[access-uk] Re: RNIB PRODUCT BOYCOTT

  • From: Eleanor burke <eleanormarthaburke@xxxxxxxxx>
  • To: access-uk@xxxxxxxxxxxxx
  • Date: Fri, 9 Oct 2015 17:01:19 +0100

suppose that's why you weren't invited to the party!

On 9 Oct 2015, at 16:36, Michael Moore <michaelmoorehere@xxxxxxxxx> wrote:

... Shortly after I lost my sight my Uncle had a retirement party, I didn't
attend but the rest of my family did, so I was home alone (at 22) and my
Uncle asked my family what would I do on my own if I needed to use the
loo.... My brother laughed and said, "I think he knows where his backside is
by now!"

Ho Hum!

Mike

-----Original Message-----
From: access-uk@xxxxxxxxxxxxx [mailto:access-uk@xxxxxxxxxxxxx] On Behalf Of
Richard Godfrey-McKay
Sent: 09 October 2015 16:32
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT

Absolutely right. When I lost the little sight I had aged 9, my parents
asked "What are you going to do when we're dead?"

Good question; the Worcester school had a good motto which meant "They can
because they think they can", and only in later life have I realised how
important that was.

Richard
Richard Godfrey-McKay
Telephone: 01738-445 880
Mobile: 07791 452 593


-----Original Message-----
From: access-uk@xxxxxxxxxxxxx [mailto:access-uk@xxxxxxxxxxxxx] On Behalf Of
Michael Moore
Sent: 09 October 2015 16:24
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT

...I am going to say something that many will not like nor agree with...

I lost my sight at 22, some 20 years ago. I had a tumour removed (not
related to losing my sight) but the surgeons failed to give me a shunt to
drain fluid from the spinal column resulting in optical atrophy. When I
asked the nurse at the hospital to give me details for trials etc she point
blankly told me, "Michael, your sight has gone, you are blind and you need
to get on with your life"
I went home and sobbed for nearly 3 hours and thought, you know she is
right.... Okay I miss driving something terrible, but being blind isn't all
that bad. #There is a lot blind people can achieve and if they have the
drive/passion and support, and I'm talking minimal support here, they can
equal and out perform their counterparts.

I don't wake up daily and think, "I hate being blind, it is terrible..." but
I just want a platform where I can get that opportunity to work alongside
any other person in an environment where I like working and enjoy it.

Most people I know with diabetes and are young refuse to take necessary
steps to monitor and control their diet and reduce the risk of sight loss.
When young we feel indestructible and the figures are still increasing....
so provide access to work for individuals with skills like yourself.

...well perhaps campaigning to the Government might be better!!

..and as regards people's responses I think that those who believe the world
should revolve around them do give a bad impression.

Mike
-----Original Message-----
From: access-uk@xxxxxxxxxxxxx [mailto:access-uk@xxxxxxxxxxxxx] On Behalf Of
Mike Ray
Sent: 09 October 2015 16:02
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT


The campaigns that present us as vulnerable etc. are doing so because that
is a very strong message to the brains of sighted folks, many of whom have
no relatives or friends or any experience of any blind people beyond seeing
one of us in the street. You have to remember that the first thing, and the
lasting thing, that a lot of sighted people are thinking when they see one
of us is "I couldn't cope with that".

And as far as driving for better employment prospects for us, that aint
gonna happen while the front bench of the government consists almost
exclusively of old Etonians. Such people are convinced that if their mates
get to keep more of there money there will be more jobs for everybody.

When I am out and about, the over-riding thing I try to remember is that I
might not need help now, or at all, but next time I might, and the next
blind person who encounters the same sighted person might.

Mike

On 09/10/2015 15:47, Michael Moore wrote:
Mike,

... I do agree that many people need educating, and at times ask
stupid questions, but this is because we are exhibited as vulnerable
and to some extent set as an example of "this is not how you want to
end
up"....

Why are these organisations not getting behind and driving employment
for those who have spent time in developing their skills and then say,
we've helped these individuals into inclusive employment, through
supporting them initially, so help us to assist others through
education
and employment....

I know after losing my sight 20 years ago I went to a local computer
training centre, they wanted advice on what to do to make all
accessible, so they called RNIB, who refused point blank to give any
advice or resources and wanted me to travel 60 miles to attend their
courses. They took my details and to this day still have to contact me
to
arrange a course.

This insular mind set regarding services is what is hindering progression.


Mike
-----Original Message-----
From: access-uk@xxxxxxxxxxxxx [mailto:access-uk@xxxxxxxxxxxxx] On
Behalf Of Mike Ray
Sent: 09 October 2015 15:34
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT


I'm sorry but all of you need to give members of the sighted public
around you a break. They are asking stuff like "can you see a bit",
because to them the idea of going blind is a terrifying prospect. And
they say stuff like "how do you get on the right bus" because they are
astonished at your independence and doubt their own resolve to be so
if they were to suffer sight loss.

Just like thin folks who stare at us fatties, who do so because of
their own morbid fear of being thought of as 'fat', sighted folks fear
blindness and don't understand it.

I would certainly NEVER refuse help in the street or be rude when
somebody states the bloody obvious like "you're walking towards a
wall", because, I might not need help, but the next blind person along
might.
And if I'm rude, that sighted person might not help the next person.

Sadly the RNIB and Guide Dogs are suffering a common problem of modern
times; they are run by suits who "know the price of everything and the
value of nothing".

And if somebody talks to you on the train or the bus, even if they are
spouting rubbish, at least they are talking. We live in a society now
where most of us, blind or sighted, go through our outside life in
silent isolation, making and seeking no eye-contact, words like 'hello'
and 'hi' which cost nothing and make a massive difference.

The RNIB are using ads like the ones mentioned to try to raise money
from people who are themselves terrified of losing their sight.
That's why they use the emotive things they do. Although I can see
how it might be seen as a negative by someone who has lived for a long
time with reduced vision, or total blindness, but if it persuades a
few people to cough up a few quid then fine. They can use me if they
like because I have no hesitation in being plain about how total
blindness often leaves me wishing I wouldn't wake up tomorrow. Mostly
because nobody takes any notice of me when I say I can still write
code that will leave most sighted school-leavers standing, but I can't
get
a job.

Mike

On 09/10/2015 14:28, john gallagher wrote:
hi janet strangely when i got in to the leeds station today a dog
tried to
get to zarah and it was someone with a training dog maybe aben drury
but of course they never speak to us or anything but, like ian says
all this from a charity that years ago fought of us like hell
campained for things to be bejter for us people have been on
committees spending hours fighting for our rights and now they come
out with something like this. the public are very gullable and believe
all
this rubbish.

in sheffield people used to ask me how i got on the right bus and i
told
them the dog could read the numbers and you know they believed it.

----- Original Message -----
From: Janet Bell <janet@xxxxxxxxxxxxxx>
To: access-uk@xxxxxxxxxxxxx
Date: Friday, 9 October 2015 2:22 pm
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT



Hi John

I just despair of these people and you are right you tell guide dogs
things and no notice is taken whatsoever because totally blind
people are in a minority they are just left on the shelf to disappear.

-----Original Message-----
From: john gallagher
Sent: Friday, October 09, 2015 2:17 PM
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT

hi janet well i am certainly not going to pay for the rubbish over
drive set up sad really but to me like the guide dogs the people at
the top never discuss anything with us at the bottom so to speak.
also on the train today someone was adamant i could see are you
parttly sighted she kept asking it just felt as though i had landed
from
outer space.

----- Original Message -----
From: Janet Bell <janet@xxxxxxxxxxxxxx>
To: access-uk@xxxxxxxxxxxxx
Date: Friday, 9 October 2015 1:59 pm
Subject: [access-uk] Re: RNIB PRODUCT BOYCOTT



Hi Ian

I don't know if you read this newspaper but last week in the daily
mirror there was an article about an American woman who wanted to
go blind which infuriated me about as much as what you have written
has. There was also an advert about fifteen years ago done by
action for blind people that made us look totally helpless which
annoyed me as well. I don't buy the rnib's products as I think
they are poor quality most of the time. and when my year's
subscription is up I don't think I will renew it either.

Janet ps there are still letters at the bottom of your messages.

-----Original Message-----
From: Ian Macrae
Sent: Friday, October 09, 2015 1:52 PM
To: access-uk@xxxxxxxxxxxxx
Subject: [access-uk] RNIB PRODUCT BOYCOTT

I am seriously considering boycotting what few RNIB products and
services I use - chiefly the electronic newspaper service - in
response to their latest ad campaign. There has been an item on
this at the end of today's edition of WATO. Celebs including
Barbara Windsor and Shirley Bassey are presented talking about the
idea of being told they're going blind. Bassey describes that
possibility as being "Devastating" and says she might as well be
told that she's going to die. Once again they have turned my
impairment into a thing of terror and me into an object of pity and
I've had enough of
x.ation"^j""""b""%""(""^"i"v&"z\""Yh"gg"gg"""""q"ea"J""""zX"""+???"
c omCbi'ththth&"ff"a""b"Ghz""Chae"?"""jgththth
"""q"ea"J""""zX"""+"""{ay+??"com?)?inin^"{.n"+????"com""""\"i"""ea""Z"
""j""j
y"brJ'"?oneng"""those'"_z0"xshyoungandjggmththzth_ththththth-_^"""+com"""""
ity"_er"""u"""z"q""z"""ity""
hisy@+88

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--
Michael A. Ray
Analyst/Programmer
Witley, Surrey, South-east UK

Eyes-free Linux:
http://eyesfreelinux.ninja/

Raspberry VI:
http://www.raspberryvi.org/

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--
Michael A. Ray
Analyst/Programmer
Witley, Surrey, South-east UK

Eyes-free Linux:
http://eyesfreelinux.ninja/

Raspberry VI:
http://www.raspberryvi.org/

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