[tri-wings] Re: hospital education re trisomy ??? -sorry long

What the Drs did was so wrong. I know when we took my son off the vent one 
of his parents HAD to SIGN the DNR papers. They wanted it in writing.  Some 
time I think the Dr could have done more. I do believe that Daniels psa 
should of been closed by either meds of by surgery. But it was never 
mentioned to us that it was not good to be that big. But in the long run an 
apnea spell is what he pass away from. He died in his sleep in his own bed 
in his own house. We were so blessed to have that much. He was not suppose 
to be able to breathe with out the vent. He surprised all of us. The nurses 
were so much better than then some of the doctors, but I think that is 
because the nurses actually take care of the babies in the NICU. Some of the 
Drs just see them as patients. Two of Daniels nurse came to his visitation, 
also both of his hospice nurses came too along with the social worker from 
hospice. Sorry to babble. I keep meaning to make a list of places where 
expecting moms can go to find help to give to my OB. My son was the first 
case that they ever had of T-13. They felt so bad that it was missed. 
 
Jill 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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