[bksvol-discuss] Re: OT: infant cataract surgery
- From: Cindy <popularplace@xxxxxxxxx>
- To: bksvol-discuss@xxxxxxxxxxxxx
- Date: Sat, 19 Nov 2005 14:11:43 -0800 (PST)
Gail,
I can't tell navy blue from black, or some shades of
green. I have a blouse that I thought was green; then
when I went outside, after having put on a pair of
pants with it that I thought was a good match, I
realized that it's really a sort of turquoise or aqua
shade. When I'm sorting my hsuband's socks and/or want
to wear blue pants I have to take them outside to see
if they're blue or black.
Cindy
--- "Gail The U. S. Male" <gail1959@xxxxxxxxxxx>
wrote:
>
> some key words here are observe, feel, and ponder. I
> had a small bit of
> vision when I was younger, a pinpoint was what the
> doctors called it. I was,
> and am totally blind, but I could see shadows,
> primary colors, *shades of
> blue, for example I couldn't tell, but blue versus
> green I could* I also had
> light perception, which meant I could see light, and
> I could tell you if it
> was a table lamp, or floor lamp, or ceiling fixture,
> and whether it was the
> long fluorescent lights or just incandescent bulbs.
> I've totally lost that
> ability now, and it frustrates me to no end
> sometimes, since sighted people
> quite often forget to turn the light off after they
> leave one of my rooms.
> Then the neighbors make comments like, "Did you know
> the porch light has
> been on for three days now?" No, I didn't, or I'd
> have turned it off. all
> the light probes I've seen, I can't hear, since I
> also have a high frequency
> hearing loss. That's something I've never
> understood. Why they thought that
> if you made something for the use of blind people,
> it had to be high
> frequency!
> -----Original Message-----
> From: bksvol-discuss-bounce@xxxxxxxxxxxxx
> [mailto:bksvol-discuss-bounce@xxxxxxxxxxxxx]On
> Behalf Of Cindy
> Sent: Saturday, November 19, 2005 1:51 AM
> To: bksvol-discuss@xxxxxxxxxxxxx
> Subject: [bksvol-discuss] OT: infant cataract
> surgery
>
>
> Dear Lissi,
>
> Your letter posted here has prompted me to pass on
> information that I wrote to Kasondra offlist.
>
> My elder daughter is a pediatrician. After reading
> Kasondra's post, I asked her if she had any blind
> patients. She said no, but she had two babies who
> were
> born with congenital cataracts. the first had an
> operation removing them, and the second, a
> four-month-old, will have one soon. When I asked if
> a
> two-yar-old could have the operation, she said that
> it
> was possible but that it wouldn't help much--he
> would,
> as happened with you at the age of three and a half,
> have some slight vision, but his cortical pathways
> would be so developed by the age of two that he
> wouldn't have full vision.
>
> Your reaction to having some vision to be able to
> see
> colors, animals, etc. is interesting, and may help
> others to decide whether it's worth having their
> child
> go through the operation or not. Do you know why you
> had to have 7 operations? The definite impression I
> got from Dori is that if the oepration is performed
> in
> infancy only the one would be necessary. Since no
> older patient of hers has had the operation, I'm
> guessing she doesn't know if one is enough or if
> more
> would be necessary.
>
> I pass on this information so anyone with the
> condition who is worried about having children born
> with congenital cataracts will know that the child
> doesn't have to remain blind or partially sighted.
>
> Cindy
>
>
>
>
>
> nd Everyone Along This Strand,
> >
> > Shelley, re the average age for learning braille,
> I
> > agree with you that
> > it's equivalent to the age children learn to read
> > print, taking their
> > individual rate of development yadah yadah in to
> > account.
> >
> > For the record, my brother and I had bilateral,
> > congenital cataracts as did
> > our mother. Our father had no vision problems.
> With
> > our risk factor of
> > passing cataracts to our children, both of us
> opted
> > not to have kids, a
> > decision I now regret. You said it all, Shelly.
> It's
> > a lot to think about.
> >
> > With my achievements and failures and my past and
> > current struggles, I'm
> > glad my parents took the risk to have me even
> after
> > my brother was born
> > first, with very little vision. I came along
> totally
> > blind until 7 surgeries
> > gave me a little vision in one eye when I was
> three
> > and a half. I have had,
> > and still have rough times, but there's all of the
> > beauty, the people, the
> > music, books, animals, colors, variety, endless
> > things to observe, feel,
> > and ponder...I'm grateful to have been born.
> >
> > Always With Love,
> >
> > Lissi
> >
> > ----- Original Message -----
> > From: <juddysbuddy@xxxxxxxxxxxx>
> > To: <bksvol-discuss@xxxxxxxxxxxxx>
> > Sent: Saturday, November 19, 2005 12:03 AM
> > Subject: [bksvol-discuss] Re: OT: heavy books
> >
> >
> > > kids that learn Braille usually start at the
> same
> > time that other kiddos
> > > are
> > > learning Print. Because, they are learning to
> > read just as the other
> > > kiddos
> > > are.
> > >
> > > Smile.
> > >
> > > Indeed some disorders can be hereditary. Mine
> is.
> > I have Retinitis
> > > Pigmentosa, and we don't know which form it is.
> > The only major concern
> > > for
> > > the family right now, is to watch my brothers
> and
> > make sure they get
> > > regular
> > > eye check ups, and of course if I get married
> and
> > plan to have kiddos of
> > > my
> > > own, I need to be tested and so will my husband
> to
> > see if he is a carrier
> > > of
> > > the genetic traits for RP. If he does, then we
> > might have up to a 75
> > > percent chance of having a child with RP, and
> will
> > have an almost 100%
> > > chance of a kid who is a "carrier".
> > >
> > > It is pretty likely that both my brothers are
> > carriers of the trait too.
> > > But so far they don't appear to have it.
> > >
> > > Course RP usually shows up in your forties, so
> > perhaps.
> > >
> > > If it is recessive, then it could have easily
> > passed to them too.
> > >
> > > Things to think about.
> > >
> > >
> > >
> > > Shelley L. Rhodes and Judson, guiding golden
> > > juddysbuddy@xxxxxxxxxxxx
> > > Guide Dogs For the Blind Inc.
> > > Graduate Advisory Council
> > > www.guidedogs.com
> > >
> > > The vision must be followed by the venture. It
> is
> > not enough to
> > > stare up the steps - we must step up the stairs.
> > >
> > > -- Vance Havner
> > > ----- Original Message -----
> > > From: "Gail The U. S. Male"
> <gail1959@xxxxxxxxxxx>
> > > To: <bksvol-discuss@xxxxxxxxxxxxx>
> > > Sent: Friday, November 18, 2005 8:35 PM
> > > Subject: [bksvol-discuss] Re: OT: heavy books
> > >
> > >
> > > Cindy, indeed, some forms of blindness are
> > hereditary. Most totally blind
> > > kids start learning Braille in either
> Kindergarten
> > or first grade. The
> > > child
> > > could be taught at a younger age, I suppose, but
> > most kids aren't.
> > >
> > > -----Original Message-----
> > > From: bksvol-discuss-bounce@xxxxxxxxxxxxx
> > > [mailto:bksvol-discuss-bounce@xxxxxxxxxxxxx]On
> > Behalf Of Cindy
> > > Sent: Friday, November 18, 2005 6:16 PM
> > > To: bksvol-discuss@xxxxxxxxxxxxx
> > > Subject: [bksvol-discuss] Re: OT: heavy books
> > >
> > >
> > > That's a cute story, Kasondra. How old does a
> > child
> > > have to be before he can start learning to read
> in
> > > Braille? Are you and/or your husband bind? Are
> > some
> > > forms of blindness hereditary? Forgive me if I'm
> > being
> > > too personal.
> > >
> > > Cindy
> > >
> > > --- Kasondra Payne <Kassyp36@xxxxxxx> wrote:
> > >
> > >> Cindy,
> > >>
> > >> I just walked in my bedroom to answer the
> phone,
> > and
> > >> I found my two-year-old
> > >> son, Andrew on the floor, trying to read a
> Harry
> > >> Potter book. My husband
> > >> always keeps one on his side of the bed, and
> > Andrew
> > >> just took off the cover,
> > >> opened the book, and started turning pages. It
> > was
> > >> so cute that I just
> > >> thought I should share it with all you guys.
> > Andrew
> > >> will read Braille
> > >> someday because he is blind, but at least he
> > shows a
> > >> healthy interest in
> > >> books now. Yes, that particular book is very
> > heavy,
> > >> but it was already on
> > >> the floor, so Andrew could move it easier
> > >>
> > >> Kasondra Payne
> > >>
> > >> --
> > >> No virus found in this outgoing message.
> > >> Checked by AVG Free Edition.
> > >> Version: 7.1.362 / Virus Database: 267.13.4/175
> -
> > >> Release Date: 11/18/2005
> > >>
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> > >
> > >
> > >
> > >
> > >
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