[tri-wings] Re: TRISOMY 17 BABY MICHAEL.......MISDIAGNOSED

{{{{Theresa}}}}


I was looking for parts of your message to highlight and parts to  
delete so that my message wouldn't be so long.  What a hard job!   
Your message is just so heartbreaking.  I am so sorry for you and the  
rest of Michael's family.

        I asked the doctor incompatible with whose life
        yours or mine.
        She did not know what to say. I wanted to smack her she made
        me so mad. I did weeks of internet research on Trisomy itself.

I love your question to the doctor.  And it is just so sad that  
doctors don't even want to take the time to do any research.  They  
have just been so indoctrinated during med school that they don't  
even question it.  My nephew did exactly the same thing.  But I do  
keep him informed.  He will hear Michael's story, too.

        He was born on my husbands birthday 9-9-08 and he lived
        for 9 days. They were the best 9 days of my life.

Even though we got to hold my daughter's daughter - and tell her how  
much we loved her - it was not quite the same.  She did not make it  
through delivery.  Her heart couldn't handle that stress.  I'm so  
glad that you got 9 days with Michael.  And what a birthday present  
for your husband!

        I found a story about a lady who had an amnio. Came back
        Trisomy and incompatible with life. She opted to abort.
        The autopsy came back and the results showed the baby
        was perfectly healthy.

This story is so sad.  And just like your story, this family  
definitely has a right to fight.  I'm so glad that you are strong  
enough to do that for all of our little angels.

        They may have been able to save his life had they been
        looking at the right things but everyone had blinders on
        and refused to see past the Trisomy 17 which Michael
        did not have after all.

In addition to your grief, or maybe as part of it, you are taking a  
huge step.  My thoughts and prayers will be with you.

        I can assure all of you on this site that I hope to take this
        up to the highest US government body I can someday
        because I saw first hand how Trisomy babies are brushed
        off like they don't even matter. . .  I can assure you all.....
        I will fight for these kids till the day I die now cause no
        person should ever be treated like my son and so many of
        your children may have been. . . Our kids deserve to be heard!!!


You have my full support.  Please keep us informed.  I love your  
spirit.  And what a wonderful way to spend your time, but remember to  
take care of yourself.  Your body is still experiencing the  
postpartum hormones, etc.

Always there for a Hug and a Prayer!
Sheila Helleson                 Minnesota Grandma to:
Hope (T-18 ^i^ 11-1-1) & Alison (almost 4); Cadence (7.5 yrs) and  
Bridge (4 + yrs)
Mom to Cheryl (& Denny);  Wade (& Charity)
Wife to Richard

"Shared joy is double joy, and shared sorrow is half-sorrow."   
Swedish Proverb
Laughter and tears are the healing medicines of God.








                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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