[tri-wings] Re: new to group

Quoting eric and shanna <how631@xxxxxxxxxxxx>:

> Hi,
>    My name is shanna I was looking for info on trisomy-13 when i found
> trisomyonline.org. I saw that there was this group and i thought i would give
> it a try. I just lost my son Tyler Nicholas to trisomy-13 on april 6.

Shanna,  
I m so sorry about your son Tyler.  This is a great group, always ready to 
listen.  SOFT has a couple of books, one on T-18 and one on T-13.  SOFT(Support 
Organization for Trisomy 18, 13, and Related Disorders) has a websit and I 
think that has the book info.  I had a copy of each and passed them on to my 
daughter. She's a NICU nurse and I figtured they could use them in her unit. 
Our daughter Erin had T-18 and lived for 6 months. Her story is on her website.
Our hearts go out to you and your family.
Gloria--mommy to angel Ein(11/4/94-5/4/95, plus Loren, Adam, Brenda, Ashlyn, 
and wife to Kim
http://remembering_erin.tripod.com/ 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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