[tri-wings] remembering Savannah

I don't post much but I have been reading and decided that I would like to 
share something I wrote about Savannah around Christmas time. I have a friend 
helping me with a website (we are still working on) and this was supposed to be 
for that. It is just things that I remember about her. 


I thought that when I sat down to write Savannah's story I would write all 
about the struggles we had medically with her. I thought I would also write 
about how it took us almost two years to get a diagnosis and answers for why 
she 
wasn't developing like she should. But as time goes by and we live another day 
without her those are not the things I think about. What I think about most is 
her beautiful blond hair and blue eyes. I think about her big smile when I 
would walk in her classroom at school and how happy she was to see me at the 
end 
of the day. I think about her sitting with me in the chair in our living room 
and watching one of her favorite shows on TV, the Weather Channel. I also 
think about struggling with her almost everyday on our way to her classroom 
because she thought it was so funny to make Mama late. I miss that so much. I 
find 
myself always on time and I hate it. 

We never talk about her seizures and how hard they were on all of us. What we 
do talk about is how Savannah laughed when she would walk out of her room 
giggling like she was getting away with something. We talk about how much she 
would have enjoyed our trip to the beach. We talk about how much she loved the 
Christmas tree and how seeing the lights motivated her when she was 2 years old 
to get up on her hands and knees and crawl to them. And how mad she would make 
her brother when she would pull all the ornaments off the bottom of the tree 
and he would have to put them back on.

I also thought I would write about how hard life seemed for Savannah because 
every milestone came very late and with a lot of sweat, hers, mine and many 
therapist. And while I think a lot of all the great people that came and went 
in 
Savannah's life and I am so thankful to everyone for everything they did for 
her. I would give anything to have to walk into her room tomorrow morning and 
dress her, feed her and change her diaper one more time. For those are things 
we were not able to teach her. But those things just do not matter. What 
matters are the wonderful things she brought out of others. And if not anything 
else she molded her family and made us all better people.



















                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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