[tri-wings] Re: Trisomy 18

Hi Jesse,
First sending a welcome to your little angel.  Your love for him is obvious
and beautiful.   I am so glad you are enjoying him.

My son Noah was diagnosed while we were pregnant with full trisomy 18 and
spina bifida.  The doctors said with both he would not live past a week.  He
was with us for almost 9 months!  9 wonderful months!  His care was hard
work and pretty exhausting but worth every moment.

Sending prayers your way for continued good health and progress for your
son.  We are here if you ever want support!  I also really appreciate the
message boards at www.trisomy18support.org.  Click on Community Boards.  You
don't have to sign up to read.  It can help as you do have questions re: his
care.

Best wishes,
Melissa
Mommy to Noah (9/20/07-6/14/08)
full t18 & spina bifida
www.caringbridge.org/visit/babysmurdon


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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