[tri-wings] Re: Trisomy 18

Dear Jesse,

My baby girl, Arily, was diagnosed with Trisomy 18 when I was 22 weeks 
pregnant.  She also had Turners syndrome, and the problems both 
disorders dished up were too much for her tiny body to take anymore and 
she stopped growing.  She was born sleeping on July 8th, 2006 at 26 
weeks gestation.
Your little boy is beating the odds right now, you did an amazing job at 
giving him the strength to do so well.  Trisomy 18 doesn't have o be the 
death sentence so many doctors impose on our babies, I know of a family 
whose daughter survived with full Trisomy 18 to the age of 21.  Did your 
doctor mention mosaic?  The disorder affects every baby differently.  
I'll keep your little boy in my prayers that he will stay with you for a 
long time.
Jean

-- 
Mum to Arily Faith, born asleep, July 8th, 2006
and to Conor, born June 21st, 2007
Our little bean due June 17th, 2009


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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