[tri-wings] Re: Thanks

Maya,
My heart goes out to you and Shawn.  Everything is still so fresh and  
new for you right now.  All of the feelings you are having are  
"normal", but nothing seems normal right now, I'm sure.  Getting  
through the day is a good goal.  And for Pete's sakes, you did so  
much for Mieko.  It shouldn't have happened!  We should never lose  
our children.  We don't ever have any control over life and death  
even when we think we do.  Don't ever think that you didn't do enough.
That guilt journey is hard to break.  I dealt with that when my mom  
passed away because I had promised her that I would not let them  
discontinue life supports, but I was outvoted by the rest of her  
family.  That tore at me for a really long time.  But guilt doesn't  
make it any better or make it go away.

Mieko's smile and exuberance are an inspiration to all new parents of  
trisomy 18 children.  Keep that in your heart.  Mieko is helping  
soooo many others learn about trisomy and how to face the future with  
a smile.  She is a really great ambassador for all of us.

                On Jul 29, 2008, at 9:05 AM, Maya Nishikawa wrote:

                Now, this new journey seems harder than anything we've
                faced before. I'm filled with so many emotions and just
                getting through each day is my goal right now. I still have
                thoughts that this wasn't supposed to happen and that it
                didn't really happen.  One of my darkest thoughts right
                now is that we didn't do enough for her.

You and your family will remain in my prayers.

Always there for a Hug and a Prayer!
Sheila Helleson                 Minnesota Grandma to:
Hope (T-18 ^i^ 11-1-1) & Alison (almost 4); Cadence (7.5 yrs) and  
Bridge (4 + yrs)
Mom to Cheryl (& Denny);  Wade (& Charity)
Wife to Richard

"Shared joy is double joy, and shared sorrow is half-sorrow."   
Swedish Proverb
Laughter and tears are the healing medicines of God.








                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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