[tri-wings] Re: TRIS Update

Fwd'd from Family list.....

Hello all!
  I just wanted let you know that the TRIS website is updated for November.  
There are new pictures and resources  if you want to check it out. You can 
also check out the October Family Resources for last minute Halloween ideas.
     Please continue to send us pictures, so we can continue to include new 
photos on the website.  You may email photos to Deborah A. Bruns, 
dabruns@xxxxxxxx  She will also follow up with a photo release form.  Also, 
if you are interested in being a part of the pilot survey, please let us 
know, we would love to have you!
Thanks!
Christine

Our URL is: http://web.coehs.siu.edu/Grants/TRIS/

_________________________________________________________________


Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of 
Trisomy 13 & 18, living & deceased, for the pilot phase.  
To include your child's data and help update the medical 
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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