[ SHOWGSD-L ] Fw: DNA Blood Drive at GSD National and privacy concerns and Tribute Wall...part 2
- From: "Maureen Murkland" <murk@xxxxxxxxxxx>
- To: <showgsd-l@xxxxxxxxxxxxx>
- Date: Mon, 27 Aug 2007 11:40:35 -0500
> The Broad is supplying all of the blood drawing materials, tubes,
> syringes, etc. They will also share this DNA with other researchers.
> Purina has agreed to underwrite some of the other expenses involved in
> this,
> so the cost to any one participating is zero. But the benefits,
> contribution to not only our breed's health, but ultimately research that
> humans will also benefit from should not be ignored.
>
> The Broad Institute is sending two to three people, at their own
> expense, to help with the paperwork and answer any questions any of you
> may
> have. If you look at the November 2006 Review, you will see one of their
> "release forms". They do ask for the dog's name, AKC number and owner's
> information. The blood sample, once it gets back to The Broad, will
> receive
> a random number and from that point forward, any other researcher who
> wants
> DNA samples will only know the number, the dog's sex, age and health
> issues
> you list on your form. The reason The Broad wants your name and number,
> is
> that as they use your dog's sample in research, they want to be able to
> call
> you and verify that your dog is still healthy, have there been any
> changes.
> AT no time will your name, your dog's name or pedigree ever be published
> in
> any papers or other results. You will merely have the priviledge of
> thinking that out of the study where they state "out of 100 dogs
> studied..."
> that yours may have been somewhere in that 100. They do not release
> individual results.
>
> Bottom line, both your identity and the dog's identity is protected.
> Once the blood samples arrive at the Broad Institute, they are given
> random
> numbers as their new identifiers, so everyone should be assured that they
> will not see their pedigree "out there" in a bad light, or any other
> light."
>
> Susuan Casey has offered to share her "Review" table with The Broad.
> We
> will have all of the paper work there and they will be able to answer your
> questions. We will have a "blood drawing stall" as close as possible. I
> have several experienced, licensed Veterinary Technicians lined up to do
> the
> blood draws. They came highly recommended by Dr. Modiano, as he was
> conducting his research in Denver until just recently, so he personally
> knows these Techs. The one Tech I spoke with shows her Rottweillers in
> Breed, Obedience, Agility and Herding, so she also knows her way around
> big
> dogs. The stall floor will be covered in linolium so the dogs will not
> get
> dirty, it will be well lit. I will have a small refrigerator to keep the
> blood cool.
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