Pallium India Newsletter: July 2010

  • From: Pallium India Newsletter <info@xxxxxxxxxxxxxxxx>
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  • Date: Wed, 21 Jul 2010 17:13:23 +0000

Pallium India
Care Beyond Cure





SPOTLIGHT…

"

        _Being a senior doctor and medical Professor, everyone treated me well 
and with deference during my cancer treatment. _ 

        _But I still did not get relief from pain. My bone pain induced by 
radiation was agonizing. I cannot think of a worse experience._ 

        _ __It was as if someone was driving a nail into my leg. Not a small 
nail either. It simply went on and on. I was told that no relief was possible!_ 

        _ IF I, A PRIVILEGED DOCTOR-PATIENT HAD THIS SORT OF EXPERIENCE, WHAT 
WOULD BE THE FATE OF THOSE PATIENTS WHO ARE NOT SO FORTUNATE TO HAVE SUCH 
PRIVILEGES?_" 

        This was narrated by one among the 15 lady doctors, all retired 
Professors from Trivandrum Medical College, who get together every month for a 
re-union. They call themselves, AGING GRACEFULLY WOMEN’S GROUP (AGWG). 

        Thanks to the initiative of our well-wisher, Professor Sara Varghese, 
Pallium India had the privilege of addressing the group on 10 July 2010, during 
their get-together at the residence of Dr G Santhakumari, former Director of 
Medical Education of Kerala. They discussed palliative care and shared their 
experiences. We left them in an introspective mood, asking themselves an 
important question, “What can we do to help; to make a difference?” 

        SOME OF THEM ARE ALREADY DONORS OF PALLIUM INDIA. THANK YOU FOR THE 
SUPPORT AND FOR YOUR INTEREST, AGWG! 

STAFF CLUB…

         

PROBUPHINE PATENT FOR THE TREATMENT OF OPIATE ADDICTION

        United States Patent and Trademark Organization (USPTO) has granted a 
patent for a method for treating opiate addiction with a subcutaneously 
implanted device comprising of buprenorphine and ethylene vinyl acetate, a 
biocompatible copolymer that releases buprenorphine continuously for extended 
periods of time ( PBR 
[http://drugdelivery.pharmaceutical-business-review.com/news/titan_pharma_obtains_probuphine_patent_from_uspto_100617/]
 17/6/10). 

        Probuphine is designed to deliver six months of continuous, therapeutic 
levels of buprenorphine following a single treatment. 

        EVERY NEW DISCOVERY SHOULD EXCITE US; BUT ACTUALLY MANY OF US FROM THE 
DEVELOPING WORLD ARE SCARED OF EACH AND EVERY NEW ONE. IS THIS ANOTHER POSSIBLY 
EXPENSIVE TREATMENT MODALITY TO BURDEN OUR POOR PEOPLE? PLEASE ALLOW US TO KEEP 
PRAYING FOR METHADONE. 

ACCESS CINAHL WITH IAHPC MEMBERSHIP

         [HTTP://WWW.HOSPICECARE.COM/] LILIANA DE LIMA, EXECUTIVE DIRECTOR 
OF INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE ( IAHPC 
[HTTP://WWW.HOSPICECARE.COM/] ) SENT US THIS NOTICE ABOUT AN INVALUABLE BENEFIT 
OF IAHPC MEMBERSHIP, ACCESS TO THE CUMULATIVE INDEX TO NURSING AND ALLIED 
HEALTH LITERATURE: "

        _We are happy to inform you that IAHPC has acquired from EBSCO the 
right to access the CINAHL [http://www.ebscohost.com/cinahl/] database for our 
members. _ 

        _The CINAHL database offers online access to hundreds of citations and 
also full text access to several palliative care journals._" 

        To become a member of IAHPC, please visit www.hospicecare.com 
[http://www.hospicecare.com/] 

QUALITY OF DEATH: RANKING END-OF-LIFE CARE ACROSS THE WORLD

         
[http://palliumindia.org/2010/07/quality-of-death-ranking-end-of-life-care-across-the-world/]
 

        The Economic Intelligence Unit of the “Economist” and Lien Foundation 
in Singapore joined hands to produce a white paper on Quality of Death that was 
published on 14 July 2010. A poor quality of death means intense suffering for 
the dying person and his family and the situation can improve only with 
improved access to palliative care services. 

        The white paper lists 40 countries and ranks them according to Quality 
of Death. UK ranks first, and sadly, India comes at the very bottom as the 
40th, next to Uganda. As a redeeming feature, the exceptional performance of 
Kerala in this field is highlighted in the paper.
FOR THE ENTIRE REPORT, PLEASE VISIT OUR BLOG… 
[HTTP://PALLIUMINDIA.ORG/2010/07/QUALITY-OF-DEATH-RANKING-END-OF-LIFE-CARE-ACROSS-THE-WORLD/]
 

RESPONSES…

         [http://palliumindia.org/2010/07/a-voice-from-the-kyrgyz-republic/] 

A VOICE FROM THE KYRGYZ REPUBLIC

        It was deeply satisfying to come across DR NARGIZA DADAHANOVA‘s kind 
words of appreciation in our blog, about the work we are doing. 

        She has shared with us her experiences in the area of cancer treatment 
in her country. We would like our readers to have an inside view of the state 
of affairs in palliative care and treatment in a resource poor country like 
hers, the Kyrgyz Republic.  WE INVITE YOU TO OUR BLOG TO READ ABOUT HER 
EXPERIENCES…. 
[http://palliumindia.org/2010/07/a-voice-from-the-kyrgyz-republic/] 

        NARGIZA, WE ARE GLAD THAT OUR BLOG REACHED YOU AND INSPIRED YOU TO 
SHARE YOUR EXPERIENCE WITH US. THANK YOU! 

        We invite our readers in similar circumstances to use this as a 
platform for showcasing their problems and solutions so that every one can 
benefit from the fount of collective experience. Contact us via the website… 
[http://palliumindia.org/contact] 

EVENTS & EXPERIENCES…

         [http://palliumindia.org/usa] 

PALLIUM INDIA-USA  EVENT: SEVATHON

         Pallium India-USA [http://palliumindia.org/usa] took part in the 
SEVATHON: the largest community-wide walkathon and awareness platform dedicated 
to “Seva” or “Service” and to local non-profits who share this principle. 

        Pallium India-USA envisions an India where every citizen will receive 
palliative care services. Pallium India-USA seeks to support the work of 
Pallium India to achieve the Vision by: 
        * Creating awareness of the serious absence of these services in India 
in the Asian Indian population in USA, many of whom have family members 
residing in India. 
        * By building a community of people to support the work of Pallium 
India. 
        * Educate the Asian Indian population about Advance Care Planning, and 
decisions that they might need to make for themselves and their families here 
in USA when they are unable to speak for themselves. 

WE APPRECIATE THE EFFORTS OF DR JERINA KAPOOR [HTTP://PALLIUMINDIA.ORG/USA] WHO 
HAS INITIATED THIS VENTURE AND OUR WELL-WISHERS IN THE USA. FOR MORE DETAILS, 
VISIT OUR WEBSITE.

EMMANUEL HOSPITAL ASSOCIATION STARTS PALLIATIVE CARE ACTIVITY

         [http://www.eha-health.org/] DR ANN THYLE, WHO DIRECTS EMMANUEL 
HOSPITAL ASSOCIATION [http://www.eha-health.org/] ’S PALLIATIVE CARE PROGRAM 
WRITES TO SAY THAT EHA HAS FORMALLY STARTED ITS ACTIVITIES AT LALITPUR 
[http://www.eha-health.org/eha-in-up/harriet] . 

        Operating since mid-March, the project is run by Leela Pradhan, an 
experienced community nurse, as Home Care Coordinator and Carol Motuz as 
Administration and Training Coordinator. 

        Lalitpur is in Uttar Pradesh, the most populous state in 
India. It houses 2.9% of the world’s population (16% of India’s population). It 
has negligible palliative care. 

        We are glad to report that Pallium India’s collaborative project with 
SGPGIMS [http://www.sgpgi.ac.in/] in Lucknow- Pallcare Project 
[http://palliumindia.org/2010/05/lucknow-sgpgims-starts-home-visits/] , has 
taken off recently. 

        IT IS INDEED HEARTENING TO SEE THE PROGRESS IN THE STATE. 
CONGRATULATIONS AND BEST WISHES, DR ANN THYLE AND TEAM! 

PALLIATIVE CARE UPDATES FROM RISHIKESH

" 

_“TRAIN ME WELL, __I HAVE IMPORTANT WORK TO DO WHEN I GET BACK TO RISHIKESH”_ – 
SICILY SEBASTIAN, WHEN SHE JOINED TIPS FOR THE SIX WEEK  CERTIFICATE COURSE IN 
PALLIATIVE NURSING (CCPN) [HTTP://PALLIUMINDIA.ORG/COURSES/CCPN/] 

" 

        We were touched by her commitment and enthusiasm. 

         

        Sicily Sebastian comes from Rishikesh in Uttarakhand, a state having 
very little palliative care. Ganga Prem Hospice 
[http://www.gangapremhospice.org/] , a new venture, promises some hope of 
solace to the suffering. 

        Currently, the Medical Director Dr A.K.Dewan, an oncologist from the 
Rajiv Gandhi Cancer Institute [http://www.rgci.org/] in New Delhi, travels to 
Rishikesh, 227 kms away, every month, to help with the efforts.  Indian 
American Cancer Association [http://www.iacaweb.com/] (IACA) is supporting this 
venture – one of the several projects that IACA is undertaking in India. 

        BEST WISHES, SICILY, DR DEWAN, EVERY ONE AT GANGA PREM HOSPICE AND 
IACA. PALLIUM INDIA IS PROUD TO BE ASSOCIATED WITH YOU! 

TOOLKIT TRAINING PROGRAMME AT LUCKNOW

        A Palliative Care Toolkit Training Programme was conducted at the 
Sanjay Gandhi Post Graduate Institute of Medical Sciences between 21st and 25th 
June 2010. 

         

        It was led by Dr Mhoira Leng 
[http://palliumindia.org/2010/07/dr-mhoira-leng%e2%80%99s-experiences-in-mizoram/]
 , the director of the international organisation Cairdeas International 
[http://www.cairdeas.org.uk/] and the palliative care team at SGPGI 
[http://www.sgpgi.ac.in/] consisting of Dr Shakeel Ahmad, Dr Sanjay Dhiraaj and 
palliative care nurse Alice among others. The group also had interactive 
sessions with medical personnel from nearby medical colleges. 

        Around 20 people were trained in 5 days and more than 40 were 
sensitised to the compelling need for palliative care services in the region. 
Significant coverage in the media ensured that more and more people who need 
such services but had no prior knowledge of this form of treatment will now be 
able to access it. 

        WE ARE ALSO HAPPY THAT THE TEAM HAS BEEN ABLE TO INCREASE THEIR HOME 
CARE SERVICES IN THE LAST FEW MONTHS. 

DR MHOIRA LENG’S EXPERIENCES IN MIZORAM

        As a continuation of PALLIUM INDIA‘s Pallcare Project 
[http://palliumindia.org/projects/pallcare/] in Lucknow, Dr Mhoira Leng 
[http://www.mhoiraleng.blogspot.com/] , the director of the international 
organization called Cairdeas International [http://www.cairdeas.org.uk/] has 
been supporting us by mentoring in Mizoram and Lucknow. 

        DR LENG SHARES HER NEW AND EXCITING EXPERIENCES IN MIZORAM WHICH YOU 
CAN READ AT OUR BLOG… 
[HTTP://PALLIUMINDIA.ORG/2010/07/DR-MHOIRA-LENG%E2%80%99S-EXPERIENCES-IN-MIZORAM/]
 

DR SHASHI THAROOR VISITS TIPS

         [http://palliumindia.org/2010/06/shashi-tharoor-visits-tips/] 

        Former Under-Secretary General of United Nations, author and Member of 
Indian Parliament Mr Shashi Tharoor visited TIPS on the 24th of May 2010. 

        He took keen interest in the activities of Pallium India and visited 
patients under treatment and families. He has promised his support to the 
Palliative Care movement in India. 

        STARRY-EYED FANS OF SHASHI THAROOR CAN GET AN EXCITING ACCOUNT OF HIS 
VISIT TO TRIVANDRUM FROM HIS BLOG, “AFTER THE STORM.” 
[http://palliumindia.org/2010/06/shashi-tharoor-visits-tips/] 

KOLLAM ROTARY CLUB TAKES ON PALLIATIVE CARE

         

        KOLLAM WEST-END ROTARY CLUB’s new president, DR RIYAZ AHAMMED assumed 
chair on 3 July 2010 with an announcement that his club would be taking up 
palliative care as its major social responsibility this year. 

        CONGRATULATIONS, DR RIYAZ AND MEMBERS OF KOLLAM WEST END ROTARY, AND 
THANK YOU FOR YOUR SUPPORT TO PALLIUM INDIA. 

        By the way, Kollam (nicknamed Quilon by the British) is an attractive 
tourist spot with its beautiful backwaters, about 70 Kilometers north of 
Trivandrum, the capital of Kerala. 

TRIVANDRUM EXHIBITION BY PALLIATIVE CARE PATIENTS

         

        A WONDERFUL EVENT FOR THOSE WHO CAN GET TO TRIVANDRUM YMCA ON SATURDAY 
24TH JULY: "

        On Saturday 24th July 2010, you MUST drop in at YMCA 
[http://ymcatrivandrum.org/] (Behind Govt Secretariat) between 9AM and 6PM to 
see what a group of special people – palliative care patients who are bed-bound 
or wheel-chair-bound, have created – paintings, dolls, utility items for the 
home and many things more! 

        COME AND SEE THE EXHIBITS. YOUR PRESENCE ITSELF WILL BE AN 
ENCOURAGEMENT TO THE REMARKABLE PEOPLE WHO HAVE CREATED THEM. IF YOU DO WANT TO 
BUY SOMETHING AND TAKE IT HOME, WE SHALL CERTAINLY NOT OBJECT!" 

        OUR CONGRATULATIONS TO DR SHIBU ,OUR VOLUNTEER PHYSICAL MEDICINE 
SPECIALIST (WHO ALSO THOUGHT UP THE IDEA) AND MR SUNAJ, OUR PHYSIOTHERAPIST, 
FOR MAKING THIS HAPPEN AND FOR ENCOURAGING THE CREATIVITY OF THESE PEOPLE. SEE 
YOU ON THE 24TH! 

WORLD NEWS…

VATICAN: “NEARLY 2 BILLION PEOPLE WITHOUT ACCESS TO BASIC MEDICINE”

         [http://www.flickr.com/photos/32126508@N00/2934446001/] 

        Archbishop Silvano M. Tomasi, Permanent Observer of the Holy See to the 
Office of the United Nations and Other International Organizations in Geneva, 
presented a speech at the UN Human Rights Council. 

        He focused largely on the need to ensure universal access to medicines. 
 He highlighted the role of poverty in developing countries, and noted that 
children are particularly deprived of access to medicines. "

        _The Catholic Church provides a major contribution to health care in 
all parts of the world – through local churches, religious institutions and 
private initiatives, which act on their own responsibility and in the respect 
of the law of each country – including the promotion of 5,378 hospitals, 18,088 
dispensaries and clinics, 521 leprosaria, and 15,448 homes for the aged, the 
chronically ill, or disabled people._" 

         READ MORE AT FIDES.ORG… 
[HTTP://WWW.FIDES.ORG/AREE/NEWS/NEWSDET.PHP?IDNEWS=26827&LAN=ENG] 

MORPHINE REMAINS SCARCE FOR PAIN SUFFERERS WORLD WIDE

        MARTHA ANN OVERLAND REPORTS FOR 
[http://www.time.com/time/world/article/0,8599,1993375,00.html] TIME MAGAZINE 
[http://www.time.com/time/world/article/0,8599,1993375,00.html] FROM HANOI: "

         

        AFTER THE HOSPITAL SENT NGUYEN VAN DUNG HOME TO DIE, HIS FAMILY WATCHED 
HELPLESSLY AS HE WASTED AWAY FROM COMPLICATIONS DUE TO AIDS. AND HE DID NOT GO 
GENTLY. “HE WAS IN SUCH PAIN,” SAYS DUNG’S 73-YEAR-OLD MOTHER. “IT WAS LIKE 
SEEING HIM ON FIRE.” 

        Haunted by his screams, Dung’s sister bought him heroin to ease his 
pain. Street-grade heroin is hardly an ideal medical choice; it is also 
illegal. Last month, shortly after Dung’s death, a judge in Nha Trang sentenced 
his sister to three years in prison. Drug possession — “for any reason,” 
explained the judge — is against the law. 

        Whether you will have access to pain treatment depends largely upon 
where you live. Africa, which has most of the world’s AIDS victims, is a 
painkiller wasteland. In India, more than a million cancer and AIDS sufferers 
die each year in extreme pain as cumbersome regulations and paperwork make it 
nearly impossible to get prescription painkillers. (India produces much of the 
world’s legal opium, yet nearly all of it is exported to Western pharmaceutical 
companies.) 

READ THE REST OF THIS EXCELLENT ARTICLE AT TIME.COM… 
[HTTP://WWW.TIME.COM/TIME/WORLD/ARTICLE/0,8599,1993375,00.HTML] 

" 

STUDENT’S CORNER…

         

        THE PALLIATIVE CARE TRAINING CENTER AT MNJ INSTITUTE OF ONCOLOGY ( 
MNJIO [HTTP://MNJIO.AP.NIC.IN/] ) WHICH WAS STARTED IN 2006 AS A JOINT PROJECT 
BETWEEN PALLIUM INDIA, MNJIO AND CANADA’S INTERNATIONAL NETWORK OF CANCER 
TREATMENT & RESEARCH ( INCTR [HTTP://WWW.INCTR.ORG/] ). 

        THEY WILL BE HOLDING A “ONE MONTH CERTIFICATE COURSE IN PAIN & 
PALLIATIVE CARE FOR DOCTORS, NURSES, SOCIAL WORKERS & VOLUNTEERS“. 
INTERNATIONALLY RENOWNED FACULTY LIKE DR STUART BROWN, Director, PAX PROGRAM 
[http://www.inctr.org/projects/palliative.shtml] for INCTR will be the external 
faculty for the course. The course will held in Hyderabad at MNJIO, starting on 
August 2nd and finish on August 28th, 2010. 

        All details of  the course including Objectives, Learning Process, 
Schedule, Fees and Application Form are available in  PDF .pdf 
[http://palliumindia.org/cms/wp-content/uploads/2010/07/mnj-onemonth-courseappl.pdf]
 or  Word .doc 
[http://palliumindia.org/cms/wp-content/uploads/2010/07/mnj-onemonth-courseappl.doc]
 

        For details of Pallium India’s other courses, please visit: 
palliumindia.org/courses [http://palliumindia.org/courses] 

PARTING SHOT…

        Dr B is an Indian doctor working abroad. He has been supporting Pallium 
India in numerous ways, including reimbursing the salary of two nurses for 
quite some time now. He rang up recently and informed us of his wish to provide 
for the salary of one more nurse, so that our service could improve. We asked 
him if we might acknowledge his contribution in this newsletter. He declined; 
he wished to stay anonymous. He went on to add, "

        _“My greatest pleasure is the undeterred effort that you have proven 
capable of, and if one hopeless soul smiles when you come on the horizon, the 
job is done. Help me find more opportunities for commitment so that I can 
contribute what little I can towards your vision!!”_" 

_YOU TOUCH OUR HEARTS, DR B. THANK YOU._

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