HI JACIB, I HAVE SEND THIS ONE ON, TO ARLENE VAN HUYSSTEEN. 012 332 0378 STAY STRONG AND WELL, MY FRIEND! MAGDA FELGATE. ----- Original Message ----- From: Jacob Kruger To: blindza@xxxxxxxxxxxxx Sent: Sunday, April 10, 2011 7:03 PM Subject: [blindza] Re: Sore eyes, etc. I might - one day - try find a decent eye doctor...<smile> As far as the vague grey shapes/points that are pretty much permanently there, there are a few theories, and mine are like millions of little tiny gray pinpricks of just varying shades of grey that then cluster together to sort of form shapes, but there's also 2 reddish shapings that are more clearly defined, never really move away from what looks to me like around 2 metres in front of me, and slightly left of centre - even if I turn my head, they're right there - and they're permanently changing shape/moving around overlapping with each other, etc. Firstly a neuro-opthalmologist in the UK said it's literally just my brain doing a form of imagination/visualisation, and he was the guy who certified me as B1, and when I asked if I was in fact pointing to an eye chart on the wall behind his desk without anyone telling me it was there, he also just changed the subject. For example, if I do certain things with the vOICe it does seem to help my brain show me some things in this virtual vision as such, but there are some other strange factors as well, like the fact that am permanently seeing shapes for the bridge of my nose, my eye sockets, my cheeckbones etc. so it's almost like my point of view/relative point of sight, etc. is around 5cm behind my actual eyes, and it also doesn't matter if I close my eyelids - I see a line sort of flashing up/down as I do it - which is more along the lines of what a reiki woman told me, and sort of along the lines of what Russell Targ says since he's the blindie guy who trained the CIA to use ESP, and he straight out says that's how he does some forms of environmental navigation - sort of sixth sensory substitution...<smile> Doesn't really mean I know what's causing this/what's happening, but those are the types of questions I was trying to ask that eye doctor, and, yes, makes sense that I suppose I should at least have a doctor check up on these eyes occasionally, but will have to find one who's a bit more open-minded with regard to at least listening to my questions. Will also just mention that it irritated me a little bit when the eye surgeon didn't even know that, for example, the SANCB shop could/would supply talking watches, that there's screen reader software out there etc. etc. - honestly don't think she even off-hand had contact details for the SANCB. Stay well Jacob Kruger Blind Biker Skype: BlindZA '...fate had broken his body, but not his spirit...' ----- Original Message ----- From: Retha To: blindza@xxxxxxxxxxxxx Sent: Sunday, April 10, 2011 5:29 PM Subject: [blindza] Re: Sore eyes, etc. Hi Jacob Now this is one I know. First the easy one - I think you might hear from more people who could first see (even only partially like me) that you still se funny shapes. As I'm typing this, I see lots of light points like stars and inbetween floating things. I always just thought it should be so - no harm in them, any way. As for the sandy feeling and pain, I really think you should find you another oculist and let them have a look. I had cornea transplants and my eyes become dry very easily. However, these days they also sometimes get infection which is rather painful. Sometimes the cornea can also grow into a point and literally scratch against your eyelashes. I know this sounds gory, but there are usually reasons for the warnings we get. Then again, you may have glaucoma and not feel a thing. Even though I can't use my eyes any more, I think it is still important to have them seen to from time to time. Sometimes some stuff may be lurking which you don't even know about. I wish I could have you visit my doctor here in Kimberley - he is one of the most normal, friendly and outspoken people I know. He always tells me precisely what is going on and does not make me feel like an idiot either. And of course, often one's fears are way beyond reality. So I suggest, find you another nice doctor! All the best. Retha