Care Beyond Cure
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! December 2016 !
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December 1, 2016
GOOD NEWS! KARNATAKA UNVEILS PALLIATIVE CARE POLICY
Karnataka becomes the third state in India (following Kerala in 2008
and Maharashtra in June 2013
), to have its own palliative care policy.
Please see the news in the Times of India: Karnataka Unveils Palliative
Congratulations to the pioneers behind this great development including
Dr Linge Gowda, Dr Ramamani and Dr Flt Lt Balasubramoniam.
DR ROBERT TWYCROSS’S VISIT [HTTP://PALLIUMINDIA.ORG/2016/11/DR-TWYCROSS-VISIT/]
What a day! All of us sat enthralled as Dr Robert Twycross’ analytical
words flowed, gently challenging thoughts and guiding us to be better doctors
and human beings. Thank you for being co-hosts with Pallium India, IMA Kerala
and Consortium of Palliative care units of Ernakulam District at the refresher
course in Palliative medicine at CIAL Convention Centre, Kochi, on November 12,
A day earlier, Dr Twycross was in Trivandrum at Pallium India’s
Trivandrum Institute of Palliative Sciences (TIPS), conducting case discussions
and getting to know the place. Prior to that, he had spent time in Bengaluru,
in the process inaugurating the Karnataka Government’s State palliative care
policy. He also paid a visit to Vellore.
Dr Twycross had mentored almost all of the first generation palliative
care physicians in the country. He used to visit twice a year, staying in India
for a month each time. He would teach in the USA to earn the money for his
voluntary work and related expenses in India.
Thank you Dr Robert Twycross and Deidre – not only for the day, but
also for the teaching, mentoring through more than a quarter of a century. You
have touched hundreds of thousands of lives in India through your teaching.
ECHO: MOVE KNOWLEDGE; NOT PATIENTS
_Dr M. R. Rajagopal writes:_
I asked Dr Nandini Vallath, Palliative Medicine consultant at
Trivandrum Institute of Palliative Sciences, what she thought of the ECHO
program. I wanted it in one sentence.
“Generosity of heart, distilled wisdom and technology that transcends
the world”, she said.
Four of us, Dr Nandini, Dr Sreedevi, Mr G S Manoj and myself, had
attended the ECHO (Extension for Community Health Outcomes) immersion program
at New Delhi on 8, 9, 10 November 2016.
What ECHO achieves is what Tagore envisioned in his _Heaven of
freedom_, “Where knowledge is free”. Created by Dr Sanjeev Arora from
Albuquerque, USA, it trains professionals in many skills that ordinarily are
the domain of super-specialists. “Moving knowledge, not patients” is how they
describe this. Like in many parts of the world, many in India, including
NIMHANS, use it successfully.
Thank you for this opportunity, Dr Arora and colleagues.
PEOPLE’S REPRESENTATIVE ASKS IMA TO WORK FOR PALLIATIVE CARE ACCESS.
Mr Anwar Sadat, member of the legislative assembly from Aluva, in his
inaugural address on 13 November 2016, repeatedly exhorted Kerala State Branch
of Indian Medical Association (IMA) to work towards improved access to
The previous day, IMA had hosted a successful refresher course in
palliative care in which the major attraction was the presence of Dr Robert
Twycross, the palliative care guru.
We look forward to working with IMA Kerala under the presidency of Dr V
G Pradeepkumar to fulfil the exhortation of the MLA.
HELP PAINT PALLIUM! [HTTP://PALLIUMINDIA.ORG/2016/11/HELP-PAINT-PALLIUM/]
Pallium India turns 13 this December! Here’s what Pallium India’s
volunteer Bob Walley and his enthusiastic team have planned for the Birthday.
You can help! Please read Bob’s message below: "
Its Pallium India [https://www.facebook.com/palliumindia/] ’s 13th
birthday in a few days!
Pallium is an amazing palliative care charity that only survives on donations
from kind people around India and beyond that keep it going.
But the building is looking a bit dilapidated…
So we are hoping to slap a bit of paint around the place, paint a few murals
and generally brighten up the Hospice for the many patients that come in each
But we need YOUR help!
We need paint to do this, and so have set up a funding page below.
Please share around and pop a few sheckles in if you can.
Anything you can give will make a BIG difference.
Click here: https://milaap.org/fundraisers/helppaintpallium
SANGEETHA SANDHYA 2017 [HTTP://PALLIUMINDIA.ORG/NEWSLETTER]
Sangeetha Sandhya 2017, a musical feast organized by Heart Care
Foundation and Pallium India, was held on October 30th at Gokulam Convention
Centre, Kochi. The program was led by M. Jayachandran, the famous music
composer and singer. The proceeds from this program go to the patient care
activities of Heart Care Foundation and Pallium India. Click here for the
photos of the event:
Flowers channel will be telecasting it soon. To see an one-minute introductory
video please go to
THE TRIUMPH OF HUMAN SPIRIT: JYOTHI KUMAR TAKES OFF
_Dr M. R. Rajagopal writes:_
Some people command your respect. I could not avoid an inferiority
complex as I sat next to 4 people on wheelchairs. How I wish I had half their
strength to overcome difficulties and to move forward! Jyothi Kumar was
formally opening his school – the usual invocation, lighting the lamp,
inaugural speeches. Nothing unusual there. What was unusual was Jyothi Kumar’s
courage, initiative and enthusiasm. This was his very own art school.
Jyothi Kumar’s story is truly inspiring. From despair after finding
himself a paraplegic young man following a fall, Dr Sreekala and her colleagues
at the Department of Physical Medicine and Rehabilitation at Medical Collage
Hospital, Trivandrum, not only gave him physiotherapy; they gave him strength
of a different kind. His own indomitable spirit overcame his despair. He is a
multi- faceted personality – poet, author, artist – all rolled into one.
Pallium India’s half way home (in which the department of social justice of
Government of Kerala is our partner) had the good fortune to have Jyothi among
the group for a month or more.
You have the ability and the courage, Jyothi. They will be
difficulties; but they are there to overcome, as you would say. Best wishes!
THANK YOU, MS JOHANNA RALSTON LAMB
Pallium India’s Trivandrum Institute was privileged to have an esteemed
guest on 18 November 2016- Ms Johanna Ralston Lamb.
She is currently the CEO of World Heart Federation and has a wealth of
experience in the health sector.
THANK YOU FOR YOUR VISIT, JOHANNA, AND THANK YOU FOR ALL YOUR GOOD
WISHES AND ADVICE.
CONGRATULATIONS JUSTEENA AND PRAVEENA!
Pallium India is so pleased that two great friends of palliative care
are winners of the Media Person of the Year Award from Indian Medical
Association (Kerala) – Justeena of Manorama News and Praveena of Asianet News
It is not just that they have advocated for palliative care through the
news channels several times; when they come across the story of a person in
suffering who needs care, they have always got in touch with us and connected
them with us.
We are pleased that in the majority of those situations, we could help
those patients and families.
CONGRATULATIONS, JUSTEENA AND PRAVEENA AND THANK YOU FOR ALL THAT YOU DO.
DR RAJAGOPAL HONORED WITH SRI SATHYA SAI AWARD
In an elegant function at Satya Sai Grana in Muddanahalli, Karnataka,
Pallium India’s chairman Dr M. R. Rajagopal was in august company as he
received the Human Excellence Award for Health on 23 November 2016.
The purse of Rs.5 lakhs goes to Pallium India for relieving the
suffering of the people whom we serve.
From all of us at Pallium India, thank you Satya Sai Lok Seva Trust,
for the great honour and also for acknowledging the importance of palliative
care in health care. We hope this gesture of yours will lead to better
integration of palliative as part of health care.
10 years back on 19 November, Sheeba joined Pallium India’s Trivandrum
Institute as a staff nurse. Today she plays the key role of course coordinator.
A year later on the same day, Preetha joined us as office secretary.
She is an office executive now.
They are now two pillars of Pallium India – Strong, yet gentle and
kind. (If you now ask how can pillars be gentle and kind, we can only react by
saying, well, come and see them!)
We were preparing to celebrate the twin anniversaries, and look who
drops in! Two dear Kiwis, Raelee Jensen and Chris Solly. Raelee had worked with
us during our initial difficult years in Trivandrum, mentoring our nurses and
helping to build our capacity. And Chris had helped time and again teaching.
Thank you for being there, dear Sheeba and Preetha, and keep coming
back dear Raelee and Chris.
VACANCIES (FACULTY, M. D. PALLIATIVE MEDICINE) IN KIDWAI INSTITUTE OF ONCOLOGY,
Dr Linge Gowda, Director of Regional Cancer Centre, Kidwai Institute of
Oncology, Bangalore, informs us of openings in their Palliative Medicine
department for the following posts.
* Associate Professor
* Assistant Professor
* Senior Resident
Associate and Assistant Professors need to be post MD in one of these
specialities: General Medicine, Surgery, Radiotherapy, Psychiatry, Paediatrics.
Interested candidates please contact: Dr Prabha. Email:
prabhasachar@xxxxxxxxxxx [mailto:prabhasachar@xxxxxxxxxxx] Phone: 9845226581
IAPCON 2017 PHOTOGRAPHY CONTEST [HTTP://WWW.IAPCON2017CBE.COM/PHOTO-ART.PHP]
The IAPCON 2017 photography contest is intended to improve awareness
among the public about palliative care.
The theme of the contest is “COMPASSIONATE CARE”. For more details on
the contest and to register, please visit:
The deadline to submit your entries for consideration is December 31,
IAHPC TRAVELING SCHOLARSHIPS TO THE EAPC WORLD CONGRESS AT MADRID
[http://www.eapc-2017.org/] The International Association for Hospice
and Palliative Care (IAHPC) is offering twenty (20) scholarships to support the
travel of palliative care workers to attend the 15th World Congress
[http://www.eapc-2017.org/] of the European Association for Palliative Care
that will take place in Madrid, Spain on May 18-20, 2017.
The applicants must be:
* Living in Lower, Lower-Middle and Upper-Middle income categories as
per the World Bank income classification
* Active members of IAHPC for 2 or more consecutive years.
* Working actively in palliative care.
* Registered as web users at the EAPC database online (free of charge)
at EAPC website [http://www.eapc-2017.org/] .
* Preference will be given to individuals who have not received an
IAHPC grant in the past three years, with accepted poster or oral presentations
in the Congress.
Discounted registration fees will also be offered to individuals from
countries in the Lower and Lower-Middle categories. Winners of the scholarships
will benefit from this discount and can apply the scholarship funds to off-set
the cost of their travel and accommodations. Additional information about the
congress is available in the congress website at EAPC-2017 website
Deadline to apply is JANUARY 15, 2017.
PALLIATIVE CARE COURSES IN INDIA
“Palliative care is emerging as a viable option for students looking
for careers in healthcare,” writes _The Hindu_ Education Plus
dated November 7, 2016.
The article goes on to describe the need and scope of palliative care
in India: “The number of patients needing it is currently estimated to be
around six million annually. Given the specialisation of skill and professional
expertise required to administer palliative care, the industry is expected to
grow at approximately 20-25 percent in the near future.”
The institutions where courses are offered include Tata Hospital in
Mumbai, TIPS in Thiruvananthapuram, MNJIORCC in Hyderabad, BMCHRC in Jaipur and
GCRI in Ahmedabad. Read the complete article in _The Hindu_
AN INDIAN PRIMER OF PALLIATIVE CARE
In 2015, 21 palliative care experts, 18 from various parts of India and 3 from
abroad, got together to create a teaching module for palliative care. The
result is _AN INDIAN PRIMER OF PALLIATIVE CARE_.
We are grateful to the International Association for Study of Pain
(IASP) [http://www.iasp-pain.org/] , which gave a grant to cover the “Pain”
part of the work.
The book is available at ₹250. Anyone within India who is interested to
purchase the book, please make the payment through one of the methods mentioned
in this page [http://palliumindia.org/donate/] and send us a mail
[http://palliumindia.org/contact/] . We shall send it across to you at no extra
Do write to us for information: info@xxxxxxxxxxxxxxxx
UPCOMING EVENTS [HTTP://PALLIUMINDIA.ORG/EVENTS]
* DECEMBER 10, 2016: SAT Hospital Paediatric Pain and Palliative Care
Clinic organizes a get together of children and their families, In Trivandrum.
* JANUARY 2, 2017: One month certificate course in Pain and Palliative
Medicine for Doctors, Nurses, Social Workers and Volunteers in Hyderabad,
Telengana. Contact: mnj.palliative@xxxxxxxxx
* JANUARY 15, 2017: Kerala Palliative Care Day.
* FEBRUARY 27, 2017: Six weeks certificate course for doctors and
nurses in Ahmedabad, Gujarat. Contact: palliumindia.gcri@xxxxxxxxx
* MARCH 6, 2017: 10 days Foundation Course for doctors at Trivandrum,
Kerala. Contact: info@xxxxxxxxxxxxxxxx
* MARCH 6, 2017: 6 weeks certificate course for doctors and nurses at
Trivandrum, Kerala. Contact: info@xxxxxxxxxxxxxxxx
* JUNE 5, 2017: 10 days Foundation Course for doctors at Trivandrum,
Kerala. Contact: info@xxxxxxxxxxxxxxxx
* JUNE 5, 2017: 6 weeks certificate course for doctors and nurses at
Trivandrum, Kerala. Contact: info@xxxxxxxxxxxxxxxx
* OCTOBER 14, 2017: International conference on Peri-operative Cancer
Care at Jawaharlal Nehru Auditorium AIIMS, New Delhi. Register:
For details on these programs, contact: info@xxxxxxxxxxxxxxxx
Find out more at: http://palliumindia.org/ [http://palliumindia.org/]
AN ELITE GROUP DISCUSSES THE WAY FORWARD FOR PALLIATIVE CARE
Thrissur is often called the cultural capital of Kerala – home to
thinkers, artistes and the literary. A group of about 60, their common thread
being support for palliative care, got together on 20 November 2016 for the
first K V Padmavathy Varasyar memorial lecture. A rich discussion followed,
concentrating mainly on the following points:
* The objective of the movement should not be just palliative care
delivery; but rather, integration with the healthcare system.
* The system should look for and be inclusive of the marginalised –
particularly women, children and the elderly.
* It is important to develop the social capital further and not just be
satisfied of the volunteer base that exists today, nevertheless keeping in mind
any potential threats like vested interests.
Congratulations Pain and Palliative Care Society of Thrissur and thank
you for the invitation to be part of the program.
“CHETHANA” BREAKS NEW GROUND [HTTP://CHETHANA]
Chethana is an initiative of Thrissur Pain and Palliative Care Society
aimed at supporting people with chronic kidney disease and their families.
Pallium India had the privilege of being part of their get-together on 20
November 2016. The hall was full.
We congratulate Chethana activists on creating this forum to listen to
the people who actually are suffering, to identify their problems and to seek
solutions. We also request them to take leadership to create a common forum for
the whole state so that identical problems and their solutions can be shared,
obviating the need for reinventing the wheel. Hopefully, that can evolve to a
JIV DAYA FOUNDATION – WHAT AN APPROPRIATE NAME!
Daya Foundation [http://www.jivdayafound.org/] , based in Dallas, USA, had
their third review meeting on palliative care, on 5th November, 2016.
This amazing organization does what many funding agencies do not do.
They build capacity. They provide basic staff – doctor, nurse, social worker
cum data entry operator, and so on – to empower cancer treating facilities to
incorporate palliative care into their work.
In a few short years, they already have 25 palliative care projects in
various parts of the country.
To consider that they are into several fields like paediatric oncology,
maternal health, amputee assistance, child deworming, and Kala Azar treatment,
don’t you think that is phenomenal?
PALLIUM INDIA IS PROUD TO BE THEIR ASSOCIATE.
INTERNATIONAL VISITORS [HTTP://PALLIUMINDIA.ORG/PROGRAMS/VISITORS/]
We welcome international visitors at Pallium India and appreciate the
support from our colleagues around the world. We request that you contact us at
least 2 weeks prior to your visit so that we can make the necessary
arrangements. Sorry; we would discourage “drop-ins” for fear of the impact on
We have observership programs for interested professionals and
students, collaborative visits, and long term placements. Click here
[http://palliumindia.org/programs/visitors/] for more information. Contact:
JOIN OUR FACEBOOK PAGE [HTTPS://WWW.FACEBOOK.COM/PALLIUMINDIA]
Pallium India’s Facebook page has over 5000 Likes. We regularly post
articles related to palliative care from around the world. Click here to Like
our page [https://www.facebook.com/palliumindia] ! We’re also on Twitter:
PALLIATIVE CARE INFORMATION CENTRE [HTTP://PALLIUMINDIA.ORG/INFO-CENTRE]
Contact Pallium India’s Information Centre (9 am to 12 noon) for
information related to palliative care and about establishments where such
facilities are available in India. Telephone: +91-9746745497 or E-mail:
Address: Pallium India, Arumana Hospital, Perunthanni, Trivandrum
For more details, please visit: http://palliumindia.org/info-centre/
CHEFS ON WHEELS APPEAR ON KAIRALI TV
Gopika, Shiju and Sameer, Chefs on wheelchairs
[http://palliumindia.org/2016/07/chefs-on-wheels/] were featured in a
television show aired by Kairali TV [http://www.kairalinewsonline.com/] on
November 6th based on the Half-way Home run by TIPS, Pallium India. It also
featured Jyothikumar, artist and poet, who despite his paraplegia, moves by
himself from his wheelchair to his three wheeler, folds the wheelchair and
loads it on his vehicle and drives away, inspiring us all the way. The first
part of the program telecast on 5th November featured Ashla, who is a
quadriplegic, works as Pallium India chairman’s executive assistant.
We are very grateful to Dr Lekshmi Nair
[https://www.facebook.com/drlekshminair/] , Professor at the Law Academy,
Trivandrum, the anchor of the popular show called “Flavours of India” which
brings to us tastes from various parts of the country. And of course our thanks
are due to the Department of Social Justice of Government of Kerala which funds
the project and to The Institute of Hotel Management and Catering Technology at
Kovalam for conducting a free course for our Half-way Home.
And here comes the icing on the cake:
Just as the show was ending on 6th November, came a call offering an
Thank you Mr Prabhakaran. We await more such calls!
Watch Flavours of India: Pallium India Part 1: 5th November 2016
Watch Flavours of India: Pallium India Part 2: 6th November 2016