[bksvol-discuss] from Cindy--Fw: Personal informationfrom Dasha, aka Daria
- From: Cindy <popularplace@xxxxxxxxx>
- To: "bksvol-discuss@xxxxxxxxxxxxx" <bksvol-discuss@xxxxxxxxxxxxx>
- Date: Fri, 8 Jun 2012 00:30:07 -0700 (PDT)
I have her permission to pass along the information, and since several people
are interested in her situation it's easier for me to post here than send to
individuals.
I had asked how old she was when she came to this country because I thought
perhaps English was her second language, As you can see, I was wrong.
I was also trying to find ways to entertain her online, but the online games I
know of I don't think can be played by a blind person I was thinking maybe of
makaing aa hangman game in my email to her.
Dasha, I assumed when you said you are a double prosthetic you meant you had
prosthetic legs; is it the eyes you are referring to?
----- Forwarded Message -----
> From: Dasha Radford <dasha95@xxxxxxxxx>
> To: Cindy <popularplace@xxxxxxxxx>
> Cc:
> Sent: Wednesday, June 6, 2012 4:34 PM
> Subject: Re: more questions
>
> I was thinking about two and though I may have been a bit older no one's
> really sure. I learned Russian to a point but yes English is pretty much my
> first language. That's only because people were so interested in my learning
> English but no one bothered continuing to speak Russian with me. I'm
> actually partially deaf and totally blind. Lost most of my high-frequency
> range
> some of my lower and I'm a double prosthetic. Sorry I have two prosthetic
> eyes including implants.
>
> Sent from my iPhone
>
> On Jun 6, 2012, at 1:25 AM, Cindy <popularplace@xxxxxxxxx> wrote:
>
>> OUCH! (the bone marrow biopsies.
>> I forgot to ask if you're blind (on top of everything else. It
> didn't occurto me that you might be and so the online jigsaw and/or
> crossword puzzles wouldn't be any good for you, sigh.
>> Cindy
>>
>>
>>
>> ----- Original Message -----
>>> From: Dasha Radford <dasha95@xxxxxxxxx>
>>> To: Cindy <popularplace@xxxxxxxxx>
>>> Cc:
>>> Sent: Tuesday, June 5, 2012 7:50 PM
>>> Subject: Re: more questions
>>>
>>> I was never in full remission. It's only been five months since my
> diagnosis
>>> and as a result they have to do bone marrow biopsies about every three
> months or
>>> so. And then once I am in full remission rather than just a partial
> blood
>>> related remission they can use something called a PCR test to check it
> at the
>>> molecular level again at least for the first year about every three
> months. No I
>>> dictate most of what I do and any case. It works better and sure if you
> were so
>>> inclined we could certainly try some word games by email. I have not
> done much
>>> with jigsaws but that might be fun. I'm at home and most of what I
> do is
>>> outpatient but I'm in and out in terms of outpatient visits a great
> deal. I
>>> was born in a city about 80 miles from the European Asiatic border so
> fairly
>>> close though not as close as some. Nizhni tagil is the name of the
> city.
>>>
>>> Sent from my iPhone
>>>
>>> On Jun 5, 2012, at 10:34 PM, Cindy <popularplace@xxxxxxxxx>
> wrote:
>>>
>>>> Wheere in Russia were you born? (I did think Dasha sounded
> Russian); near
>>> Chernobyl?
>>>> Oh, how I hope (not as much as you do, I'm sure) that the July
> biopsy
>>> shows you are in remission! How long did your last remission last, and
> are you
>>> able to live a normal life when in remission? and once you're in
> remission,
>>> when do they have to test again?
>>>>
>>>> Does answering emails or writing tire you out? Maybe I can think of
> some
>>> games to play with you, like Hangman.
>>>> Do you like doing jigsaw puzzles? There is a nice jigsaw puzzle
> site online
>>> I can send you. I was doing some to improve my hand-eye coordination
> after my
>>> small stroke. There are also online crossword puzzles if you like doing
> those.
>>>>
>>>> Cindy
>>>>
>>>> ----- Original Message -----
>>>>> From: Dasha Radford <dasha95@xxxxxxxxx>
>>>>> To: Cindy <popularplace@xxxxxxxxx>
>>>>> Cc:
>>>>> Sent: Tuesday, June 5, 2012 4:27 PM
>>>>> Subject: Re: more questions
>>>>>
>>>>> Well okay that works kind of like grandma be at our church and
> real
>>> name is
>>>>> Beatrice but we just started calling Haraby or grandma be.
> I'm in
>>> Raleigh
>>>>> but I'm oftentimes in clinic at UNC Chapel Hill. I
> don't do a
>>> lot of
>>>>> inpatient visits anymore in fact I haven't done a truly
> inpatient
>>> visit
>>>>> since I went in in early January and came out about a week or
> so later.
>>> It's
>>>>> no point to it. In Russia they can't do a whole lot about
> it where
>>> I was
>>>>> born there was a lot of heavy metal work and the like. They
> started
>>> trying to
>>>>> work with it in 93 but there's only so much they can do.
>>>>> You may not like me for saying this but just as we children
> can't
>>> understand
>>>>> what parents feel or those of us you aren't parents are so
> just so
>>> the
>>>>> parents can't understand what we go through. Sometimes
> it's a
>>>>> combination of denial and so on. And the stress of the
> procedures is
>>> incredible
>>>>> as much for us as it is for them. Most of the side effects I
> deal with
>>> are
>>>>> mostly blood related. Low white blood cell counts low
> hemoglobin levels
>>> and bone
>>>>> and marrow biopsy for me in July to determine whether I'm
> in
>>> remission. Oh I
>>>>> forgot to mention with the blood side effects we may also have
> low red
>>> cell
>>>>> counts and platelet counts that my platelets and such are fine.
>
>>> It's just my
>>>>> white blood cell counts and hemoglobin levels that are low. But
>
>>> that's no
>>>>> surprise since that's the chemo. I usually run around 3.0
> on white
>>> blood
>>>>> cell count which is now my "normal".
>>>>>
>>>>> Sent from my iPhone
>>>>>
>>>>> On Jun 5, 2012, at 6:59 PM, Cindy
> <popularplace@xxxxxxxxx> wrote:
>>>>>
>>>>>> Hi, Daria, it's me. ,Cindy, again.
>>>>>>
>>>>>> I'm sometimes known as Grandma Cindy (because at one
> point
>>> there were
>>>>> so many Cindy's on the list and one, (not on now) said some
>
>>> unpleasant
>>>>> things with which neither I nor others appreciated and with
> which I
>>> didn't
>>>>> want to be associated.
>>>>>>
>>>>>> I wanted to ask where youlive and what hospital you're
> in. My
>>> daughter
>>>>> is a pediatrician and if you happen to be in one of her
> hospitals she
>>> could pay
>>>>> you a visit and be sure all is going well.
>>>>>> My other daughter is an attorney, and if it is found that
> some of
>>> your
>>>>> problems stem from that waste dump location in which you were
> born (
>>> and
>>>>> raised? I'm sure her firm would be happy to sue on your
> behalf,
>>> though
>>>>> probably a class action suit has probably beenfiled, and
> perhaps even
>>> concluded,
>>>>> on behalf of residents of the town or wherever. My heart goes
> not only
>>> to you
>>>>> but to your parents. I doubt a child, or anyone who is not a
> parent,
>>> can
>>>>> understand the pain that parents feel when a child suffers and
> there is
>>> nothing
>>>>> the parent can do to take away the sufferering or pain, and
> has,in a
>>> case such
>>>>> as yours, to put on a brave and cheerful face.
>>>>>> Cindy
>>>>>>
>>>>>
>>>
>
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