Care Beyond Cure
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! October 2017 !
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October 1, 2017
LOOMING CRISIS IN INDIA: OPIOID ACCESS IS CHALLENGED!
We hear with a sense of shock that manufacturing of morphine in the
Government Opium and Alkaloid Works – currently the only possible source of raw
morphine powder in the country – has stopped in the only two factories in
Neemuch and Ghazipur. We hear that the pollution control board has ordered the
factories to close. Soon, even in those places where morphine was available so
far, there will be no stock.
And worse, no solution seems to be in sight. We hear that there are
discussions about importing morphine powder; but even if that decision is
arrived at, how long will the process take? And how expensive will morphine
Who will tell this mother that it is all over and that she will have to
go back to feeling the red-hot iron pushed into her bones?
ANY SUGGESTIONS, ANYONE? [HTTP://PALLIUMINDIA.ORG/CONTACT/]
“END-OF-LIFE CARE LAW” IS GASPING FOR BREATH.
More than a year after the Government of India published a draft
end-of-life care law, the matter is still seems to be hanging in the air.
Please see a commentary published in the Journal of Global Oncology by Aju
Matthew and M.R.Rajagopal, Care of the Terminally Ill Patient in India:
Comments on the Proposed Legislation
[https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5493226/] . “If the principle of
patient autonomy is to be respected,” the authors argue, “the proposed bill
should consider upholding advance directives as an integral part of end-of-life
care of terminally ill patients.”
Currently, the draft law stipulates that when the person is incompetent
to take a decision at that point of time, even if he has left valid advance
directives, the family will have to move the High Court of the state for
permission to withdraw artificial life-sustaining treatment like artificial
The draft law can be seen at
While on the same subject, Dr Roop Gursahani brings to our attention
the decision by a High Court in the United Kingdom as reported in “the
Independent”, Right-to-die cases no longer need court approval after landmark
, the court has ordered that it is not necessary for the family to approach
the court for withdrawing artificial life support.
RAJAM S NAIR ENDOWMENT
Dr Ajith Nair and his wife Jaya Nair have instituted “Rajam S Nair
Endowment” in the sacred memory of their loving mother, the late Rajam S Nair.
Rajam Nair was born in Haripad, Kerala in 1947. She died of Leukemia on
01 September 2014. She was an exceptional person with such love and sympathy
for her fellow human beings that she always left pleasant memories everywhere
“Death does not scare me,” she used to say. “Pain does. I prefer death
Her son and daughter-in-law decided to institute an endowment in her
name to improve awareness about the need for palliative care in India.
RAJAM S. NAIR ENDOWMENT PRIZE COMPETITION
Pallium India announces Rajam S. Nair endowment prize competition
open to undergraduate and postgraduate students in India.
The theme for write-up is the same as that of World Palliative Care Day
2017: “PALLIATIVE CARE AND UNIVERSAL HEALTH COVERAGE: DO NOT LEAVE THOSE
Word Limit: 2000
PLEASE DOWNLOAD THIS FILE FOR FURTHER DETAILS ON THE COMPETITION AND
_Send your write-up as PDF to the email id: writeup@xxxxxxxxxxxxxxxx
* Deadline for submission: 5 NOVEMBER 2017
* Notification of prizes: 15 DECEMBER 2017
* Prize distribution: 23 FEBRUARY 2018 at 25TH Annual Conference of
Indian Association of Palliative Care, Jawaharlal Nehru Auditorium, AIIMS, New
KOCHI DECLARATION [HTTP://PALLIUMINDIA.ORG/2017/09/KOCHI-DECLARATION/]
In the presence of Archbishop Mons. Vincenzo Paglia and Dott.ssa
Nunziata Comoretto from the Vatican, the Catholic Health Association of India
(CHAI) at its National Health Convention in Kakkanad, Kochi, declared
unequivocally that palliative care is the right of every person who needs it
and that hospitals have a duty to provide it. ( _Read the Kochi declaration_
CHAI and Pallium India have signed a memorandum of understanding to
work together to integrate palliative care into CHAI’s health care network.
Pallium India thanks Rev Fr Dr Mathew Abraham, director general of CHAI
and his team for this opportunity to work with CHAI.
_Catholic Health Assn inks MoU with Pallium India – Times of India_
_‘Association will initiate activities focusing on palliative care’ –
The New Indian Express_
UNODC EXPERT MEETING TO IMPROVE ACCESS TO CONTROLLED MEDICINES
_Dr Katherine Pettus, Advocacy Officer, International Association for
Hospice and Palliative Care, writes:_
Diederik Lohman, Jim Cleary and I were in Vienna for an Expert Meeting
convened by UNODC on improving access to controlled medicines.
The purpose was to draft a document for member states containing
practical actions to implement the recommendations of the 2016 UNGASS Outcome
improving access to essential controlled medicines.
The meeting was attended by representatives of the INCB, WHO, China,
Pakistan, and NGOs experts from Brazil, DRC, Ghana, Greece, Malta, Mexico, and
Poland. Policy experts attended from IAHPC, the Pain and Policy Studies Group,
and Human Rights Watch.
“THALOLAM”: PATIENT GET-TOGETHER ON WORLD PALLIATIVE CARE DAY, OCT 14
“It was heaven to feel the waves on my feet. I shall never forget
this,” said a person on a wheelchair, who, since her spinal cord injury, had
never been able to see the sea again. We had made it happen on a World
Palliative Care Day. (_Image from 2015_)
On October 14, 2017, World Hospice and Palliative Care Day, Pallium
India is once again organizing a get-together of patients and families. The
participants, estimated to be around 500, would include mostly wheelchair-bound
patients, patients with life-limiting diseases and their family members. The
program, titled “_THALOLAM 2017_” will be conducted at Govt. Youth Hostel,
CAN YOU HELP?
For each patient and family the expense estimated (for food and a gift)
is ₹1500 (US $23).
PLEASE DONATE WHATEVER YOU CAN to make this event a happy one for our
patients and their families.
For Bank transfer:
State Bank of India, Pattom Branch (IFSC code: SBIN0003355). Savings Account
Checques and Demand Drafts in the name of ‘Pallium India’.
To donate online please visit: http://palliumindia.org/donate/
FOR QUERIES, PLEASE CONTACT US: 9746745502 (Babu Abraham). Email:
WORLD HOSPICE AND PALLIATIVE CARE DAY [HTTP://WWW.THEWHPCA.ORG/]
WORLD HOSPICE AND PALLIATIVE CARE DAY is a unified day of action to
celebrate and support hospice and palliative care around the world. World
Hospice and Palliative Care Day takes place on the second Saturday of October
every year. The theme for World Hospice and Palliative Care Day 2017 is:
“UNIVERSAL HEALTH COVERAGE AND PALLIATIVE CARE – DON’T LEAVE THOSE SUFFERING
The aims of World Palliative care day are:
* To share our vision to increase the availability of hospice and
palliative care throughout the world by creating opportunities to speak out
about the issues
* To raise awareness and understanding of the needs – medical, social,
practical, spiritual – of people living with a life limiting illness and their
* To raise funds to support and develop hospice and palliative care
services around the world.
ARE YOU PLANNING AN EVENT?
Please register your event at:
Resources available from the WHPCA website include:
* World Hospice and Palliative Care Day Toolkit
* Key messages
* Model letter to governments
The toolkit includes a handy social media guide, including World
Hospice and Palliative Care Day draft tweets. For more information on World
Hospice and Palliative Care Day, please visit:
KUHS ESTABLISHES CENTRE FOR STUDIES ON HEALTH CARE COUNSELING AND PALLIATIVE
There is often a lot of talk about healthcare ignoring the human being.
A lot of talk; but usually little action.
In a major step towards improving this situation, Kerala University of
Health Sciences (KUHS) now establishes a University Centre with the potential
to focus on human suffering and on information needs rather than just diseases.
KUHS BECOMES THE FIRST UNIVERSITY IN INDIA not only to integrate
palliative care into its undergraduate medical curriculum, but also to
establish a centre dedicated to health care counseling and palliative care.
We congratulate and thank Dr MKC Nair, the Vice Chancellor of KUHS and
his team for this timely action, modeling the way for health education in
The palliative care fraternity in Kerala now has the opportunity and
responsibility to assist KUHS in implementation of this imaginative programme.
METAECHO CONFERENCE 2017
Extension for Community Healthcare Outcomes – ECHO is an innovative
model that is rippling across the globe and improving access to care. Dr
Sanjeev Arora, professor of gastroenterology at University of New Mexico, is
the pioneer founder of the ECHO concept. He began ECHO by empowering community
level practitioners in managing Hepatitis C. The aim is to demonopolize
knowledge and allow the experience and best practices of experts to reach those
practitioners working in the community where it is most applicable.
ECHO achieves this through a guided practice model using hub-and-spoke
knowledge-sharing virtual networks, led by expert team and attended by
practitioners from different settings who share similar patient concerns. It
combines brief didactic presentations and case-discussions to communicate the
nuances of the themes identified. TIPS began the 1st ECHO based training
India in Jan 2017 and is currently conducting four ECHOs on different themes in
palliative care. (_ Click here [http://palliumindia.org/courses/echo/] for
details on upcoming ECHO sessions._)
The 3rd MetaECHO conference was held at Albuquerque, New Mexico, USA
from September 12th to 17th, with the theme – Infinite Possibilities. The
event, coordinated by Dr Max Watson, brought in ECHOists from across the world
who shared their experience of force multiplication of knowledge through his
truly democratic platform. TIPS ECHO team – represented by Dr Nandini Vallath
participated in a panel discussion on using ECHO for palliative care education.
She presented an overview and five hey learnings from the experiences of
conducting palliative care ECHO in India and India’s that targets the largest
population, spanning the entire country of India and beyond. The other
panelists were Dr Suresh Reddy and Sriram Yennu from MD Anderson who shared
experience as the biggest cancer hospital in the world, with target population
of specialist teams throughout Africa; and Chris Piromalli from Alaska who gave
perspective of engaging American Indians and Alaska Natives through a
multidisciplinary approach palliative care ECHO involving the Community Health
In ECHO all teach and all learn – Dr Sanjeev Arora
TIPS ECHO SESSIONS ON PAIN MANAGEMENT
_Sumitha T., Project Executive at Pallium India, writes:_
Pallium India, through its Trivandrum Institute of Palliative Sciences
– Extension for Community Health Outcome (TIPS-ECHO) program, is now
propagating the concepts of palliative care throughout the country along with
the stories of human lives in dire need for pain relief and palliative care in
the 21st century.
In order to reach country’s 1.2 billion people, TIPS-ECHO was initiated
under the mentorship of Dr. Nandini Vallath on 20th January 2017. ECHO was
created by Dr. Sanjeev Arora from USA and this virtual learning is facilitated
via “zoom” platform.
So far, we have conducted sessions on Treat That Pain, Methadone and
Rehabilitation as an Essential Component of Pain Management. Psychological
Aspects of Chronic Pain under the guidance of Dr. Chitra Venketesh started from
13th September 2017.
We are thankful to Dr. Arora, entire ECHO team in Delhi, Dr. Vidya
Kumaraswamy for her brilliant coordination in the first sessions, all our
faculty from India as well as abroad, our mentors and Dr. Sunilkumar,
additional director of TIPS for helping us reach more as we believe that
“learning is movement from moment to moment”.
_Click here for TIPS-ECHO schedules_
_[Caption: TIPS as the hub in the southernmost part of India and
participants as spokes from all over the country.]_"
SAHAYATRA PALLIATIVE CARE AWARENESS RIDE
Pallium India, IAPC (Kerala), CET CYCLE CLUB (CCC) and INDUS CYCLING
EMBASSY, Trivandrum have jointly organized a palliative care awareness bicycle
ride from Mannarkad, Palakkad to Kovalam, Trivandrum. The event was flagged off
on September 29th and will terminate at Udaya Samudra, Kovalam at 5p.m. on
October 2nd. The bicycle riders are being welcomed warmly at each location by
district palliative care initiatives and palliative care enthusiasts.
The program was organized to spread the message of palliative care to
the public, to declare palliative care as a right of every individual.
IF YOU ARE IN TRIVANDRUM ON OCTOBER 2ND, DO HEAD TO PALLIUM INDIA (12
NOON) OR KOVALAM (4 P.M.) TO WELCOME THE RIDERS AS THEY COMPLETE THEIR
MISSION!! Contact: 9746745502
FOCUS ON PALLIATIVE CARE AT WORLD NEUROLOGY CONGRESS, KYOTO, JAPAN
Pallium India was privileged to be part of lively discussions to
improve access to palliative care in neurological disorders at the World
Neurology Congress in Kyoto, Japan from 16th to 21st September, 2017.
It was heart-warming to find that several Indian neurologists
participated in the deliberations.
In addition to an erudite presentation on the current global status by
Dr Borasio, palliative care in India and Japan received special attention.
IAPCON 2018 [HTTP://WWW.IAPCON2018.COM/]
The 25th Annual Conference of the Indian Association of Palliative Care
( IAPCON 2018 [http://www.iapcon2018.com/] ) will be held from 23rd to 25th
February, 2018, at Jawaharlal Auditorium, AIIMS, New Delhi. The theme of the
conference is CREATE, COLLABORATE AND COMMUNICATE.
Last date to submit abstracts: 30TH OCTOBER, 2017.
For more details on the Conference, please download the brochure
Visit the conference homepage: http://www.iapcon2018.com/
PALLIATIVE CARE AWARD 2017 FOR SAARC COUNTRIES INSTITUTED BY CANCER AID SOCIETY
Cancer Aid Society invites Application / Nomination from Doctors,
Paramedical Staff and Social Workers with demonstrative leadership in the field
of Palliative Care for the Cancer Patients from India, Bangladesh, Bhutan,
Nepal, Pakistan, Afghanistan and Sri Lanka.
HOW TO APPLY
Apply through online form
along with the references and verifiable evidences to be sent in one email to
[mailto:palliativecare@xxxxxxxxxxxxxxxxxxxxxxxxx] (media coverage/ pictures) in
order to identify the leadership of the applicant/ nominee.
Last date of Application is 24.00 Hrs. (India Time) of 15th October
Palliative Care Award 2017 of Rs. 1,00,000/- will be presented at the
25th International Conference of the Indian Association of Palliative Care
[http://www.iapcon2018.com/] in February 2018 to be held at AIIMS New Delhi
Cancer Aid Society [http://canceraidsocietyindia.org/] is an NGO in
Special Consultative Status with United Nations ECOSOC, working across India
since 1987 on Palliative Care, Advocacy, Prevention and Control of Tobacco,
Cancer and other Non Communicable Diseases.
VACANCY: PROJECT MANAGER AT VISHAKHAPATNAM, AP
Pallium India is looking for a committed, creative professional
passionate about making a lasting difference in the health care of people.
The candidate will be based out of Vishakhapatnam, AP, and is expected
to travel across AP and to other parts of India as and when required.
PROJECT POSITION: Project Manager
LOCATION: Vishakhapatnam, Andhra Pradesh
EDUCATION: University degree in public health or social work or public policy
EXPERIENCE: Minimum two years of proven professional experience in health care
LANGUAGES: Fluency in Telugu and English
WORK TYPE: Fixed term staff
Under the guidance and supervision of project heads, the job
* Facilitating the scaling up of palliative care across the state of
Andhra Pradesh and other states of India
* Advocacy, networking and partnership building targeting the
objectives of the project
* Documentation and reporting as per the project requirement
Interested candidates can send detailed and updated CV to
_For more vacancies, visit our Careers
IAHPC ANNOUNCES TRAVELING SCHOLARSHIPS TO THE 2018 ALPC CONGRESS, EAPC RESEARCH
CONGRESS AND ICPCN CONFERENCE
The International Association for Hospice and Palliative Care (IAHPC)
has announced the following scholarships:
* Twenty (20) scholarships to support the travel of palliative care
workers to attend the IX Congreso Latinoamericano de Cuidados Paliativos de la
Asociación Latinoamericana de Cuidados Paliativos (ALCP)
[http://cuidadospaliativos.org/ix-congreso/inicio/] in Santiago, Chile on April
11-14, 2018. DEADLINE TO APPLY IS DECEMBER 15, 2017. Results will be announced
December 29, 2017.
* Five (5) scholarships to support the travel of palliative care
workers to attend the 10th World Research Congress of the EAPC
[http://www.eapcnet.eu/research2018/] in Bern, Switzerland on May 23-26, 2018.
DEADLINE TO APPLY IS JANUARY 20, 2018. Results will be announced February 15,
* Ten (10) scholarships to support the travel of palliative care
workers to attend the 3rd ICPCN Conference
[http://www.icpcnconference.org/en/home/] in Durban, South Africa on May 30 –
June 2, 2018. DEADLINE TO APPLY IS JANUARY 31, 2018. Results will be announced
early March 2018.
In order to apply for a traveling scholarship, applicants must meet the
* Have not received grants from IAHPC in the past 3 years
* Be current IAHPC members. If you wish to apply and are not an IAHPC
member, you may join by clicking here [https://hospicecare.com/join-iahpc/] .
Preference will be given to applicants:
* who have been IAHPC active members for two or more consecutive years.
* whose institution is an IAHPC active member
* who are living in Lower, Lower-Middle and Upper-Middle income
categories as per the World Bank income classification data.
* who are dedicated full-time to palliative care in their current work.
* graduated less than 10 years ago from university.
* who have an accepted abstract for poster / oral presentation. Proof
of acceptance is required.
* who describe in their applications long term goals which lead to
improvements in any or all of the following areas: service provision;
education; availability of and access to medicines; and public policy.
This program offers funding for travel and registration only,
applicants will need to secure funding from other sources to cover additional
More detailed information about the application process and the online
form are available at the IAHPC website
For information on how to apply please contact Genevieve Napier, IAHPC
Manager of Programs and Projects at gnapier@xxxxxxxxx
ISOLATION, LONELINESS AND DEPRESSION
A new Singapore study
has shown that social isolation and loneliness were closely associated with
depressive symptoms in adults. Those who were lonely were more likely to be
divorced, unemployed, widowed, have nonmental chronic conditions or previous
depression. Loneliness was also associated with depressive symptoms independent
of any social isolation indicator.
“The results of the study establish a significant and unique
association of different social isolation indicators and loneliness with
depressive symptoms in community-dwelling adults aged 21 and above,” the
researchers wrote. The study drew data from the Population Health Index Survey
targeted towards community-dwelling adults in Central Singapore. A total of
1,942 individuals participated in the survey.
Read the complete report here: _Social isolation, loneliness tied to
depressive symptoms in adults_
PALLIATIVE CARE IN DIABETES
For anyone who associated with palliative care only in cancer: please
see the article by thediabetescouncil.com [https://www.thediabetescouncil.com/]
You may not only be surprised to see that diabetes accounts for NEARLY 5% OF
PALLIATIVE CARE NEEDS globally; but also to learn that cancer forms only about
one third of all. See
Thank you, Jasmine Williams, for sharing it with us.
VIDEO OF THE MONTH: DEATH IS INEVITABLE, BUT A BAD DEATH IS NOT
The Economist: Death is inevitable, but a bad death is not
DONATE TO PALLIUM INDIA [HTTP://PALLIUMINDIA.ORG/DONATE/]
[http://palliumindia.org/donate] The money you give will pay for
essential free medicines for the poor, for their travel to the clinic or for
schooling of their children, or other forms of care. Please give whatever you
can. No amount is too small.
To donate, please visit: palliumindia.org/donate
Write to us: info@xxxxxxxxxxxxxxxx [mailto:info@xxxxxxxxxxxxxxxx] /
UPCOMING EVENTS [HTTP://PALLIUMINDIA.ORG/COURSES]
OCT 14, 2017: International conference on Peri-operative Cancer Care at
Jawaharlal Nehru Auditorium, AIIMS, New Delhi. Register:
OCT 23, 2017: 10 days Foundation course in Palliative Medicine for
doctors in Trivandrum, Kerala. Contact: info@xxxxxxxxxxxxxxxx
[http://palliumindia.org/courses/foundation/] Last date to Apply: Oct 10
NOV 6, 2017: One month certificate course in Pain and Palliative
Medicine for Doctors, Nurses, Social Workers and Volunteers in Hyderabad,
Telengana. Contact: mnj.palliative@xxxxxxxxx [mailto:mnj.palliative@xxxxxxxxx]
NOV 7, 2017: Six weeks certificate course in Palliative Medicine &
Palliative Nursing (CCPPM, CCPN) in Trivandrum, Kerala. Register for CCPPM:
Register for CCPN: http://palliumindia.org/courses/ccpn/
[http://palliumindia.org/courses/ccpn/] Contact: info@xxxxxxxxxxxxxxxx
[mailto:info@xxxxxxxxxxxxxxxx] Last date to Apply: Oct 25
NOV 18-19, 2017: Advanced Therapeutics Course for Palliative Medicine
at Karunashraya, Bangalore. Contact: jeremy.johnson@xxxxxxxxxxxxxxxx or
FEB 23, 2018: IAPCON 2018, Jawaharlal Auditorium, AIIMS, New Delhi.
Visit: http://www.iapcon2018.com/ [http://www.iapcon2018.com/]
FEB 24, 2018: 8th Congress on PAIN – South Asian Regional Pain Society.
Last date to register: 1 January, 2018. Contact: bssp1997@xxxxxxxxx
[mailto:bssp1997@xxxxxxxxx] Website: www.bsspbd.com [http://www.bsspbd.com]
For details on these programs, contact: info@xxxxxxxxxxxxxxxx
[mailto:info@xxxxxxxxxxxxxxxx] . Find out more at: palliumindia.org/courses
JOIN OUR FACEBOOK PAGE [HTTPS://WWW.FACEBOOK.COM/PALLIUMINDIA]
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articles related to palliative care from around the world.
CLICK HERE TO LIKE OUR PAGE [HTTPS://WWW.FACEBOOK.COM/PALLIUMINDIA] !
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PALLIATIVE CARE INFORMATION CENTRE [HTTP://PALLIUMINDIA.ORG/INFO-CENTRE]
Contact Pallium India’s Information Centre (9 am to 12 noon) for
information related to palliative care and about establishments where such
facilities are available in India. Telephone: +91-9746745497 or E-mail:
Address: Pallium India, Arumana Hospital, Perunthanni, Trivandrum
For more details, please visit: http://palliumindia.org/info-centre/
Fold your hands and pay obeisance to this man; he has more God in him
than in 99.99% people.
MEET MR M RADHAKRISHNA PILLAI.
For the last 19 years he has been feeding the inmates in the rather
well-known ward 9 of general hospital, Trivandrum. This ward houses destitutes
with health issues.
There was a time when many of them have starved but for this man’s
The whole family is involved; his daughter does most of the cooking.
PALLIUM INDIA WAS PRIVILEGED TO TAKE PART IN THEIR ANNIVERSARY CELEBRATIONS,