[tri-wings] Re: new diagnosis-almost

Dear Kristen,
  I am so sorry for your need to be here. My daughter Melissa, age 25, got Kaden
dx of t-13 at 27 wks. It was most definatly the most devistating time of our
lives. The doctors breifly taked to her of the abnormalities they saw and sent
her home to wait for the next appt. Of couse on a weekend. We immediatly got on
the internet for info and found of the grim outlook. Thank God for the parents
on this list to help us sort thru the truths and our own emotion. Melissa, 2 yr
old Maelin and I spent many an hour walking and talking of what would be. She
and I keep praying for God's grace to devilver us from the pain of what ever
would come and make the right decisions for Kaden's life. We weren't given the
decision of any life saving measures and at 35 wks Kaden gained his wings. A
beautiful baby boy with little chubby cheeks and legs.4lbs 8 oz. We treasured
our time tho it would never have been long enough. All the family, having him
baptized, lots of pictures and quiet time with mommy and daddy. Maelin did very
well tho I'm sure it was hard for a 2 yr old to absorb all. Melissa prayed for
each and ever blessing to come from his short life and they have still
continued. Our little Angel has given us more gifts than ever imaginable. How we
can possibly say that is most definatly from God,"The peace that passes all
understanding". The 4th we will celebrate Kaden 8 mo. Angel day and the loss is
just as painful and fresh but also the loving memories of cherishing every
moment and heartbeat. Maelin cotinues to deal with the loss of her baby brother
and as all will continue to the rest of her life. The love they brought and the
love we share is what helps us to go on as a tribute to them. We do things as a
tribute and talk of Kaden every day and pray Maelin can come to peace with his
loss.
God's Blessings to you as you also walk the Trisomy Path.
Love, LouAnn
York,NE
Mom to Melissa,25 Maelin Ann,2 Kaden James^i^9/04/02 our heavenly Angel full
t-13 and new Baby due July :o)
also mom to Mick,28 & TJ, 14

Kristen Tallman wrote:

> I just had an ultrasound this past Tuesday and was so excited to find out =
> that I was having a baby girl-though I didn't mind about the sex, as long =
> as the baby would be healthy.  One hour later, my midwife sat me down and =
> told me the bad news.  Here it is, three days later, and I have gone from =
> total elation to extreme sadness.  My baby girl likely has Trisomy 18. I =
>
>
> Kristen (mom of Emily 4 1/2, Alex 2, and Allison (?T18)
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: