[tri-wings] Re: new member

Dear Vickie welcome to wings, & yes it is most certainly alright to be here,
glad you found us.I'm so
sorry to hear of Marissa passing from leukemia.This must have been a very
hard struggle for your
family. I remember reading this can be a very real susceptibility for
T21ners, but I can tell you truly
when I was going back to the hospital to receive the results for genetic
testing re: my daughter Marie,
I would have walked out feeling much better if the diagnoses had of come
back T21 rather than the T18
which she did have in the end. I remember the meds saying if baby had T21
the long term general prognoses
was better.However we did not even get that lucky.
Anyway glad you are here with us though the reason be a sad one , looking
forward to talking in the future.

Take care Love Deb mom to Angel Marie ((~i~)) T18 09/24/2000.

----- Original Message -----
From: vickie <robton99@xxxxxxxx
To: <Tri-Wings@xxxxxxxxxxxxx>
Sent: Saturday, April 21, 2001 1:03 PM
Subject: [tri-wings] new member
ad

> er
> Hi , my name is Vickie.  I am the mother of  three children, Robbie 15,
Dalton 2, and Marissa would be 6.  She was a beautiful little girl with
trisomny 21.  Marissa passed away Sept. 4, 1999 from leukemia.  (LONG STORY)
I am not sure that I am in the right site, because the other kids have r
trisomny problems than 21.  Let me know if it is okay for me to be here.  If
not, okay.  I know what it is like to lose a special child and to have
anothr pregnancy after.  I found out I was carrying Dalton 2 weeks after we
lost Marissa. I think I could be a good member.  Thanks, Vickie
>
>
>
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