[tri-wings] Re: TRIS Surveys

The TRIS project has 23 completed surveys. Many have been submitted
from list members, thank you.

If you would like to sign up for access to the survey please go to
http://web3.coehs.siu.edu/TRIS/NewUser.php and fill out a survey
activation form.  Once submitted you'll then be issued your individual
access ID & Password.

Also, be sure to look at our monthly Family Resources and tell us
your ideas of ways to improve the TRIS website in its presentation
and content. Plus, our TRIS project brochure is now available online
- please share it with other famlies you know as well as the medical
professionals working with your child. We are thinking about some new
pages with more detailed medical information, article summaries, etc.
Let us know what you would like to see the TRIS project work on to
increase awareness of children and adults with rare trisomy conditions.

Again, thank you so much for your support.

Debbie Bruns

                 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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