[bksvol-discuss] Re: from Cindy--Fw: Personal informationfrom Dasha, aka Daria
- From: "Ixchel, Jackie" <starsandhearts2@xxxxxxxxx>
- To: bksvol-discuss@xxxxxxxxxxxxx
- Date: Fri, 8 Jun 2012 21:05:30 -0400
Hi,
If you're looking for games there is one in the app store called
hanging and it's hangman and really accessable and free. If you do
decide to get it let me know offlist and we can start a game.
Jackie
On 6/8/12, Cindy <popularplace@xxxxxxxxx> wrote:
> I have her permission to pass along the information, and since several
> people are interested in her situation it's easier for me to post here than
> send to individuals.
>
> I had asked how old she was when she came to this country because I thought
> perhaps English was her second language, As you can see, I was wrong.
>
> I was also trying to find ways to entertain her online, but the online games
> I know of I don't think can be played by a blind person I was thinking maybe
> of makaing aa hangman game in my email to her.
>
> Dasha, I assumed when you said you are a double prosthetic you meant you had
> prosthetic legs; is it the eyes you are referring to?
>
>
>
> ----- Forwarded Message -----
>> From: Dasha Radford <dasha95@xxxxxxxxx>
>> To: Cindy <popularplace@xxxxxxxxx>
>> Cc:
>> Sent: Wednesday, June 6, 2012 4:34 PM
>> Subject: Re: more questions
>>
>> I was thinking about two and though I may have been a bit older no one's
>> really sure. I learned Russian to a point but yes English is pretty much
>> my
>> first language. That's only because people were so interested in my
>> learning
>> English but no one bothered continuing to speak Russian with me. I'm
>> actually partially deaf and totally blind. Lost most of my high-frequency
>> range
>> some of my lower and I'm a double prosthetic. Sorry I have two prosthetic
>>
>> eyes including implants.
>>
>> Sent from my iPhone
>>
>> On Jun 6, 2012, at 1:25 AM, Cindy <popularplace@xxxxxxxxx> wrote:
>>
>>> OUCH! (the bone marrow biopsies.
>>> I forgot to ask if you're blind (on top of everything else. It
>> didn't occurto me that you might be and so the online jigsaw and/or
>> crossword puzzles wouldn't be any good for you, sigh.
>>> Cindy
>>>
>>>
>>>
>>> ----- Original Message -----
>>>> From: Dasha Radford <dasha95@xxxxxxxxx>
>>>> To: Cindy <popularplace@xxxxxxxxx>
>>>> Cc:
>>>> Sent: Tuesday, June 5, 2012 7:50 PM
>>>> Subject: Re: more questions
>>>>
>>>> I was never in full remission. It's only been five months since my
>> diagnosis
>>>> and as a result they have to do bone marrow biopsies about every three
>>>>
>> months or
>>>> so. And then once I am in full remission rather than just a partial
>> blood
>>>> related remission they can use something called a PCR test to check it
>>>>
>> at the
>>>> molecular level again at least for the first year about every three
>> months. No I
>>>> dictate most of what I do and any case. It works better and sure if you
>>>>
>> were so
>>>> inclined we could certainly try some word games by email. I have not
>> done much
>>>> with jigsaws but that might be fun. I'm at home and most of what I
>> do is
>>>> outpatient but I'm in and out in terms of outpatient visits a great
>> deal. I
>>>> was born in a city about 80 miles from the European Asiatic border so
>> fairly
>>>> close though not as close as some. Nizhni tagil is the name of the
>> city.
>>>>
>>>> Sent from my iPhone
>>>>
>>>> On Jun 5, 2012, at 10:34 PM, Cindy <popularplace@xxxxxxxxx>
>> wrote:
>>>>
>>>>> Wheere in Russia were you born? (I did think Dasha sounded
>> Russian); near
>>>> Chernobyl?
>>>>> Oh, how I hope (not as much as you do, I'm sure) that the July
>> biopsy
>>>> shows you are in remission! How long did your last remission last, and
>>>>
>> are you
>>>> able to live a normal life when in remission? and once you're in
>> remission,
>>>> when do they have to test again?
>>>>>
>>>>> Does answering emails or writing tire you out? Maybe I can think of
>> some
>>>> games to play with you, like Hangman.
>>>>> Do you like doing jigsaw puzzles? There is a nice jigsaw puzzle
>> site online
>>>> I can send you. I was doing some to improve my hand-eye coordination
>> after my
>>>> small stroke. There are also online crossword puzzles if you like doing
>>>>
>> those.
>>>>>
>>>>> Cindy
>>>>>
>>>>> ----- Original Message -----
>>>>>> From: Dasha Radford <dasha95@xxxxxxxxx>
>>>>>> To: Cindy <popularplace@xxxxxxxxx>
>>>>>> Cc:
>>>>>> Sent: Tuesday, June 5, 2012 4:27 PM
>>>>>> Subject: Re: more questions
>>>>>>
>>>>>> Well okay that works kind of like grandma be at our church and
>> real
>>>> name is
>>>>>> Beatrice but we just started calling Haraby or grandma be.
>> I'm in
>>>> Raleigh
>>>>>> but I'm oftentimes in clinic at UNC Chapel Hill. I
>> don't do a
>>>> lot of
>>>>>> inpatient visits anymore in fact I haven't done a truly
>> inpatient
>>>> visit
>>>>>> since I went in in early January and came out about a week or
>> so later.
>>>> It's
>>>>>> no point to it. In Russia they can't do a whole lot about
>> it where
>>>> I was
>>>>>> born there was a lot of heavy metal work and the like. They
>> started
>>>> trying to
>>>>>> work with it in 93 but there's only so much they can do.
>>>>>> You may not like me for saying this but just as we children
>> can't
>>>> understand
>>>>>> what parents feel or those of us you aren't parents are so
>> just so
>>>> the
>>>>>> parents can't understand what we go through. Sometimes
>> it's a
>>>>>> combination of denial and so on. And the stress of the
>> procedures is
>>>> incredible
>>>>>> as much for us as it is for them. Most of the side effects I
>> deal with
>>>> are
>>>>>> mostly blood related. Low white blood cell counts low
>> hemoglobin levels
>>>> and bone
>>>>>> and marrow biopsy for me in July to determine whether I'm
>> in
>>>> remission. Oh I
>>>>>> forgot to mention with the blood side effects we may also have
>> low red
>>>> cell
>>>>>> counts and platelet counts that my platelets and such are fine.
>>
>>>> It's just my
>>>>>> white blood cell counts and hemoglobin levels that are low. But
>>
>>>> that's no
>>>>>> surprise since that's the chemo. I usually run around 3.0
>> on white
>>>> blood
>>>>>> cell count which is now my "normal".
>>>>>>
>>>>>> Sent from my iPhone
>>>>>>
>>>>>> On Jun 5, 2012, at 6:59 PM, Cindy
>> <popularplace@xxxxxxxxx> wrote:
>>>>>>
>>>>>>> Hi, Daria, it's me. ,Cindy, again.
>>>>>>>
>>>>>>> I'm sometimes known as Grandma Cindy (because at one
>> point
>>>> there were
>>>>>> so many Cindy's on the list and one, (not on now) said some
>>
>>>> unpleasant
>>>>>> things with which neither I nor others appreciated and with
>> which I
>>>> didn't
>>>>>> want to be associated.
>>>>>>>
>>>>>>> I wanted to ask where youlive and what hospital you're
>> in. My
>>>> daughter
>>>>>> is a pediatrician and if you happen to be in one of her
>> hospitals she
>>>> could pay
>>>>>> you a visit and be sure all is going well.
>>>>>>> My other daughter is an attorney, and if it is found that
>> some of
>>>> your
>>>>>> problems stem from that waste dump location in which you were
>> born (
>>>> and
>>>>>> raised? I'm sure her firm would be happy to sue on your
>> behalf,
>>>> though
>>>>>> probably a class action suit has probably beenfiled, and
>> perhaps even
>>>> concluded,
>>>>>> on behalf of residents of the town or wherever. My heart goes
>> not only
>>>> to you
>>>>>> but to your parents. I doubt a child, or anyone who is not a
>> parent,
>>>> can
>>>>>> understand the pain that parents feel when a child suffers and
>> there is
>>>> nothing
>>>>>> the parent can do to take away the sufferering or pain, and
>> has,in a
>>>> case such
>>>>>> as yours, to put on a brave and cheerful face.
>>>>>>> Cindy
>>>>>>>
>>>>>>
>>>>
>>
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