From: Kirsten McCombie <Kirsten.McCombie@xxxxxxxxxxxxxxxxxxx> Subject: Have Your Say on the NDIS - forum open now Received: Tuesday, 23 October, 2012, 11:40 AM  We are now less than 9 months away from the launch of the National Disability Insurance Scheme. The Government is continuing to seek important feedback from individuals on what they want to see included in a NDIS.  While we as an organisation are inputting to these discussions, we need you to have your say!  A new discussion topic has just been launched through the Have Your Say on the NDIS online portal - What would be the key features of successful planning?  Planning looks beyond the immediate need, and across the course of a personâs life. It will provide the appropriate reasonable and necessary supports that will allow people with disability to have greater independence and help them reach their full potential. What do you think should be considered when youâre developing your plan with the NDIS. Your feedback on this question will help inform the development of planning that provides people with disability the choice and control over the support they will receive over their lifetime.  A plan would include identifying your goals and aspirations for the life you want to live that is particular to your individual situation. The planning process will also take account input from your family, carers and your wider social network and could include an advocate. What would you like taken into account when developing an individual plan and assessment of your support needs?  If you havenât already done so, the first step is to go online to the following link - http://yoursay.ndis.gov.au - and register to participate.  Then, you can share your views on the scheme through the online forum at the following link - http://yoursay.ndis.gov.au/third-forum.  You can also share your stories and experiences at the following link - http://yoursay.ndis.gov.au/yourstory  For your interest and use we have also included at the bottom of this email, the response from Vision Australia to this important question. If you would like, you can use our response when sharing your thoughts on what you think is important.  Regards Kirsten  Vision Australia response to Have Your Say on the NDIS online portal - What would be the key features of successful planning?  Vision Australia believes there are several elements that should be considered when developing successful plans under a National Disability Insurance Scheme.  1. A planning framework that includes:  a) Practical supports â clear links between needs/aspirations and practical supports to meet a personâs identified goals/outcomes. b) Goals/outcomes â the plan should include specific and measurable items on what a person wants to achieve. c) An action plan that articulates a clear pathway to the achievement of goals/outcomes â that indicates the support measures and the way in which they will be used to achieve defined goals and outcomes. d) Flexibility and Review â options to ensure people are not forced into whole of life planning if they only want to have an immediate need met. For example, some people may need timely access to a particular service such as mobility and/or adaptive technology training, but not want to have to plan their life through to retirement. Some people may even want to opt out and not be compelled to actively pursue a particular goal or outcome, instead electing to do that later. Goals and aspirations can change according to an individualâs circumstances, accordingly there should be opportunity to change your mind. Additionally there should be flexibility up or down as independence and needs vary â examples include: anticipate deterioration of a personâs disability and possible greater support needs; or supports that incrementally decrease as a person moves from a lot of support in planning into a totally independent approach to planning. There should be consideration of the mechanism to review the plan as circumstances change â regular, on demand or as required. e) Results in timely services - Ensure that support under a plan flows in a timely fashion. Delays in the ability to receive services may negatively impact on a person seeking their goal or in the ability to achieve that goal (ie to attend a course or event). f) Capacity for long term planning â like everyone, eligible individuals may need time to learn how to make long term decisions and plans, they may make mistakes or change their minds. There should be support to assist people to understand and develop their long term plans. An ability to review and be flexible will also promote long term planning. g) Early intervention â anticipates developments and needs before a crisis develops. For example, if a person knows they have a degenerative condition that will leave them completely blind within 10 years, perhaps they should be able to learn Braille or another form of communication, or upgrade mobility devices at an earlier time. Planning should take these situations into account.  2. Getting or having access to appropriate advice and information. Individuals and families who may have no prior experience of a disability and the impact it may have, for example, a family with a congenitally blind child or a young adult who has been recently diagnosed with a degenerative blindness condition should be able to access advice, information and assessments including from blindness or specialist agencies such as Vision Australia, Blind Citizens Australia and to have this included in the planning/assessment.  People should be able to access information relatively easily including:  Services that meet their needs. The costs. How to get the services. Where the services operate. Knowing whatâs available - how can an individual or family know what to choose if they donât know whatâs available? Peer support. Consumer rights.  Ultimately, the individual themselves should have full control over their plans â but this may include with the support of a trusted facilitator including a parent/carer/friend/broker/service provider.  3. Dedicated administration and brokerage component â at the planning stage, there needs to be a discussion about how a person will manage their support package. This should include an allocation of funds to purchase brokerage and/or administration services â including from an independent broker and/or advisory body. There should also be the opportunity within the National Disability Insurance Agency (and its precursor the Launch Transition Agency) to do this.  4. Successful plans identify where support is required. This can include linking services to the areas that an individual aspires to participate and succeed such as: Communication tools, Education, Emotional and Social support, Employment, Independence at home, Independence in Community, Information and Recreation. There should be capacity to anticipate certain life transition points, and deal with significant changes in life circumstances (or supports that may be around an individual such as parents, family, partners) should be able to be identified and planned for â for example entering and leaving school, entering and changing employment, moving or buying a house, having a family. Support and advice should also be included that allows people to budget and provides information on how much a service may cost.  5. Planning should provide people with a defined appeals process. The stage a request or application to receive support, inherently is also the point in which judgements of whatâs in or out or indeed, who is in or out, therefore their needs to also be in place a grievance mechanism or appeals process.  6. Individuals should be comfortable with talking about their aspirations and goals.  Individuals have a right to: Be properly informed. Feel that something positive will come from their efforts. Freedom of choice â an individual has the right to make decisions without interference or imposition of other values on their decisions. Accessible information provided at the same time as everyone else. Be treated with dignity and respect. Be treated as an empowered customer.  7. Vision Australia believes there is a role for specialist service providers to play in the development of resources, information and practices that help people with disability, their families and carers plan or make choices. For example, Vision Australia and others in the blindness sector hold specific knowledge and expertise on the impact of vision impairment on individuals and proven, effective means to manage these conditions as they develop as well as in how they impact individuals through certain points of their life. We believe the development of NDIS badged public and consumer resources, and online services and systems would assist in delivering greater value to individual planning.  End of document ABN: 67 108 391 831 ACN: 108 391 831