Care Beyond Cure
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! February 2019 !
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February 1, 2019
WHO CANCER PAIN GUIDELINES 2019
Ahead of world cancer day (which falls on 4 February 2019), the World
Health Organization has come out with new evidence-based guidelines for the
management of cancer pain
. Please click here to download
the guidelines in pdf format.
Don’t have the time to go through the whole thing? Take a peek at the
as a PowerPoint presentation.
Pallium India’s WHO Collaborating Centre for Training and Policy on
Access to Pain Relief is proud to have been a part of the process. Dr Varghese
Cherian of WHO, Geneva, deserves our profound thanks.
_(Edit: In an earlier version of the blog, we had mistakenly given Feb
4 as world palliative care day. Feb 4, 2019 is world cancer day. We regret the
KERALA AND THE ASTANA DECLARATION
“Kerala tried to provide [primary care services as described by the
Astana declaration] and more with mixed results. These services cannot be
provided without adequate human resources. It is nearly impossible to provide
them with the current Indian norm of one primary care team for a population of
30,000. Kerala tried to reduce the target population to 10,000. Even the
reduced target turned out to be too high to be effective,” writes Shri Rajeev
Sadanandan IAS, Additional Chief Secretary, MoH&FW, Kerala, in this Op Ed
titled “ Lessons from Kerala
“, published in _The Hindu_ on 3 Jan 2019. Shri Rajeev Sadanandan was also the
keynote speaker at a recent workshop on “ Palliative Care & Universal Health
Coverage in Kerala
“, organized in Trivandrum by Pallium India and Govt Medical College, to
commemorate Universal Health Coverage (UHC) day.
We agree; Kerala could indeed provide good primary care, if only each
primary health care team was expected to perform a job that it could
realistically handle. Currently, one team has to care for a population of at
least 10,000. More than 3,000 is not realistic to achieve. Obviously, the
manpower needs would be huge.
Is this a realistic dream? We would say: Yes – if as a nation, we
decide to give due importance to health. Any civilised country allocates at
least 5% of its GDP to health, whereas India spends an abysmal 1.25%.
While we are busy making money, will we not end up creating a society
with the majority of its members in ill health?
AN ENTIRE EDITION OF AN INDIAN STUDENT MAGAZINE DEDICATED TO PALLIATIVE CARE
_Vijesh V.V., Project Officer at Pallium India, writes:_
[http://www.lexiconin.com/latest-edition/] I have seen student
magazines dedicated to arts, sports, love and often topics of academic
interest. But a student magazine on palliative care is the last thing I
expected to see in India in this decade. I am writing to let my fellow
palliative care enthusiasts know that LEXICON
[http://www.lexiconin.com/latest-edition/] , an online quarterly medical
magazine and blog, born in India and operated by medical and paramedical
students, has published their 24th edition, the latest one carrying special
theme feature on palliative care titled ‘_THE CLOAK THAT MATTERS_’. Lexicon has
a consistent readership base of over 25,000 across 250 medical colleges in
India and has an international following as well. Integration of palliative
care into undergraduate medical education being one of the key strategies of
palliative care advocacy, it is indeed an immensely inspiring and encouraging
development worth appreciating.
This time the edition is a 76 pages’ read organized judiciously under
16 headings. The edition features articles, initiatives, interviews and
photographs. ‘The cloak that matters’ discusses in detail the history of
palliative medicine, dignity, empathy, ethics, pain, suffering, spirituality,
research, technology and career options in palliative care. A core team
comprising of Dr. Amogh Natkarni, Dr. Shreeya Mashelkar, Dr. Anushka Reddy, Dr.
Madhura Mandik, Dr. Tuhina Mishra, Dr. Poonam Nayak and Nisarg Kahane
spearheaded this initiative. Contributors to the 24th edition include
palliative care physicians, general and specialist practitioners, academicians,
social worker, a priest and medical students. This is a simple yet
thought-provoking read and editors have taken special care to make sure that
the content is appealing to the primary readership i.e. students.
When tasked with preparing a summary of this edition, looking at the
number of pages and considering a strict timeline, my initial intention was to
skim through it and prepare a superficial report. But the novelty and depth of
the content made me read the whole document in one sitting. I hope those who
are reading this blog post will find time to go through the whole magazine and
recommend others to do the same.
The first chapter is on the evolution of palliative care in India. Dr.
Vishnu Priya Basham, a specialist general practitioner in Australia eloquently
lists the ‘story’ of evolution. Next is a gripping read on the experiences of a
young doctor that made her realise where she stood in terms of being a better
physician and catering to the needs of patients, in the context of palliative
care. She talks about the responsibilities one assumes when he/she chooses to
sit in the ‘big black doctor’s chair’.
“When I think of the question of ‘empathy’, I like to think of primeval
man; a frail and unprotected creature that lacked the physical skill and
ability of the other species that cohabited its world. A creature that used
cognitive processing as its secret weapon to survive on a hostile planet; a
species that changed the contours of nature to reduce its disadvantages vis a
vis predators; individuals that had to band together in groups to protect
themselves. For primeval man was social by design, there was no other way for
him to ensure his survival”, writes Dr. Abhinav Chichra. In this article; one
of my favourites, the author delves deep into the intricacies of empathy and
social connect and argues that they are rooted in biological processes.
Dr Anindita Das, a radiation oncologist, poignantly narrates the pain
of a palliative care physician:
_“I am the gloved, aproned figure._
_Today, I do not have the gloves, the apron._
_But I am bound to keep this invisible mask. I am the Doctor._
_And the Doctor cannot cry”._
Suicide incidence and ideation is rather common among people suffering
from life threatening and life limiting diseases. Dr. Shivani Vakilwala, in her
article titled ‘choosing pain free life over death’ lists research findings
substantiating the achievement of palliative care in reducing suicide
incidence. Another interesting aspect of this article is a detailed account of
challenges faced by care givers.
Rev. Dr. Arul Dhas, reader, Chaplaincy, CMC-Vellore talks about life,
pain, meaning, connectedness, forgiveness and hope in the context of extreme
suffering. Another brilliant article written by Dr. Sushma Sivananda, resident
physician at National Cancer Centre, Singapore explains the ethical issues
involved in palliative care.
A highlight of the 24th edition of Lexicon are the interviews given by
three stalwarts of palliative care; Dr. M R Rajagopal, Dr. Reena George and Dr.
Robert Twycross. The well thought-out and carefully crafted interviews deal
with education and training in palliative care, pain, death, dignity, empathy
among physicians and newer generation and healthcare expenditure. Through
frequently discussed questions, interviewees offer fresh perspective to the
readers. One chapter in the magazine is dedicated to Pallium India. Ms.
Chaitalee Ghosalkar, in her article titled ‘Because the patient matters –
Pallium India, Kerala’, gives a detailed account of the organization and its
Tech-X, another favourite of mine, written by Dr Amogh Nadkarni from
Grant Government Medical College, Mumbai, is about the application of new
clinical technology in palliative care.
Please do read the magazine. The 24th edition of Lexicon is available
for free download at http://lexiconin.com/latest-edition
PROGRESS IN ANDHRA PRADESH
Pallium India has been working closely with Age Care Foundation in
Vishakhapatnam to advance palliative care in the state of Andhra Pradesh in
South India. Dr Raju, Dr Vidya Vishwanath and their teams are doing a great job
Our team had three delightful days in Vishakhapatnam and Vijayanagaram.
The activities included several strategy meetings in various
institutions, three screenings of the Hippocratic (one organised by Age Care
Foundation, one in GITAM University and one organised by Dr Murthy, Dr Narendra
and their teams in Vijayanagaram), and an absolutely delightful interaction
with volunteers of Age Care Foundation.
One of the highlights of the tour was the inauguration of a new
palliative care service in Vijayanagaram. We have high hopes for the future.
_Read more about recent developments in Andhra Pradesh:_
_ Andhra Pradesh comes together for palliative care development
_ Significant progress in Andhra Pradesh:
_ Sneha Sandhya Age Care Foundation and an initiative in Andhra Pradesh
GOOD NEWS FROM MAULANA AND THANAL IN LAKSHADWEEP
_(Maulana (in green) with fellow volunteers.)_
Lakshadweep, the group of 36 islands with its exotic and sun-bathed
beaches and lush green landscape, forms a Union Territory of India, off the
Southwest coast of Kerala in the Arabian sea. Geographically isolated from
mainland India, the island had no access to palliative care till Maulana, a man
who could only be described as the essence of goodness, came on the scene. He
visited Pallium India at Trivandrum, formed a registered charitable
organization by name _Thanal_ (meaning Shade), and in a few months, Dr Ali and
Mr Kahfi (a nurse) underwent a six-week course in Pallium India’s Trivandrum
Institute. In a year, we had the first palliative care unit in the island of
Kavarati. And since then it has grown from strength to strength.
A few pieces of good news from Lakshadweep:
• The Lakshadweep administration has given an award of appreciation to
Thanal (purse of Rs 100,000).
• The Lakshadweep Development Corporation Ltd has given a grant of one million
Rupees out of its Corporate Social Responsibility program.
Congratulations, Maulana and team. We shall look forward to hearing
about your participation in the forthcoming Health _Mela_; we understand that
Thanal has been granted a stall there to showcase its work. And Pallium India
is indeed very proud to be your fellow-traveler.
A STEP FORWARD IN UP [HTTPS://PALLIUMINDIA.ORG/2019/01/A-STEP-FORWARD-IN-UP/]
Two doctors and seven nurses from Uttar Pradesh completed a 10 day
foundation course in palliative care with us in Trivandrum in January 2019.
We are particularly grateful to the government of Uttar Pradesh and
Tata trusts for facilitating this initiative.
FULL-FLEDGED PALLIATIVE CARE CENTRE DEDICATED TO PEOPLE IN MYSURU
A comprehensive palliative care centre, established at PKTB Sanatorium
and CD Hospital on K.R.S. Road, was dedicated to the community on Friday.
A joint initiative of Swami Vivekananda Youth Movement (SVYM), an NGO,
and Mysore Medical College and Research Institute (MMCRI), 24×7
institutional-based palliative care services will be available for free to
those suffering from life-limiting diseases and disorders.
A MODEL IN PALLIATIVE CARE
The Kadambur grama panchayat here has set an example of initiating
efficient palliative care for people with terminal illness and their families
as it is the first to start palliative care activities under the Sparsham
project started in Chief Minister Pinarayi Vijayan’s constituency Dharmadam.
Kadambur was declared total palliative-friendly panchayat by Edakkad
block panchayat president M.C. Mohanan on the occasion of a Kerala Palliative
Care Day function held here the other day. The Sparsham project envisages
offering palliative services to people with serious illnesses in the
constituency under the respective local bodies. The project was started in
MORE EVIDENCE AGAINST DICLOFENAC
In 2010, an epoch-making article was published by Fosbol and others, in
the famous medical journal named ‘Circulation’. The article, which reported on
a study conducted on the whole of Danish population over a ten year period,
brought important new information. It brought one of the most popular pain
killers used in the world, Diclofenac, to the dock. The study found that the
use of Diclofenac was associated with five times more risk of heart attack or a
stroke. In short, it caused problems to the heart and to the brain, almost as
much as Rofecoxib, which was banned around fifteen years back.
Following this, we in Pallium India stopped purchasing Diclofenac for
free distribution to patients, and instead started using Ibuprofen, which,
according to the study appeared to be the least harmful among NSAIDs.
It is amazing how long medical practice seems to take to change, even
when evidence is presented. After 9 years following the publication of the
Fosbol study, Diclofenac continues to be one of the most widely used medicines
globally. India is no exception.
More information has now come to light. An article published in the
British Medical Journal of 2018 by Dr Morten Schmidt and others
[https://www.bmj.com/content/362/bmj.k3426] show continuing evidence from a
meta analysis of 252 nationwide studies in Denmark that prove beyond reasonable
doubt the adverse effects of Diclofenac. The authors conclude, Diclofenac poses
a cariovascular health risk, compared with non-use, paracetamol use, and use of
other traditional non steroidal anti inflammatory drugs.
We urge all readers to remember this. We now have more than enough
reason to stop using Diclofenac as the NSAID of choice.
RECOGNITION TO INDIAN JOURNAL OF PALLIATIVE CARE.
Congratulations, Prof Sushma Bhatnagar (editor-in-chief) and Prof
Naveen Salins (editor). Indian Journal of Palliative Care
[http://www.jpalliativecare.com/] (IJPC) got selected in Thomson Reuters ESCI.
The journal will now be available in Web of Science and will get a new logo at
IJPC website soon.
Looking back at the journey from 1994 when Indian Association of
Palliative Care [http://palliativecare.in/] (IAPC) was born, the journal has
been one important organ of the organization which registered a steady growth
to reach the heights that it has attained now. We remember with gratitude each
editor who brought it one level up.
THE BEST GIFT A SOCIAL WORKER CAN GIVE:
_by Ashley Johnson, University of Iowa_
During my first day on home visits we saw ten patients throughout what
I can only describe as the country/jungle/towns. Finding a patient’s home for
the first time would not be an easy feat as I did not see any signs, nor did I
remember to look for such things at the time. On the charts they mention home
location and additional helpful info, but nonetheless it would be a challenge!
For example, after our last home visit of the day trying to get down the hill
all the men were out of the Pallium van trying to coordinate a way for our team
to stay on the road. It is obvious numerous variables are happening to make
sure a home visit happens. That perhaps was one of the first things that
surprised me was the energy it took just getting to patients’ homes. I cannot
quite imagine during monsoon season. Practicing in the US we have primarily
paved roads and access to some degree is available. In my own career the rural
areas I have had difficulty accessing and this made me realize the commitment
health care often provides to its patients whether it be in India or the US.
“YOU HAVE TWO EARS AND ONE MOUTH FOR A REASON.”
_By Caprisse Honsbruch, University of Iowa_
My first home visit was to Palode. My group saw 10 patients with
various conditions. There were people with cancer, amputations, stroke
sequelae, paraplegia, diabetes, hypertension, and asthma. The age range of the
patients were 23-90 years old, and there were 7 men and 3 women.
The experience was not what I was expecting. I was expecting more
medical treatment and interventions, but these visits were more check-ups for
chronic conditions. There were many social and psychospiritual interventions
done, probably because there was a social worker on the team. Some of those
interventions included setting a patient up with a way to support the family by
raising chickens, making sure the patient’s child goes to school, helping a
patient get a disability pension from the government, and taking steps to help
the patient rehabilitate their house. That was really neat for me to see
because that is not something that a pharmacist is usually involved in. It made
me have a greater understanding and respect for what social workers can do. In
the future when I’m hopefully a hospital pharamcist, I will go to the social
worker because they seem to be able to work miracles for patients’ social
_By Rachel Mullin, University of Iowa_
Fuzzy. That was the word I initially thought to use when describing my
jet lag experience. The strange thing was that there were times where I wasn’t
thinking as much as I was going through the motions. I would get lost in a mind
fog and then snap back when I realized someone was saying something to either
the group or (more embarrassingly) to me alone.
This would be a very frustrating occurrence if it happened often and
ultimately, I believe it would affect my social health.
In two days I experienced a slight deterioration in my emotional
health. A year long experience would truly be awful, and may very well affect
all areas of wellness.
“WE ARE HERE TO LEARN”: SUPPORT OUR STUDENTS’ EDUCATION PROGRAM
SUPPORT OUR BUDDING STARS TO HAVE A BETTER FUTURE
_“Cancer is my prison, and intolerable suffering is the sentence on my
The brunt of suffering from life threatening and life limiting diseases
is inflicted not just upon the patient, but on the whole family. Such ordeal
drains the sufferer and the family physically, psychologically, socially,
spiritually and, most importantly, financially.
According to Insurance Regulatory Authority of India, out-of-pocket
expenditure in India is as high as 62%. This means that out of every ₹100 spent
for healthcare, ₹62 is incurred by the people. This burden is compounded in
case of prolonged and serious suffering. Other than the physical and mental
trauma, catastrophic expenditure pushes families into dire poverty which
further deteriorates their condition and drags them deep into the uncertainties
Pallium India works with patients and their families saddled by
protracted suffering. When a family member has serious life threatening
disease, children in the family lose out on care, support and guidance when
they need it the most. Most often families may not be able to continue
supporting their children’s education or children may be forced to forgo their
education in want of looking after their family member. Pallium India provides
educational support for these children.
You can help Pallium India support education of children from
underprivileged families who receive palliative care from us. There are
countless deserving families, but we are able to reach only a fraction of them.
The following are the fee details per student:
Up to 12th std: ₹8000 per year
Degree: ₹10,000 per year
Professional courses: ₹35000 per year
CLICK HERE TO DONATE AND SUPPORT OUR EDUCATION SUPPORT INITIATIVES
PALLIUM INDIA IS LOOKING FOR LAND IN TRIVANDRUM
Pallium India needs 1/2 to 1 acre with good road access in Trivandrum
for its headquarters. Expression of interest invited to donate/long lease.
Please contact: info@xxxxxxxxxxxxxxxx [mailto:info@xxxxxxxxxxxxxxxx] /
9746746528 / 9074680883
Kindly share this among your connections.
HOW TO DIE WELL, ACCORDING TO A PALLIATIVE CARE DOCTOR
_By Mark Starmach_
First, you withdraw.
Life shrinks down to the size of your home, then to your bedroom, then
to your bed—sometimes over months, but more often over weeks.
Old joys stop having the same pull.
You eat less, drink less. Have less interest in speaking.
As your body’s systems start shutting down, you have less and less
You sleep more and more throughout the day.
You start to slip in and out of consciousness and unconsciousness for
longer periods of time.
Staying alive starts to feel like staying awake when you are very
At some point, you can’t hold on any longer.
And then you die.
A calm fall into a cosmic sleep.
26TH IAPC CONFERENCE AT KOCHI – 8, 9, 10 FEB 2019
The 26th International Conference of Indian Association of Palliative
Care – IAPCONKochi2019 [http://www.iapconkochi2019.com/] – will be held on 8TH,
9TH AND 10TH FEBRUARY 2019 (with a Pre-Conference Workshop on 7th February
2019) at AELI HILLS, KEEZHMADU, ALUVA, ERNAKULAM, KERALA, INDIA.
The Conference theme “VOICES IN PALLIATIVE CARE; ENSURING QUALITY,
CREATING SOLUTIONS” centres around the core palliative care attitude of
listening…to those living with serious health-related suffering and their
families, to our communities, to our palliative care teams, to global
palliative care advocates and to our policy and academic leaders.
Visit the conference website: http://www.iapconkochi2019.com/
Follow IAPCONKochi2019 on Facebook:
VACANCY: JUNIOR / SENIOR RESIDENT AT GCRI, AHMEDABAD
[http://gcriindia.org/] Gujarat Cancer & Research Institute
[http://gcriindia.org/] , Ahmedabad, Gujarat invites applications to the posts
of JUNIOR RESIDENT & SENIOR RESIDENT.
NO. OF VACANCIES: 1 each
NATURE OF JOB: Full time Residency
QUALIFICATION: MBBS or Diploma in Clinical branch for Junior Resident,
MD in Clinical branch for Senior Resident
PLACE OF JOB: Dept of Palliative Medicine, Gujarat Cancer & Research
REMUNERATION: Stipend as per Gujarat Govt. At Present – 60000/ P. M.
(JR) , 66000/ P. M. (SR)
REPORTING TO: Dr Priti Sanghavi
JOB DESCRIPTION: All Clinical work as per GCRI Rules
LANGUAGE: English, Hindi
EXPERIENCE: As per prevailing rules of MCI. "
HOW TO APPLY
Interested candidates can send detailed and updated CV to
drpritisanghavi@xxxxxxxxx [mailto:drpritisanghavi@xxxxxxxxx] with email
subject as “Application for the post of Junior Resident / Senior Resident”.
For more details Contact: Dr Priti Sanghavi, drpritisanghavi@xxxxxxxxx
[mailto:drpritisanghavi@xxxxxxxxx] / 9825420656"
‘URGENT NEED’ TO EASE PEOPLE’S FEARS ABOUT DEATH AND DYING, SAYS PALLIATIVE
_by Elena Curti, The Tablet_
There is an urgent need to ease people’s fears about death and dying,
the palliative care pioneer, Kathryn Mannix, told an audience in west London on
Mannix was speaking at the first public event hosted by The Art of
Dying Well, at St Mary’s University’s venue, The Exchange, Twickenham.
“I would love to see an ordinary community palliative care scene in a
soap opera. We can’t keep explaining what happens one family at a time,” she
PALLIUM INDIA INTERACTS IN VISAKHAPATNAM
_by Archit Mehta, The Hindu:_
“If you ever hear a doctor say ‘there is nothing more we can do’ don’t
believe that the patient’s pain can’t be reduced,” says Dr MR Rajagopal,
chairman of Pallium India, an NGO offering palliative care services.
‘GIVE CONTROL OF HEALTHCARE TO COMMUNITY’
Endorsing the declaration of the Global Conference on Primary Health
Care at Astana in Kazakhstan in October last, Dr. Rajagopal, who has been
running palliative care services in Kerala for many years, said healthcare
delivery will not be successful without the participation of the community. He
commended the Mysuru community for coming forward to be part of the palliative
THE OTHER OPIOID CRISIS
_by Niki Seth-Smith, The New Humanist_
While all the attention is on western drug misuse, 80 per cent of the
world’s population goes without sufficient pain relief treatment.
Dr M. R. Rajagopal has been called the “father of palliative care in
India”. He has spent more than two decades doing clinical work and advocacy to
improve care for the dying and those suffering from life-threatening illnesses.
The use of opioids for pain relief is crucial to this work. Yet he has had to
fight to prescribe them, including amending the country’s legislation. “Only a
tiny, tiny minority of people in India have access to pain relief,” he says.
“We have people travelling as far as 300km to get their refill of morphine
prescriptions. There are many states where it is totally unavailable.”
According to Human Rights Watch, 96 per cent of needy patients in India can’t
access opioids. Now Rajagopal is worried that the dependency crisis in the US
will harm the slow progress being made in India.
WHAT’S THE LAST SONG YOU WANT TO HEAR BEFORE YOU DIE?
_By Mark Taubert, The Washington Post_
Windblown rain lashes against the hospital windows in an uncertain
rhythm that seems even more unsteady as I enter the patient’s room near the
nursing station. There is music in this room. Two people sit in chairs by the
bed of a patient, a woman who is lying very still. I recognize the voice of
Elton John coming from a tablet computer on the bedside table. He’s singing
“She liked this,” says the woman’s daughter, smiling and rolling her
eyes, as though to say “Elton John, really?” The dying woman’s husband glances
at his daughter, then at me, and says, “We followed the advice from one of the
nurses to play some music in her last few hours and days.” He smiles slightly,
as if in apology for the jaunty tune ( I never knew me a better time and I
guess I never will ) in this solemn setting.
VIDEO OF THE MONTH: MORPHINE AND ACCESS TO PAIN RELIEF
HEALTH FAIR, SELF CARE FOR PALLIUM INDIA STAFF
_By Ann Broderick_
The concept was simple enough: provide the staff with a measurement of
their height, weight, blood pressure, and if they could manage the needle poke,
a random blood glucose.
The India Winterim Pain and Palliative Care section students
commandeered some tables and blood pressure cuffs. For two Fridays in a row,
the staff seemed to enjoy being the patients after all their care of patients
during the week.
It was a little puzzling for staff at first that we simply wanted to
give them this information for their own health. Each staff member got a card
to put in a purse or wallet.
DONATE TO PALLIUM INDIA [HTTP://PALLIUMINDIA.ORG/DONATE]
The money you give will pay for essential free medicines for the poor,
for their travel to the clinic or for schooling of their children, or other
forms of care.
PLEASE GIVE WHATEVER YOU CAN. NO AMOUNT IS TOO SMALL.
To donate, please visit:
http://palliumindiausa.org/ [http://palliumindiausa.org/] (USA)
Write to us: info@xxxxxxxxxxxxxxxx [mailto:info@xxxxxxxxxxxxxxxx]
Call us: +91-9746745497 (India) / +1-718-273-8597 (USA)
_ All donations to Pallium India are tax deductible._
UPCOMING EVENTS [HTTP://PALLIUMINDIA.ORG/COURSES/]
* FEB 8, 9, 10, 2019: The 26th International Conference of Indian
Association of Palliative Care – IAPCONKochi2019 – will be held on 8th, 9th and
10th February 2019 (with a Pre-Conference Workshop on 7th February 2019) at
AELI Hills, Ernakulam, Kerala, India. Conference website:
* MAR 4, 2019: 6 weeks certificate course in palliative medicine and
nursing (CCPPM, CCPN) at Trivandrum. Register: http://palliumindia.org/courses/
[http://palliumindia.org/courses/] Contact: education@xxxxxxxxxxxxxxxx
[mailto:education@xxxxxxxxxxxxxxxx] / 8589998760. Last date to apply: Feb 18,
* APR 26-28, 2019: Three day volunteer training program in Trivandrum
including home visits. Contact: info@xxxxxxxxxxxxxxxx
* MAY 1, 2019: 10-day Foundation course in palliative medicine, at
Trivandrum. Register: https://palliumindia.org/courses/
[https://palliumindia.org/courses/] Contact: education@xxxxxxxxxxxxxxxx
* JUNE 3, 2019: 6 weeks certificate course in palliative medicine and
nursing (CCPPM, CCPN) at Trivandrum. Register: http://palliumindia.org/courses/
[http://palliumindia.org/courses/] Contact: education@xxxxxxxxxxxxxxxx
[mailto:education@xxxxxxxxxxxxxxxx] / 8589998760.
Have Queries? Contact: info@xxxxxxxxxxxxxxxx
Find out more about our courses at: HTTP://PALLIUMINDIA.ORG/COURSES/
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Contact Pallium India’s Information Centre (9 am to 5 p.m., except on
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Address: Pallium India Trust, VP 80/13, Golden Hills, Venkode P.O., Vattappara,
For more details, please visit: http://palliumindia.org/info-centre/
LOVE MADE VISIBLE! [HTTPS://PALLIUMINDIA.ORG/2019/01/LOVE-MADE-VISIBLE/]
Anne Wallace, a nurse from New Zealand, through a series of
serendipitous events, came to volunteer with Pallium India this January. She
was accompanied by her husband Ian, whose area of expertise lay in forestry and
gardening – on a seemingly different tangent from health care. While it was
pretty clear that Anne had plenty to do – home visits, rounds of the in-patient
unit and other clinical work – where would Ian fit in, we wondered.
But fit in, he did. And how! He came across Shriya (who is interning
with us for a month), tilling the soil in the meagre flowerpots outside with a
little stick she had found lying about. Thrilled at their mutual interest, they
teamed up and decided to put their love for gardening to use.
Their attention was immediately drawn to the rather neglected backyard
– an eyesore cluttered with rubble, weeds and rocky surfaces that immediately
repelled people. Ian drew upon his vast experience, and with Shriya assisting
him, began the rather gargantuan task of clearing up the mess. People began to
gather – first out of curiosity, then to help.
A patient caregiver, Rama, pitched in and helped create a composter.
Other patients and caregivers also came – this unusual activity in a hospital
backyard giving them respite from the wards. A shade tent went up, so that
people wouldn’t be chased back inside by the sharp sun, and potted plants could
This wonderful, spontaneous and unprompted coming together of people
has been steadily transforming the erstwhile dump yard into a place of joy. A
place that Ian and Shriya have named – “The Healing Garden”. There couldn’t be
a more apt name.
But exponentially more beautiful than the change in scenery has been
the visible change on the faces of people visiting this Healing Garden.
One evening, Ashla rode in on her wheelchair (something that would have
been impossible for her or any other wheelchair user to do a week before) and
watched her first sunset in many years, accompanied by her friend Seema*,
another patient in our unit. We asked Ashla what was it precisely that made her
happy. “Being out in the open is such a treat. My conversations with Seema were
definitely more enjoyable in the garden than in the ward! For the longest time,
she could see plants and flowers only in photographs as she has been confined
to hospitals. And look at Mr Antony* from our half-way home. He has spent hours
painting the pots and just enjoying life.”
In palliative care we talk about total pain and total care. We talk
about the adverse influence of psycho-socio-spiritual factors on physical
suffering and quality of life.
In just over ten days, we have witnessed the barren and broken brought
back to life. And it’s not just the garden we are speaking of.
Ian – your garden is love made visible. Thank you.
And thank you everyone who helped.
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_(Photos: courtesy: Ian Wallace)_