[tri-wings] Re: respite care

My actual title, depending on the state services each client gets, is either 
"respite worker" or "CAP worker." CAP is one of the state funding programs 
here. My current clients are her, a set of preemie twins who are now 2 years 
old, a boy with general brain damage, and an autistic boy. I set my own hours, 
and my own cilents. Easter Seals-UCP calls me when they have a client, and I 
either take it or don't. Most of my clients are actually people who have come 
to me provately, who heard of me through word of mouth. I then help them to set 
up the state funding aspect so that they don't have to pay out of pocket. The 
state pay rate here is $8.50 an hour, but my clients pay $2 an hour out of 
pocket as well, so I get $10.50 an hour. 
  Its sometimes hard for me to see these kids, but they are with families who 
love them, and I get to love them too, so tis worth the hard parts to me.
  You might also check which trainigns are required for a respite worker in 
your state. I have to keep up to date on CPR, First Aid, bloodborne pathogens, 
medication administration, filling out paperwork (yes, theres really a class on 
that, its so ridiculously complex), plus I do special trainings deoending on my 
clients needs, like G-tubes, trachs, walkers and wheelchairs, standers, braces, 
all that kind of thing.
  --Sonya
BADABOONES@xxxxxxxxxxxxx wrote:
  Oh that sounds great! You sound like a wonderful person for doing what you 
do. So what is your actual title? Did you get to choose who you work with? Do 
you only work with her? Everyday? How many hours? Sorry to ask so many 
questions 
but that sounds more like what my sister would want to do. When I tell her 
about it I want to give her as much info as possible. I'll go on Salary.com to 
see how much they pay where we live. Do you think this will help or hurt her 
with her losing Jamin to Trisomy 13? 
Thanks a lot,
Stacy


Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line


                
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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