[tri-wings] Re: Trying To Cope

>I lost our son, Jason, to Trisomy 13 on September 5, 2006...and we have 
>a 2 year old named Kalia.  I really want her to be okay... Worst of all, my 
>husband is in the Army and he's set to be deployed in November for a whole 
>year!  How exactly am I supposed to deal with all this?  I would appreciate if 
anyone would write me back.  

Nikia,

I'm so sorry that Jason left you so soon.  And though I'm not in the same
situation you are, I do know of another Trisomy 13 family who lost their son.
live in Tx, have a surviving daughter, and dad's in the army.  The LaBeth's 
have Trevin's story posted in the Livingwithtrisomy13 website's memory album
pages: http://www.livingwithtrisomy13.org/memoriesofTrevin.htm

You might want to check out his story and contact his parents (e-mail
link is included with story).


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of rare
trisomy, living & deceased, for the main project database.  To 
include your child's data and help update the medical literature 
please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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