[tri-wings] Re: good grief!

>All morning I have been sorting through mail and other paperwork that's
accumulated >while I had better things to do (play with her). Now I am being
taunted by the
>notebook in the corner, the one started while we were still in the NICU,
the one
>we've kept all her important papers in. It's taunting me because it was so
>important and now suddenly, it seems that it no longer has a purpose.
Keeping it
>seems pointless but the thought of getting rid of it makes me sad right
now. Any advice or encouraging words??

Kristy,

It's sad because it has been such an integral part of your life with Karly.
My advice would be to keep it.  Maybe not out in the corner though.  Tuck it
away in a draw or closet, where you can retrieve it later when you feel a
need to remember
those parts of your life with her.  There's a wealth of invaluable memories
and information in that notebook.  And not just for you either.  I know that
you haven't had a lot of extra time, because I remember what the 1st year of
just trying to keep one of these children alive is like.  But when you do
feel up to it, Karley's TRIS project surveys are still waiting for you to do
them.  And that notebook will come in mighty handy then.

Fawna, Research coordinator TRIS Project, mom
to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
& Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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