[dbmat] Fwd: You're invited to the USH2020 Connections Conference in Austin, Texas

  • From: Edgenie Bellah <bellahe@xxxxxxxxx>
  • To: DBMAT <dbmat@xxxxxxxxxxxxx>, "Glausier,Cassondra (HHSC/DARS)" <cassondra.glausier@xxxxxxxxxxxxxxxx>, Heather keiler-green <heather.keiler.green@xxxxxxxxxxxxxxx>, Teresa Banda <tbanda@xxxxxxxx>, Hillary Keys <Hillary.Keys@xxxxxxxxxxxx>, Susan Tiggs <stiggs@xxxxxxxxx>, Stephanie Isbell Walker <swalker@xxxxxxxxx>, Adam Graves <gravesa@xxxxxxxxx>, Montgomeryc <montgomeryc@xxxxxxxxx>, Wileyd <DavidWiley@xxxxxxxxx>, Deanna Peterson <petersond@xxxxxxxxx>, Kaycee Bennett <bennettk@xxxxxxxxx>, Kathrine Borg <borgk@xxxxxxxxx>
  • Date: Mon, 27 Jan 2020 17:18:44 -0600

Registration is now open for the Usher Syndrome Colation 12th Annual USH
Connections Conference!


[image: USH2020 Banner: Usher Syndrome Coalition 12th Annual USH
Connections Conference, July 10-11, 2020, Austin, Texas, Image of Austin
city skyline]
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Edgenie, please join us at the largest annual gathering of the Usher
syndrome community!
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The Usher Syndrome Coalition presents the *12 Annual USH Connections
Conference* at the Omni Austin Hotel at Southpark in Austin, Texas, July
10-11, 2020.



Attendees describe this conference as "life-changing," an event with a
positive atmosphere and a genuine sense of community. At the USH
Connections Conference, you will connect face-to-face with hundreds of
people who "get it," learn the latest on developing treatments from leading
USH researchers, and leave better informed of the resources available to
you and your family.



*NEW FOR USH2020:* This year, we are pleased to announce that we are adding
an afternoon of breakout sessions on Friday, July 10th. These sessions are
in direct response to requests from the community for opportunities to
connect and converse in small settings. Session topics will include Parents
of Children with Usher Syndrome, Young Adults Living with Usher Syndrome,
and Quality of Life: Living and Thriving with Usher Syndrome.



We will share the USH2020 Program soon. In the meantime, check out the
summaries and transcripts from some of our past events.
<https://u3655239.ct.sendgrid.net/wf/click?upn=Ijaa9U18P3Wxrqg59EKKpHjG6V8L5UcHUGtogAz0jUVR4pM2AivZxTeAibBnPbPs34kNGtDMVlIOJSvbDl0Ug28TY2HIhdn7ZKxiehloB-2BXIKUre8SmUsxBu1tLaX34BNTNQMHVd0Y1iOzUb07ft-2BA-3D-3D_D4KAUyUXYoz1tk-2ByigeiXMDA0W9OhJxt7vvyVbbR9xk0gvODy-2BjU773-2Ff83bzH3Ej8TuooEvaMpsDccp5UBnB8k23dIBJ65Y3NCu4bATNr84n6qQyj01xqPd3kl1BECv2nz1XbUMZHUifQn8r37TyeJpGAtrhQXDsZ3nq7wbcwE8gRIB2-2BLr4iDjtohJL-2F-2FRAG-2BRzJZ2Z7n8wR1jFzTHIYOQEa6tXMPQRfVqCwy-2BW3AxgzoaRl-2FkNmHk-2BYYSsJquadc7K3NSxGge4Pdw6ymsfhX9cimC4IG8OtyUtCuirxw1F-2FYfpOfkXff1mohZZU0map1WItAgYg11Lcw02bhdX9K7PrkjfYW7VCxgBJOmUAi-2BNnYkpf1SVi-2Bw6UhOyQrMcVWPRW1Hd7FyV7fwV0ZVJWMmURSHO3p-2Bes-2BkPM6xRnI-3D>


*REGISTER NOW*
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[image: A man speaks at a lectern on stage. The words Usher Syndrome
Coalition: USH2019 are displayed on the lectern.]
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*Details and Important Deadlines*

*When:*

Friday and Saturday, July 10-11, 2020

Friday afternoon Breakout Sessions

Saturday Full-Day General Session



*Where:*

Omni Austin Hotel at Southpark
<https://u3655239.ct.sendgrid.net/wf/click?upn=cWSTA6k7ygTF4xj5faJ4tE2ENN7cQLG5aYPzZLaakagVXlYu9hsvBH4eF6HVPEl0YNv7rYRNYcdzSq-2BuOdWnNg-3D-3D_D4KAUyUXYoz1tk-2ByigeiXMDA0W9OhJxt7vvyVbbR9xk0gvODy-2BjU773-2Ff83bzH3Ej8TuooEvaMpsDccp5UBnB8k23dIBJ65Y3NCu4bATNr84n6qQyj01xqPd3kl1BECv2nz1XbUMZHUifQn8r37TyeJpGAtrhQXDsZ3nq7wbcwE8gRIB2-2BLr4iDjtohJL-2F-2FRAG-2BRzJZ2Z7n8wR1jFzTHIYOQEa6tXMPQRfVqCwy-2BW3B3emdYbY0PqHPlEm6n7YmZL-2BlFjfTxND80MqD1awMwNnTow4cY1B1SZJAseXwz-2B4rMS-2FZvGYqawzoPNt64OBHenA5uMbbTX0LdekNpRSoc05dgNuhKzUB7WoJjIFj0Ctsk8RgIyf-2Fi0yDkwSSlQ7nbA71Lu1LX4g3eRXB2a4aGiTFLyzbpnwfESwLlnpiEnb0-3D>
4140 Governors Row
Austin, Texas 78744



*Early Bird Deadline:* March 15th

($100 per adult before March 15th; $150 and increasing after March 15th)



*Registration Deadline:* June 30th



*Special Requests Deadline:* June 5th
(Submit requests during registration for childcare, Interpreters, Sighted
Guides, Assistive Listening Devices, Dietary Restrictions, etc.)



*Book Hotel Room By:* June 19th
Reserve here: http://bit.ly/USH2020hotel
<https://u3655239.ct.sendgrid.net/wf/click?upn=cWSTA6k7ygTF4xj5faJ4tE2ENN7cQLG5aYPzZLaakagVXlYu9hsvBH4eF6HVPEl0YNv7rYRNYcdzSq-2BuOdWnNg-3D-3D_D4KAUyUXYoz1tk-2ByigeiXMDA0W9OhJxt7vvyVbbR9xk0gvODy-2BjU773-2Ff83bzH3Ej8TuooEvaMpsDccp5UBnB8k23dIBJ65Y3NCu4bATNr84n6qQyj01xqPd3kl1BECv2nz1XbUMZHUifQn8r37TyeJpGAtrhQXDsZ3nq7wbcwE8gRIB2-2BLr4iDjtohJL-2F-2FRAG-2BRzJZ2Z7n8wR1jFzTHIYOQEa6tXMPQRfVqCwy-2BW3ApqaI4llYkXbY4g9GxiTRLU-2BbzSELjQY16TLKobdtipJHp7XSS9NLdDPWMVosVCmVpaU-2F3TlcmM2Og-2FLgGJv4WW7yIFHxeX-2F9joVr5etIQL01V6-2FNPNwr35o6876XSw36Ay-2Fumfora-2FFEhQySmdgbTvbBg3vSWugnJvNu8dtJ2J51G99bkvS-2Bd9GEMytwQvZE-3D>
*LEARN MORE*
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[image: A woman and a man sit in an audience watching a presentation. The
woman is knitting and the man is smiling.]
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*Kind Words about the USH Connections Conferences*

*“I loved meeting others for the first time with the same condition as me.
It made me feel less alone and boosted my morale.”*



*“The networking was amazing.”*



*“It has been so inspirational both to hear about the research and to meet
others with USH for support, inspiration, and mutual reinforcement.”*



*“I liked meeting other families/parents of kids with Usher, and making
connections.”*



*"For me, it was MOST valuable to meet people in various stages of the
syndrome who are living happy, productive lives and sharing their blessings
with the world."*



*“We left friends for life!”*



*- USH2019 Attendees*


*LEARN MORE*
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[image: Facebook]
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[image:
Twitter]
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*Our Contact Information*
Usher Syndrome Coalition
63 Great Road, Suite 207
Maynard, MA 01754
Toll Free: 1-855-998-7437
www.usher-syndrome.org <http://www.usher-syndrome.org?blm_aid=3192867>


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[image: Usher Syndrome Coalition logo and USH2020]
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-- 
*Edgenie Bellah*
Family Engagement, Texas DeafBlind Project

512-206-9423 | fax: 512-206-9320

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