[tri-wings]

Thank you Joyce, for the kind welcome and congratulations on your pregnancy.

Andrea & Nicholas (12/28/01, T18)  

-----Original Message-----
From: Joyce Leven [mailto:alanleven@xxxxxxxxxxxx]
Sent: Friday, February 15, 2002 7:22 PM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Re: (No Date: Fri, 15 Feb 2002 15:24:12 -0600



Hi Andrea,

Welcome to the group and thank you for sharing Nicholas.  I gave birth to a
little boy, Zachary, in November of 2000.  He was diagnosed with Trisomy 13
two days after his birth.  I carried him to 37 weeks (considered full term)
and he weighed 5lbs 8oz.  I did not have an amnio or an AFP prior to his
birth even though I had been advised to.  I just felt that the worst case
scenario would have been Trisomy 21 (Downs).  I had never even heard of
Trisomy 13.  Zachary was with us for four days.  His birth and his passing
changed my life forever.  I am thankful for the time that I had with him and
wouldn't trade it for the world even though letting him go was the most
difficult thing I have ever had to do.  Like you, I wonder what he would be
like today.  There is not a day that goes by that I don't think of him. I am
expecting again and I am due on May 1.  I may have the baby a bit earlier
since I will probably have another c-section.  I did have an amnio this time
and all is well.  Time does ease the pain.  You never get over loosing your
child, you simply learn to live with it.  I look forward to hearing more
from you and hope that the days ahead bring you some peace.

Joyce, mom to Zachary 11/15/00-11/20/00, wife to Alan, and expecting another
bundle of love 05/01/02.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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