[tri-wings] Re: pictures

Stacy wrote
>>. I think it his death would be easier for
> me to deal with if I truly knew he was better off. I just had such high 
> hopes
> he would be one of the kids with trisomy 13 that would be okay.<<

((((((((((((((((stacy )))))))))))))))))))))))))
Oh how I wish I could take away the pain that you are so obviously feeling! 
I for one get really ticked off when people say that my boys are in the best 
place and its better for them than to have suffered years of pain.Utter 
garbage IMHO.The best place for any child is in its mother's arms, that's 
why mother's were created!.So I'm sorry that I can't make that bit of your 
pain any easier to deal with by telling you he is better off but I truly 
wish that I could..However, I think that many if not all of us have had high 
hopes that "our" child will be the one who proves them wrong and beats the 
odds.I guess that's why many of us stay on the family list so that we see 
the survivors surviving and whilst its small consolation when our own 
haven't made it,it does definately help me.
Last year I had the wonderful pleasure of travelling to Australia and 
meeting up with  Alex (and Karen) and Tess (and her family).Before I went I 
was asked by someone if I thought it would upset me more by actually seeing 
them rather than just reading and seeing photos.I think I must have given 
them a rather odd stare as they quickly changed the topic of conversation.I 
will miss my boys for ever and day and not a day goes by that I don't wish 
that things could have been different but I know that in their own way they 
have made a difference and the kids who survive continue to do so.Reading 
about the other kids achievements and setbacks does set me off wondering 
sometimes how it could have been for us but that doesn't stop me doing the 
happy dance when someone posts a one small step kind of email or feeling 
hurt for someone when things go wrong.



 >>Sorry to wine and ramble sometimes I just type whatever is on my
> mind here because I'm scared that people around here get sick of hearing 
> my
> talk about how much I miss Jamin and all the questions I have. <<
Hey, whine and ramble all you like.If anyone doesn't want to read ,they have 
a delete key! Bottled up emotions are like a time bomb ticking away and one 
day they explode.

hugs
Mandy 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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