[tri-wings] Re: hospital education re trisomy ??? -sorry long

Jill,
Sorry for everything that happened with Daniel.=20
I agree the nurses are the best.  Christians Nurse Lisa came to his
services and I still have her number.  I need to call her and I will if
I can find it. I need to do something special for them I have been
thinking of a special announcement for them and my OB doctor.  Christian
was his first case too, but his niece had t18 so he was familiar with
it.=20
I send my hugs and prayers to all you moms, grandmas, aunts, uncles, and
dads who have a tink/angel out there looking over them.=20
Marianne
Mom to Christian (T13) 9-29-05/10-1-05, Anthony (4) Jun 4th 2001


-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx
[mailto:tri-wings-bounce@xxxxxxxxxxxxx] On Behalf Of Jill Husted
Sent: Monday, March 27, 2006 6:55 AM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Re: hospital education re trisomy ??? -sorry long

What the Drs did was so wrong. I know when we took my son off the vent
one=20
of his parents HAD to SIGN the DNR papers. They wanted it in writing.
Some=20
time I think the Dr could have done more. I do believe that Daniels psa=20
should of been closed by either meds of by surgery. But it was never=20
mentioned to us that it was not good to be that big. But in the long run
an=20
apnea spell is what he pass away from. He died in his sleep in his own
bed=20
in his own house. We were so blessed to have that much. He was not
suppose=20
to be able to breathe with out the vent. He surprised all of us. The
nurses=20
were so much better than then some of the doctors, but I think that is=20
because the nurses actually take care of the babies in the NICU. Some of
the=20
Drs just see them as patients. Two of Daniels nurse came to his
visitation,=20
also both of his hospice nurses came too along with the social worker
from=20
hospice. Sorry to babble. I keep meaning to make a list of places where=20
expecting moms can go to find help to give to my OB. My son was the
first=20
case that they ever had of T-13. They felt so bad that it was missed.=20
=20
Jill=20


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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