[tri-wings] Re: remembering Savannah - Erin A.

Erin,

Good to see a post from you.  Was hoping you hadn't dropped off the
list.  How are you feeling these days?

Hugs,

Brenda - wife to Rich, mommy to Matthew Alexander(2), Grace Alexandra
(^i^ 8/31/03 full T-13) and Nicholas Andrew (EDD 8/25/04)


-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx
[mailto:tri-wings-bounce@xxxxxxxxxxxxx] On Behalf Of Erin Albaugh
Sent: Monday, May 31, 2004 8:47 PM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Re: remembering Savannah

This is a beautiful rememberance of Savannah. I remember after Ellie
died thinking, at first all I could see was the burden and now I just
see it as a blessing I wish I could keep forever. I miss her so much,
every part of her, even those others might not understand how or why I
love. I miss her. =20
Erin,
Ellie's Mommy 6/26-29/03

>>> The4newt@xxxxxxx 05/30/04 07:40 AM >>>
I don't post much but I have been reading and decided that I would like
to=20
share something I wrote about Savannah around Christmas time. I have a
friend=20
helping me with a website (we are still working on) and this was
supposed to be=20
for that. It is just things that I remember about her.=20


I thought that when I sat down to write Savannah's story I would write
all=20
about the struggles we had medically with her. I thought I would also
write=20
about how it took us almost two years to get a diagnosis and answers for
why she=20
wasn't developing like she should. But as time goes by and we live
another day=20
without her those are not the things I think about. What I think about
most is=20
her beautiful blond hair and blue eyes. I think about her big smile when
I=20
would walk in her classroom at school and how happy she was to see me at
the end=20
of the day. I think about her sitting with me in the chair in our living
room=20
and watching one of her favorite shows on TV, the Weather Channel. I
also=20
think about struggling with her almost everyday on our way to her
classroom=20
because she thought it was so funny to make Mama late. I miss that so
much. I find=20
myself always on time and I hate it.=20

We never talk about her seizures and how hard they were on all of us.
What we=20
do talk about is how Savannah laughed when she would walk out of her
room=20
giggling like she was getting away with something. We talk about how
much she=20
would have enjoyed our trip to the beach. We talk about how much she
loved the=20
Christmas tree and how seeing the lights motivated her when she was 2
years old=20
to get up on her hands and knees and crawl to them. And how mad she
would make=20
her brother when she would pull all the ornaments off the bottom of the
tree=20
and he would have to put them back on.

I also thought I would write about how hard life seemed for Savannah
because=20
every milestone came very late and with a lot of sweat, hers, mine and
many=20
therapist. And while I think a lot of all the great people that came and
went in=20
Savannah's life and I am so thankful to everyone for everything they did
for=20
her. I would give anything to have to walk into her room tomorrow
morning and=20
dress her, feed her and change her diaper one more time. For those are
things=20
we were not able to teach her. But those things just do not matter. What

matters are the wonderful things she brought out of others. And if not
anything=20
else she molded her family and made us all better people.



















                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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