[tri-wings] Re: my crazy household
- From: "Melissa Smurdon" <mjsmurdon@xxxxxxxxx>
- To: tri-wings@xxxxxxxxxxxxx
- Date: Sun, 21 Sep 2008 11:25:11 -0400
just ache for him. I'll be thinking of you both and sending many,
many prayers.
May you and Tony feel his loving angel sisters surround and comfort you
both.
Melissa Smurdon
Mommy to Noah (9/20/07-6/14/08)
full t18 & spina bifida
www.caringbridge.org/visit/babysmurdon
On Sat, Sep 20, 2008 at 12:38 AM, <S3219@xxxxxxx> wrote:
> Now all the progress he made is being slowly
> stripped away as he's returning to the helpless little boy he started out
> as. There
> is one big difference. He is very aware that he's losing ground and gets
> very
> angry and sad at his loss of skills. He's being stripped of his muscle
> strength and his balance, as well as his ability to recall word/signs. His
> 'quality of life' is incredibly diminished.
>
>
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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