[tri-wings] Re: new to group

Hi Shanna,
   
  I'm so sorry your baby boy Tyler Nicholas had Trisomy 13 and that he died.  
My heart goes out to you and your family.  It is so soon since Tyler died; your 
grief must be overwhelming to you at this time.  Please know that you are not 
alone and that we here and others know the enveloping pain you are experiencing.
   
  I'm pretty sure that everyone on this site will agree with me that most 
"normal" people will never understand the tremendous grief and sorrow we feel 
because of the tragedy that is Trisomy 13.  I hope that you have some family 
and/or friends that can bring you some comfort.  There is a terrific essay on 
grief that might help others to know how to try to bring you some comfort.  It 
it called "Who Gets in Your Bucket?" by Doug Manning. You can find it at 
www.thecelebratedlife.com/whogetsbucket.html .  I hope you find it helpful.
   
  My daughter Jillian was born on February 9, 2006.  I didn't know anything was 
wrong until after Jill was born either.  She lived for 18 days and died on 
February 27, 2006.
   
  I belong to another site, a private support group, called 
www.livingwithtrisomy13.org where you can see pictures, read Jillian's and many 
:( other stories of precious babies who have died because of T13.  Jillian's 
story is at www.livingwithtrisomy13/memoriesofJillian.htm .  Please feel free 
to read it.  I hope it helps you in knowing that others know what you have gone 
through and how you must be feeling right now. 
   
  Love,
  Ruth (Mom to Jillian (2/9/06 - 2/27/06)
   
  
eric and shanna <how631@xxxxxxxxxxxx> wrote:
  Hi,
My name is shanna I was looking for info on trisomy-13 when i found 
trisomyonline.org. I saw that there was this group and i thought i would give 
it a try. I just lost my son Tyler Nicholas to trisomy-13 on april 6. He was 
born april 1 we had no idea there was anything wrong with him until after he 
was born. Talk about a real shock especially since we have 3 Healthy children. 
I have found it difficult to talk to others about tyler. There really isan't 
anyone around that knows how I feel and that instantly puts up a wall. I hope 
that this is a place i can get some support in dealing whith this. 
Thanks 
Shanna

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