[tri-wings] Re: new member

Dear Ann Marie,

Please accept my most heartfelt condolences for your loss.  I wish that you
had been given some time with your precious Kelly.  I wish we were meeting
under different circumstances as well.  It is tragic that so many of us in
the world share this bond of losing a child to Trisomy.

I am sorry that you are feeling guilt about the decision you made for her
birth.  The "What if" and "If Only" part of this is so hard to come to terms
with.  But I think we all do the best we can with what we know at the time.

Your sweet baby Kelly knew only love.

A little about me and our story: My husband Mike and I had our daughter
Rowan on December 17, 1999.  She was also born with Trisomy 18. We didn't
have a prenatal diagnosis. She lived for one day, and she was our first
child.  We have since been blessed with 4 living children, who are 6, 4, 3,
1.  (We have some ages in common there too!)  I often think about things we
would have done differently, and wonder if things would have been different,
if we would have had more time with Rowan if we knew then what we know now
about Trisomy 18, and the possibilities.

I look forward to getting to know more about you and your family.

With love,
Corinne

_____________________________
Corinne O'Flynn, Executive Director
Rowan Tree Foundation
PO Box 393
Parker, CO 80134
(303) 378-4300
 
www.rowantreefoundation.org

 
Join us on AUG 4th for our 2nd Annual Charity Benefit. 
Casino Night and Silent Auction @ the Marriott Park Meadows!
We'll have a Texas Hold 'em Tournament too!  Details online!
 
 
 

-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx [mailto:tri-wings-bounce@xxxxxxxxxxxxx]
On Behalf Of anne marie lillwitz
Sent: Thursday, June 21, 2007 6:23 AM
To: tri-wings@xxxxxxxxxxxxx; tri-family@xxxxxxxxxxxxx
Subject: [tri-wings] new member

Hi,
   
  My name is Anne Marie.  My husband, Larry, and  I have 5 kids (11, 7, 4,
3, 1) and our little angel, baby Kelly.  Kelly was stillborn 2 weeks ago.
She was diagnosed with T-18 when I was 32 weeks pregnant.
   
  Although we knew that she may not live long or survive childbirth, I
thought she would come home with us for a while, as her ultrasounds didn't
show any major heart anomilies or other problems.  It was very hard to leave
the hospital without her.
   
  Another thing I am struggling with now is guilt.  It is funny, because I
am not angry or asking why us?, but am mostly feeling sad and somewhat
guilty.  I keep wondering if I should have had a c-section and if that would
have prolonged her life.
   
  Anyway, that is part of our story.....I am sorry for all of you and your
losses...and I wish we were meeting under different circumstances.
   
  Anne Marie Lillwitz
  Aurora, Il
       
---------------------------------
Boardwalk for $500? In 2007? Ha! 
Play Monopoly Here and Now (it's updated for today's economy) at Yahoo!
Games.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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