That’s great Ruth, really useful points, many thanks for taking the trouble to
write them up. Leneh are you up for pasting this in to templates by theme or
would you rather I do that?
On 15 Mar 2018, at 20:47, Autiste Ruth (Redacted sender "autistic.expression"
for DMARC) <dmarc-noreply@xxxxxxxxxxxxx> wrote:
On 15 March 2018 at 14:20, Leneh Buckle <living@xxxxxxxxxxxxxx> wrote:
It could be relevant if you have anything to say about being inpatient,
especially anything autism relevant.
OK,well it's hard to think at short notice with tomorrow as deadline, but
some of the things that have affected me in inpatient situations wrt autism
include the usual initial personality disorder diagnosis many autistic women
received, and then being treated as attention seeking and manipulative when
actually being directly honest and bewildered by the system.
Other things that have been hard have been the sensory aspects of inpatient
environments (bright light, noise, smells like air fresheners and cleaning
products), lack of privacy or quiet space to be alone, noisy dining rooms,
not being taken seriously over side effects of medications (which autistic
people often get worse and at lower doses), lack of a schedule of activity,
having to wait all afternoon for 10 mins or so in ward round, when a set time
would have been so much less stressful, general lack of autism aware staff
(though one or two were naturally amazing, many were unwilling to be open
minded or learn, and some think they know something about autism and thus
ignore the actual experience of the person in front of them).
Group activities were rarely helpful for me and group therapies would have
been a nightmare - I have been offered both IP and day patient eating
disorder treatment but since a lot of it is groups it's a no go - which is
especially bad considering a lot of autistic women develop eating disorders.
I hope some of this is useful and if there are any specific questions for
specific types of information please let me know.