[tri-wings] Re: grieveing

Hi,
   
  I wish I could give you advice.  I can offer you compassion and sympathy.  I 
can empathize since my baby died on February 27, 2006.  We didn't know Jill had 
Trisomy 13 either.  I still act in a dazed, confused state at times.  My 
husband tells me that when he's a work he'll be in the middle of doing 
something and then wonder what he was supposed to be doing.  I think that is 
better than the excruciating pain and sorrow that is sure to come.  I think 
everyone on this site has and continues to feel that.  Know that you are not 
alone.  That helps, I think.  It is the worst thing imaginable.  It is 
unbelievably difficult.  It is so unfair.  (((HUGS)))
   
  Ruth (Mom to Jill 2/9/06 - 2/27/06)
Rickyrams1999@xxxxxxx wrote:
  I was wondering if anyone had any advice on losing a baby. Our son was born 
April 12, 2006. He was 6 lb. 13 oz. and 19 inches. We didn't know he had 
trisomy 13. When he was born he had four fingers and six toes, other than 
that he looked like every other baby. His main problem was his breathing. He 
was transferred to a nicu. He was only intebated for a day before he was 
placed on the lowest dose or regular oxygen. He even began feedings. The doctor 
told me it would take 7-11 days to get the chromosome tests back. The doctor 
did ultra sounds of his brain and internal organs and said they were 
functioning normally. Six days after he was born they decided to take him of 
the 
oxygen and let him breathe on his own. He did so well for a couple of hours. 
The next day we got the results and we were told to prepare to let him go. 
That night at 6:15 pm he passed away in my arms. I had to return to work so we 
could take care of everything. Every time I go into work, just for a second 
I forget and find my self going to the nicu instead of my floor. I would 
really appreciate any advice that anyone may have. 

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line


                
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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