[tri-wings] Re: remembering Savannah

This is a beautiful rememberance of Savannah. I remember after Ellie
died thinking, at first all I could see was the burden and now I just
see it as a blessing I wish I could keep forever. I miss her so much,
every part of her, even those others might not understand how or why I
love. I miss her.  
Erin,
Ellie's Mommy 6/26-29/03

>>> The4newt@xxxxxxx 05/30/04 07:40 AM >>>
I don't post much but I have been reading and decided that I would like
to 
share something I wrote about Savannah around Christmas time. I have a
friend 
helping me with a website (we are still working on) and this was
supposed to be 
for that. It is just things that I remember about her. 


I thought that when I sat down to write Savannah's story I would write
all 
about the struggles we had medically with her. I thought I would also
write 
about how it took us almost two years to get a diagnosis and answers for
why she 
wasn't developing like she should. But as time goes by and we live
another day 
without her those are not the things I think about. What I think about
most is 
her beautiful blond hair and blue eyes. I think about her big smile when
I 
would walk in her classroom at school and how happy she was to see me at
the end 
of the day. I think about her sitting with me in the chair in our living
room 
and watching one of her favorite shows on TV, the Weather Channel. I
also 
think about struggling with her almost everyday on our way to her
classroom 
because she thought it was so funny to make Mama late. I miss that so
much. I find 
myself always on time and I hate it. 

We never talk about her seizures and how hard they were on all of us.
What we 
do talk about is how Savannah laughed when she would walk out of her
room 
giggling like she was getting away with something. We talk about how
much she 
would have enjoyed our trip to the beach. We talk about how much she
loved the 
Christmas tree and how seeing the lights motivated her when she was 2
years old 
to get up on her hands and knees and crawl to them. And how mad she
would make 
her brother when she would pull all the ornaments off the bottom of the
tree 
and he would have to put them back on.

I also thought I would write about how hard life seemed for Savannah
because 
every milestone came very late and with a lot of sweat, hers, mine and
many 
therapist. And while I think a lot of all the great people that came and
went in 
Savannah's life and I am so thankful to everyone for everything they did
for 
her. I would give anything to have to walk into her room tomorrow
morning and 
dress her, feed her and change her diaper one more time. For those are
things 
we were not able to teach her. But those things just do not matter. What

matters are the wonderful things she brought out of others. And if not
anything 
else she molded her family and made us all better people.



















                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: