[tri-wings] Re: Tyler

Erin,
My heart truly goes out to you and your family.  I couldn't imagine
losing my baby that soon and that way.   I lost my little boy Christian
in Oct. I too didn't know anything about Trisomy until we found out
about Christian's suspected T13 on 30 Jun 05, and it was confirmed via
amnio as well.  I remember the doctors telling me that they wouldn't
monitor his heart rate and I get got furious.  The way I saw it was that
he was my baby no matter what and I wanted him to be treated like it. I
didn't like the way there were going to do things in Germany so when
they said we could come back to the states I was overjoyed.  Not to
mention my doctor here was the opposite.  He was all about doing the
normal stuff, they monitored him and I was really proud of how well he
did.  Especially when they said he probably wouldn't make it through
delivery.  It was after the delivery that he started to have problems.
Because I had gone 2 wks over due they said that he had swallowed some
bowel so they didn't want him to breath at first.  It was the fact that
they couldn't get him to breath that scared me.  I remember praying for
him to breath.    Each person goes through it differently so we can only
be there for each other and share our stories. =20
If you ever need anything we are all here for you.=20


-----Original Message-----
From: tri-wings-bounce@xxxxxxxxxxxxx
[mailto:tri-wings-bounce@xxxxxxxxxxxxx] On Behalf Of Erin Maurer
Sent: Wednesday, March 29, 2006 1:35 PM
To: tri-wings@xxxxxxxxxxxxx
Subject: [tri-wings] Tyler

Let me introduce myself.

I am Erin and I recently lost my baby on March 3, 2006.  Here is my
story,
hopefully short. In december at our 20 week u/s they noticed markers for
t-18.  So, they sent us to a level 2 u/s and perinatologist.  It was
confirmed via amnio that our baby Tyler has T-18.  Tyler was due April
23,
2006.  On February 28th, 2006 I went in for regular check up and I had
developed Pregnancy induced hypertension.  Almost overnight.  My blood
pressure has risen slowly over the previous 2 months but not enough for
the
doctors to catch it I guess.  Over night it skyrocketed.  Within the
next
day or so I developed preeclampsia and my blood pressure was 170/110 or
so.
I was put on blood pressure meds and then an IV of magnesium sulfate.  I
was
almost 33 weeks.  It was the worst thing ever in my life.  I felt like i
was
dieing.  The magnesium is terrible.  I guess the doctors thought it
would be
best for us to induce for my health.  They had to weigh my health over
the
baby's, especially because he had T-18.  I had a really hard time trying
to
figure out if I really needed to induce or not.  I know that because my
baby
had T-18 that they wouldnt considered him at all.  They would put a high
priority on me and my health.   I still dont know.  I think if Tyler
would
have been healthy they would have kept me on the mangesium for a few
weeks
to try and get Tyler a little older. But since his chance of living was
so
slim already they suggested we induce because my kidneys were starting
to be
affected.  We induced on March 2nd and Tyler was born  March 3, 2006 at
4:01am.  He died sometime during delivery.  I dont know when because I
chose
no hearttone monitoring.  I didnt want to know that he passed and then
have
to deliver him.  I just thought that would be too tramatic for us.
Sometimes I wonder if I made the right decisions.  Did I have to induce?
Maybe it would be nice to know exaclty when he passed away.
My sister is a naturpathic doctor and almost done with her certification
to
be a midwife too.  So, she was there for me.  She said she thinks we
probably had to induce also.  She said that since Tyler just didnt have
much
of a chance of living because of T-18 that risking my health was not
worth
it.

Anyhow, I know these are all parts of the grieving process. You question
everything.
I am just begining this journey of healing.

Erin
Mother to Tyler Joel 3/3/06 t-18 born to heaven

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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