**** ETNI on the web http://www.etni.org.il http://www.etni.org **** -------- Original Message -------- Subject: unusual request From: "Roni" <ronea@xxxxxxxxxx> An Urban Legend or Reality? We?ve all heard these stories ? they all follow the same pattern; someone is suffering from a life threatening illness. Conventional medical treatment has failed. Then the person?s friend discovered (on the net) a doctor that has an unusual approach, perhaps an experimental one. That doctor enables the patient to improve his/her quality of life or prolong it (not to mention ?cure?). Basically, a miracle worker. Einav is two and a half and her parents are desperately looking for such a miracle worker. She is hospitalized in critical condition. She has a heart disorder called cardiomiopathy which in plain language means that her heart is hardly doing what hearts are supposed to do. The medications she gets no longer help her and heart transplant is not an option in this case. Beyond ?Googling? the word ?cardiomiopathy? and patiently sifting through the web sites (which this aunt is doing) can you suggest other ways to locate an ?out of the box? doctor? Do you know someone who might have information? If so, please email me at: ronea@xxxxxxxxxx With many thanks!!!!!!!!! Naomi Epstein ##### To send a message to the ETNI list email: etni@xxxxxxxxxxxxx ##### ##### Send queries and questions to: ask@xxxxxxxx #####