'm not sure where we go from here as it is a vicious circle. Families require funds to take care of people with disabilities - they don't attend school which prevents caregivers from working - without an education they are unemployable - etc, etc. Maybe we need a think tank with all stakeholders involved? I don't know ........................................... Regards Michelle Aronson. -------Original Message------- From: Jill Rose Date: 1/26/2012 3:05:35 PM To: 'Manamela, Machuene'; 'Tony Webb'; 'AACSA List' Subject: RE: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Hi Machuene I understand your frustrations and it is great to see a physio with a passion for educational issues. I wonder if you have visited Mitchell House in Polokwane – it is really a trail blazer in terms of Inclusive Education. They will inspire you to keep fighting for the inclusion of children with disabilities at home, at school and in the community Let us have your thoughts about what is going on there Jill (also a physio) From: Manamela, Machuene [mailto:Machuene.Manamela@xxxxxxxx] Sent: 26 January 2012 10:28 AM To: Tony Webb; AACSA List Subject: RE: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Greetings everyone! I am presently a lecturer and a physiotherapist at the University of Limpopo. I have REALLY been trying to keep my opinions to myself but I can’t anymore. I have been following the discussions and I am comforted to see that I’m not the only one disillusioned (I’m a firm believer in Education White Paper 6 Policy, 2001) and presently want to do a study but my frustration grows each day with the progress we are making and information on that is not easily accessible. Something as simple as getting disability statistics from Stats SA is a nightmare. Let alone from DPSA One really ones to make a difference, however small, in the lives of children (my passion is for pre-scholars) but I have to admit that the passion is waning. Machuene ----- Original Message ----- From: Independent disAbility Analyst & Human Rights Activist To: 'Rehabilitation / Disability Discussions' Cc: 'NAP - Physical' ; 'Khanya Rajuili' Sent: Tuesday, January 24, 2012 2:30 AM Subject: Re: [disability] [Physical] REAL TRANSFORMATION OF ORGANISATIONS"FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Thank you Khanya for sharing your thoughts on this important matter, and giving some advice on how this can be done. It's my hope that the powers that might be will have a rethink and start doing something positive for humanity. Also to Tony for being with me and popularizing this to a wider audience. Regards Magic Nkhwashu ----- Original Message ----- From: Independent disAbility Analyst & Human Rights Activist To: 'Rehabilitation / Disability Discussions' Sent: Tuesday, January 24, 2012 2:38 AM Subject: Re: [disability] REAL TRANSFORMATION OFORGANISATIONS "FOR"AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA It's always difficult to deal with and led by reactionaries, who eventually run out of ideas and are caught on the act. I just wonder what our options could be to get some accountability, especially where public funds are concerned? The SAHRC whom I know are in this list need to give us some guidance. I know the Public Protector has been busy lately exposing a lot of corruption in government. Surely, SADA and the so-called leadership of these organizations in and out of SADA should be able to respond to our request with ease - i.e. if they are genuine and exist. Still awaiting with hope Mr Ari Serlis will give us a report. -----Original Message----- From: disability-bounces@xxxxxxxxxxxxxxxx [mailto:disability-bounces@xxxxxxxxxxxxxxxx] On Behalf Of Tony Webb Sent: 21 January 2012 07:26 PM To: Disability List Cc: NAP - Physical; Khanya Rajuili Subject: Re: [disability] [Physical] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Hi Khanya, Thank you for your comments. In the spirit of Magic's original email I have posted this to some of the Lists, Regards, Tony Webb, The.Sponge Project, Port Elizabeth. +27-41-368 3707, Mobile +27-82-290 3764, tony.webb@xxxxxxxxxxxx, http://thespongeproject.yolasite.com ----- Original Message ----- From: Khanya Rajuili To: tony.webb@xxxxxxxxxxxx Sent: Saturday, January 21, 2012 9:50 AM Subject: RE: [Physical] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA To the recipients I uphold the transformation agenda and discussions Tony. Eco Access has continued on the model of its founder Rob Filmer to create 'Access" for persons with disability. I can blow my trumpet in that our structure, our staff and volunteer team is of persons with disability who have implemented our programmes successfully. I have taken a review of some of our structures (Ministry of Women and Pwd, Human Rights, Gender, Social Services, LSEN institutions ) to check how many in the leadership have disability. I cannot understand why a school of the Deaf or visual impairment would not be led by a principal or HOD with disability. The staff in the main are professional teachers who do not have special education training. Very disappointing because when one find the sign language or blind teachers they are called "support staff". If they have to teach braille They are classified "support staff". Our advantage is that we interact with the hearing, visual and physically impaired and this scope has afforded us an opportunity to know that there is no meaningful transformation at all. Eco Access would love to be engaged in the debate and action if we have to take this agenda forward. Kind regards Khanya Rajuili CEO Eco Access ----- Original Message ----- From: Barbara Watt To: Rehabilitation / Disability Discussions Sent: Friday, January 20, 2012 10:38 AM Subject: Re: [disability] REAL TRANSFORMATION OF ORGANISATIONS"FOR"AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA It is not only Tony and Magic who wants to know what SADA is doing? It should be public knowledge so let have it here on the list! Barbara Watt ----- Original Message ----- From: "Ari Seirils" <aris@xxxxxxxxxxx> To: "'Rehabilitation / Disability Discussions'" <disability@xxxxxxxxxxxxxxxx> Sent: Friday, January 20, 2012 8:03 AM Subject: Re: [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR"AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Tony & Magic, you two continue to make fools of yourselves, give me a call and i will update you on SADA work. Ari Seirlis National Director QuadPara Association of South Africa (QASA) PO Box 2368, Pinetown, 3600, South Africa Tel: 031 7670352/48 Fax: 031 7670584 Email: info@xxxxxxxxxx Mobile: 0829014150 www.qasa.co.za From: Tony Webb [mailto:tony.webb@xxxxxxxxxxxx] Sent: 19 January 2012 07:00 PM To: AACSA List Subject: [AACSA] [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Dear List, If you have already seen this, please forgive me for cross-posting. I felt that the topic deserves a wide discussion. ----- Original Message ----- From: Tony Webb To: Rehabilitation / Disability Discussions Sent: Thursday, January 19, 2012 6:44 PM Subject: Re: [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Hi Magic, Greetings from a very hot PE, and thank you for sharing your thoughts on this List. Here's hoping that you will stimulate some long-overdue discussion between those who are not faint-hearted. I agree with your sentiments and I also despair whether we will ever see 'REAL TRANSFORMATION' in the disability sector in South Africa unless the masses of disabled people know enough to help themselves. My best guess is that the 'ORGANISATIONS FOR' represent less than 10% of the total disabled people in SA. I challenge them to publish their a) numbers of members, and b) numbers of disabled people with whom they have regular contact, in their response to this discussion, so that we can compare the stats with the 10% of the population who have a disability. Maybe LOTTO feels the same way and is thinking hard about how to get its funds to those who need it. My concerns with the general lack of progress with advocacy, rehabilitation, accessibility, housing, education, skills development and employment lead me to six months of severe depression during 2011. I make no secret of the fact that I am an able bodied, (far from normal), white male in his seventies, retired from a scientific and engineering background, with a passion for sharing disability-related information. Tim, my paraplegic partner, had to have a few months of hospital treatment for his back and plumbing system. Consequently, the SPONGE SMS info service was off-line and stagnated for most of the year. NOW Tim and I are back in action and doing our best to inform disabled people about their rights and any other aspect of disability they might enquire about through our free SMS service. You mentioned the Disability Alliance. Do they ever report back to us masses through an open newsletter or website? From the heart, Regards, Tony Webb, The.Sponge Project, Port Elizabeth. +27-41-368 3707, Mobile +27-82-290 3764, tony.webb@xxxxxxxxxxxx, http://thespongeproject.yolasite.com ----- Original Message ----- From: Independent disAbility Analyst & Human Rights Activist To: 'Rehabilitation / Disability Discussions' Sent: Wednesday, January 18, 2012 10:05 PM Subject: [disability] REAL TRANSFORMATION OF ORGANISATIONS "FOR" AND "OF"PEOPLE WITH disABILITIES IN SOUTH AFRICA Compliments for the new season!!! I must start by warning; my writing is not meant for the faint hearted and those who lack objectivity, and like playing the MAN instead of the BALL. It's meant to spark ROBUST and GENUINE debate and is inspired by FREEDOM OF SPEECH - GRANTED and GUARANTEED by the South African Constitution. This must be read in CONTEXT, rather than CONTENT. As we enter eighteen (18) years of democracy, I wonder what organizations "FOR" in particular, and "OF" (DPSA) have achieved for people with disAbilities on the grassroots - the masses. I know I've asked this question before, and also in the angle of whether we need national organizations or not - what is their use, and what do they really do? One thing is certain, they are like toothless dogs who cannot even bark - but are able to use the status and name "people with disAbilities" for their own selfish gain. One of the biggest challenges and problems that led to the mysterious death of SAFCD (South African Federal Council on Disability), and the sudden birth of the so called SADA (South African Disability Alliance), is the lack of real transformation in mainly "organizations FOR" within the disAbility sector. Who is in alliance (SADA) with who, for what . who's fooling who? The very organizations claiming to be in alliance have biggest challenges internally, and that mainly relate to TRANSFORMATION to conform with the realities of our times and the demographics of our country. Fronting and window dressing remains the biggest challenge, with boards/committees/employment, etc. populated by people who are happy just to be in a position and once in a while an opportunity for a trip overseas, etc. (no offence meant). They hardly say anything in meetings except to sign a register and rubber stamp decisions taken - they probably don't even understand and/or agree with many of the things. These organizations claim there isn't enough suitable candidates especially those of colour that can be considered when a vacant post avail itself - normally when there's retirement/resignation. These have become more like "family institutions" where there is an inheritance system. They go all the way to hand-pick their own to keep the institutions that seems to be milk cow. They have enough opportunities to freely transform that is not utilised. It should be expected when they are players and referees at the same time - they can't transform themselves, but are very good in brandishing/using the word TRANSFORMATION. I urge anyone reading to make your own assessment and judgment in the organizations, some of which are as old as Muhammad Ali and others born towards democracy, and not to just take what I say. The organization themselves need to consider self introspection, which I believe is hard to admit and take responsibility. I believe the above (and much not mentioned) has a direct link/impact to the lack of proper service delivery and empowerment to people with disAbilities. I refuse to fully blame government and the private sector, and put the blame squarely on the organizations and some individuals in certain positions of higher authority for this mess. It might help if "BIG SHOTS" respond directly without sending others who lack responsibility and/or are clueless on the issues above - no matter how poetic they can be. PS. This isn't for pasting on some website, but for debate here where it has been posted - unless arranged otherwise. Magic Nkhwashu Independent Disability Analyst and Human Rights Activist (Represents and Speaks for the Rights and Equal Treatment of All South Africans with a disAbility) also as an Independent Political Analyst _______________________________________________ Disability mailing list Disability@xxxxxxxxxxxxxxxx http://lists.hst.org.za/mailman/listinfo/disability